JUNE 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Joymrt5

Postby Rustsmith » Sun Jun 09, 2019 10:48 pm

Sunday, June 9

Welcome to

Joymrt5, who has RLS and is looking for support.

You came to the right spot if you are looking for support for your RLS. If you will post a note telling us about your symptoms, your meds and asking any questions that you have, we would be happy to help you out and provide whatever support that you need.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to theoz49

Postby Rustsmith » Mon Jun 10, 2019 8:42 pm

Monday, June 10

Welcome to

theoz49, who has questions about RLS and the medications to relieve symptoms.

If you will post a note with whatever questions that you have, we would love to answer as many as we can.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 15599
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Welcome, crk

Postby ViewsAskew » Tue Jun 11, 2019 5:31 pm

Tuesday 11 of June

Welcome to crk whose life (like so many of us) has been turned upside down because of RLS and its effects. Medications haven't worked and crk is tired all the time.

crk - please start a new post and tell us more. We will help as best we can.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to madison168

Postby Rustsmith » Tue Jun 11, 2019 8:10 pm

Tuesday, June 11

Welcome to

madison168, who has several health issues and her RLS has become severe adding to an already overwhelming situation. She has chronic insomnia and now her RLS is so bad that she can't go back to sleep once her sleep medication has worn off. She has chronic pain during the day and enjoyed the end of the day to rest and now night time is started to stir up anxiety.

Insomnia is part of RLS, that is why it is classified as a sleep disorder. Please post a note telling us about your meds so that we can offer you some suggestions to discuss with your doctor about how to gain control of your life again.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to TempestTBI

Postby Rustsmith » Wed Jun 12, 2019 11:31 pm

Wednesday, June 12

Welcome to

TempestTBI, who 65 years young and has had RLS for over thirty years. Tempest has been treated with Mirapex and it's generic form Pramipexole successfully and so it wondering if there are any side effects to some of the generic forms?

The generics should be pretty much the same as the name brand. However, please be aware that Mirapex/pramipexole can cause augmentation after taking it for an expended period of time. Augmentation is not something that many doctors know about and it is where the medication can actually cause your RLS to get worse. To find out more, please look through the Augmentation Forum.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 15599
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Welcome, DoubleG

Postby ViewsAskew » Thu Jun 13, 2019 12:31 am

Wednesday, 12 of June

Welcome to DoubleG, who has been using ropinerole for awhile and is grateful for it.

Start a new post if you want to tell us more. Otherwise, hope the information here is helpful to you.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to sandybartusek

Postby Rustsmith » Thu Jun 13, 2019 3:07 pm

Thursday, June 13

Welcome to

sandybartusek, whose RLS is disrupting her sleep. She has decreased productivity since it started affecting the number of hours she sleeps per night.

Please post a note telling us what you are doing to treat your RLS and asking any questions that you have. We would love to be able to help you get more sleep each night.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jackie83

Postby Rustsmith » Thu Jun 13, 2019 10:07 pm

Thursday, June 13

Welcome to

jackie83, who has a severe case of RLS. She has tried all kinds of medicine and has had it for years. Hers is the worst case her Dr has seen.

Please post a note telling us about the meds that you have tired. Many of us also have severe or very severe RLS and have found that there is always something new to try.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Flaspohler

Postby Rustsmith » Fri Jun 14, 2019 3:27 am

Thursday, June 13

Welcome to

Flaspohler, who has had RLS most of Flaspohler's life, but worsening about 2000. Interruption of sleep is major issue even with meds.

Please post a note telling us about the meds that you are taking and have tried so that we can offer some suggestions to get more sleep.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to djm755

Postby Rustsmith » Fri Jun 14, 2019 10:18 pm

Friday, June 14

Welcome to

djm755, who was diagnosed with RLS in 1984, has severe RLS every day and every night and has been taking medications of every kind since 1984.

Please post a note and let us know what we might be able to do to help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to woodywvt

Postby Rustsmith » Sun Jun 16, 2019 2:13 pm

Sunday, June 16

Welcome to

woodywvt, who has had RLS most of jis 78 years. Went into severe augmentation in mid 2018. Thru Karla at RLS Foundation hooked up with Dr. J. Winkelman. After getting up to 2700 mg gabapentin with no relief, went to methadone. 21/2 mg - no effect. 5 mg effective for about 6 weeks. 10 mg same experience. Now on 15 mg, RLS now infrequent and not bad. Side effects of methadone now becoming bad. Nausea, mood change, depression worsening, loss of appetite, weight down 18 pounds. Most recently arms "pins and needles" at night and sometimes in day. Go to bed, sleep for an hour, wake up for 2 or 3, back to sleep, wake up very groggy. Has anyone else experienced these side effect?

If you do not receive any responses, please post a note so that others are more likely to see it. Personally, I will occasionally have the pins and needles neuropathy on opioids, but not very often. But then again, I am also still on gabapentin along with the opioids.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to pika

Postby Rustsmith » Mon Jun 17, 2019 2:35 am

Sunday, June 16

Welcome to

pika, who twenty years ago had to go out on (temporary) disability from a teaching job as pika was falling asleep at the wheel driving home, and too to be able teach well. Getting diagnosed was a long rocky road as the school district sent pika to a psychiatrist! Eventually had sleep study and was lucky enough that pramipexole worked for 19 1/2 years before augmentation set in. Unfortunately pika's GP knows almost nothing. But did taper pika off of pramipexole, while starting on gabapentin (300 mg.). But now, a month later, pika is up until 3 a.m. every night, with twitching legs.

There are several things that you need to try to be able to get more sleep, including a higher dose of gabapentin. But the main thing is that you need your GP to provide a referral to a neurologist that specializes in movement disorders. If you will post a note giving us an idea of where you are located, we may be able to offer some suggestions. Many of us have to travel to see an RLS expert, and this might be something that you will need to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to pwags

Postby Rustsmith » Mon Jun 17, 2019 2:44 pm

Monday, June 17

Welcome to

pwags, who is currently suffering with RLS that is not controlled by meds

Please post a note telling us about the meds so that we can offer some suggestions of changes that you can make that will reduce your suffering and get you more sleep.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to holmesd

Postby Rustsmith » Mon Jun 17, 2019 2:46 pm

Monday, June 17

Welcome to

holmesd, who has suffered with RLS since 4-5 years old. It has been maddening at times. However, now it is a daily ordeal requiring medication. holmesd knows it is a matter of finding the right information to help.

You have come to the right location for info on RLS. If you will post a note telling us about your current meds and asking any questions, we would be glad to help reduce your suffering.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3877
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Phass

Postby Rustsmith » Mon Jun 17, 2019 9:21 pm

Monday, June 17

Welcome to

Phass, who us up and down all night, which causes lack of sleep, so Phass needs to fine a new medication.

Please post a note telling us what you are currently taking, what you have tried and asking any questions that you have. We should be able to offer you some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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