JULY 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to naturalborninsomnia

Postby Rustsmith » Mon Jul 08, 2019 7:52 pm

Monday, July 8

Welcome to

naturalborninsomnia, who has insomnia that is often associated with RLS. She'd like to hear what other people are doing to manage their symptoms.

Insomnia is actually a part of RLS. If you will post a note with your questions, we can provide you with answers about what many of us do to manage both the movement and insomnia sides of RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to FoodIsMedicine

Postby Rustsmith » Mon Jul 08, 2019 8:53 pm

Monday, July 8

Welcome to

FoodIsMedicine, who have RLS and low ferritin. She is trying to figure out what can help her. RLS runs in her family. Her grandmother had RLS and Parkinson’s so she wants to be as proactive as possible.

Please post a note telling us what you are doing to manage your RLS and what your ferritin level is. We would love to be able to make some suggestions that could help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Evertking

Postby Rustsmith » Tue Jul 09, 2019 1:26 am

Monday, July 8

Welcome to

Evertking, who is depressed due to lack of sleep and energy. He is often too tired to even spend quality time with his wife and children.

Please post a note telling us what you are doing to manage your RLS. There is no reason why your family should do without you due to your lack of sleep.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Winston415

Postby Rustsmith » Tue Jul 09, 2019 2:27 pm

Tuesday, July 9

Welcome to

Winston415, who has had RLS for at least 15 years and has tried every medication he can think of short of opiates and benzos. He has to stay away from those due to being sober. Just trying to find other alternatives.

Please post a note telling us about the ones that you have tried. We may be able to offer a suggestion other than the opioids.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 5217
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to cdnuturn

Postby badnights » Thu Jul 11, 2019 7:48 am

Welcome today to cdnuturn, who was diagnosed with WED/RLS nine years ago but due to a recent move, has ended up with a doctor who seems to be treating drug addiction instead of the actual issue, WED/RLS.

cdnuturn, it would be good if you started a new Topic with a post telling us more about yourself and the medications you are on. And what your new doctor is saying. We have some suggestions for how to deal with doctors who are mistreating us out of ignorance. In many cases, they are willing to learn and things get better.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to muzumuzu

Postby Rustsmith » Thu Jul 11, 2019 5:50 pm

Wednesday, July 11

Welcome to

muzumuzu, who has suffered with RLS for more than 30 years and it's getting worse with age! This is a wonderful forum for sharing insight, what's worked and hasn't, knowledge and experience.

Glad you joined us. Please feel free to post a note with any questions that you have or simply jump into any of our ongoing discussions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to georget

Postby Rustsmith » Fri Jul 12, 2019 7:25 pm

Friday, July 12

Welcome to

georget, who had RLS as a teen, but it passed. RLS returned all full body when georget tried tendon elongation exercises. Joining to discuss theory of RLS as it might relate to Inelastic Tendon Syndrome.

Please post a note telling us about Inelastic Tendon Syndrome and why you think that it may play a role in RLS, which is a neurological condition.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Chrismargo

Postby Rustsmith » Fri Jul 12, 2019 7:52 pm

Friday, July 12

Welcome to

Chrismargo, whose RLS has been ruining sleep, cuddling with spouse,and self inflected pain caused by sleeping while one leg beats on the other.

Please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions that you can discuss with your doctor for improving your sleep and thereby life in general.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Paulas

Postby Rustsmith » Fri Jul 12, 2019 8:00 pm

Friday, July 12

Welcome to

Paulas, who has had RLS for 20 years, it is now making her life miserable, with symptoms occurring in the day as well as night. She is now having to consider early retirement as it is effecting her working life.

Please post a note telling us what you are currently doing to manage your RLS. We may be able to offer some suggestions to consider that can help you avoid having to take early retirement.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to timosky

Postby Rustsmith » Fri Jul 12, 2019 8:44 pm

Friday, July 12

Welcome to

timosky, whose medication has resulted in his being denied a renewal of his private pilot medical.

The typical RLS meds can cause issues with licenses for pilots and commercial drivers. Please post a note telling us what you are taking and telling us about the severity of your RLS. We MIGHT be able to offer some suggestions if your RLS isn't too severe.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to restless43

Postby Rustsmith » Fri Jul 12, 2019 8:53 pm

Friday, July 12

Welcome to

restless43, who If she doesn't get a good night's sleep due to RLS, she feels miserable the following day...She is often feel confused, can't think clearly & wants to take a nap in the middle of the day...Not good if she does this, because then the RLS begins again that night... She has tried some methol creams to rub on my ankles & feet ...sometimes it helps, but not consistently.

Have you visited with your doctor about your RLS and do you know your serum ferritin number? For some people, increasing their iron levels helps - but not always.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Anothernight

Postby Rustsmith » Fri Jul 12, 2019 10:55 pm

Friday, July 12

Welcome to

Anothernight, who wants to learn about remedies for restless leg. She use to take Xanax when she went to sleep but she can't find a doctor to prescribe the meds anymore. The older she gets the worse this condition gets. HELP! She is a senior citizen and still works and it is difficult when you do not get a good night's sleep.

Please post a note telling us about what you are doing now that you cannot get Xanax. We should be able to offer you some suggestions to help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jonathan-sf

Postby Rustsmith » Sun Jul 14, 2019 1:20 pm

Sunday, July 14

Welcome to

Jonathan-sf, who is suffering from 2-3 hour insomnia bouts on an unpredictable basis due to RLS and he is hunting for treatment ideas and community.

Your hunt for an RLS community is over. If you will post a note telling us about what you are currently doing to manage your RLS, we can offer some ideas to address your insomnia.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to franw22

Postby Rustsmith » Sun Jul 14, 2019 3:13 pm

Sunday, July 14

Welcome to

franw22, who for years has been suffering with RLS basically self diagnosed, been to a few doctors who say take this pill and that's it. She tried one with serious side effects and stopped. She got scared and hasn't tried another since she didn't know what to do. She tried another doctor and he basically mocked her fear and said take a pill or SUFFER.

What horrible attitudes from two doctors. Please post a note telling us what you took and the side effects that you experienced. There are alternative treatments available, but we need to know a bit more before we can offer suggestions of things to talk with a doctor about (as well as how to find a good doctor).
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3947
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to vgersigny

Postby Rustsmith » Mon Jul 15, 2019 2:24 pm

Monday, July 15

Welcome to

vgersigny, whose RLS has just started amd ot is ruining sleep. It is making vgersigny very nervous and severely depressed and needing to talk with people who face the same situation.

We will be very happy to talk with you. Just post a note telling us with a bit about what you are doing for your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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