SEPTEMBER 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
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Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

SEPTEMBER 2019 - New Members

Postby Rustsmith » Tue Sep 03, 2019 4:31 pm

Tuesday, September 3

Welcome to

leo_sch, who is 51 years old living in Denmark. He has had RLS for many years without knowing that the diagnose existed. Partly because his father had the condition and his sister has it too. But we always thought this was something genetic (which is) and that we should live it. Now he knows better :)

Please post a note telling us if you are doing something to manage your RLS and asking any questions that you have. We would love to be able to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: SEPTEMBER 2019 - New Members

Postby Rustsmith » Tue Sep 03, 2019 8:48 pm

Tuesday, September 3

Welcome to

Winifred1, who has had chronic RLS for thirty years and want to share her experiences and learn from ours.

Please post a note telling us about your experiences and how you are currently managing your RLS to start the discussion.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Raindrop59

Postby Rustsmith » Wed Sep 04, 2019 10:48 pm

Wednesday, September 4

Welcome to

Raindrop, whose RLS has isolated her to a different bedroom than her husband. It has affected her work, she has anxiety, depression and has a hard time focusing and remembering. She also gets tremors through the day.

Those all sound like the results of sleep issues that we have all experienced. Please post a note telling us what you are doing to manage your RLS so that we will know where to start with suggestions to get better sleep and to be able to move back in with your husband.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jackiev

Postby Rustsmith » Sat Sep 07, 2019 7:06 pm

Saturday, September 7

Welcome to

Jackiev, who does not have anyone to compare symptoms with, no one else she knows has RLS so her family & friends just don’t understand how utterly difficult it is day by day to live with. Help with understanding & suggestions would be a positive impact on her everyday life trying to cope & understand better her horrible illness.

We all understand what you are going through. Is your RLS being treated? If so, what are you taking for it. We can offer suggestions to improve control and also suggestions on how to cope.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Cher

Postby Rustsmith » Sun Sep 08, 2019 1:59 pm

Sunday, September 8

Welcome to

Cher, who has had RLS for 40 years and is always looking for treatment ideas. Plus, she is interested in the discussion board.

If you will post a note telling us a bit about what you are doing to manage your RLS, we would be happy to start sharing some of the ideas that we have that might help improve your control.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ngt561

Postby Rustsmith » Mon Sep 09, 2019 6:42 pm

Monday, September 9

Welcome to

ngt561, who is a young 67 year old female and RLS has ruled her life and what she can do daily for 30+ years. Doctors, friends and family do not understand the exhaustion that comes from dealing with this monster that sneaks into your daily lifestyle, dictating what you can no longer do, like sitting down to simply hold your husbands hand at night to watch a show together. So he doesn't ask anymore. She needs some hope not for a cure but just a night of normal sleep.

Please post a note telling us what you are doing to manage your RLS so that we can have an idea of what we can suggest that could improve the chances of watching a show with your husband.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Adler1966

Postby Rustsmith » Wed Sep 11, 2019 4:09 pm

Wednesday, September 11

Welcome to

Adler1966, who has been experiencing RLS for about 6 months now and is attempting to manage it through natural remedies; seeing a NP; acupuncture, CBD oil, amino acids, Epsom salt baths and various sprays and creams. Very uncomfortable sensations, etc. to say the least.

The only natural remedies that you are going to find that help are iron supplements and hot baths. Take a look through our forums on Physical treatments and non-prescription medications to get an idea of the experience of others in these areas.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to obliv1

Postby Rustsmith » Wed Sep 11, 2019 8:53 pm

Wednesday, September 11

Welcome to

obliv1, who wants to share something that helped with mild RLS.

Please post a note to tell us what has helped you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dirtfan1

Postby Rustsmith » Thu Sep 12, 2019 2:54 am

Wednesday, September 11

Welcome to

dirtfan1, who hates this condition.....he is severely depressed due to lack of sleep, has no energy during the day and is taking medication that he has become immune to.

Please post a note telling us about the medication and your dose. We can possibly suggest some things to discuss with your doctor that can improve your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MonkNYC

Postby Rustsmith » Thu Sep 12, 2019 7:44 pm

Thursday, September 12

Welcome to

MonkNYC, who says that from what he has read, he doesn't seem to have too serious a case. Apparently he moves about a lot while asleep, but gabapentin has meant that his legs rarely go into spasms while he is awake, the way they used to. Right now he is very curious to learn why his legs are often so sore in the morning.

There is a good chance that the soreness is due to the continual movement while you are asleep, which is due to PLMS (Periodic Leg Movement Syndrome) a variety of RLS. Have you had your ferritin level checked and do you know the number? Increased iron might help if your iron levels are down.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to cdcff1212

Postby Rustsmith » Thu Sep 12, 2019 8:06 pm

Thursday, September 12

Welcome to

cdcff1212, who is looking to learn from others who also suffer. At times cdcff1212 has to try to stand and sleep. It's hard sometimes to work and especially hard to sleep.

Please post a note telling us what you are doing (other than standing to sleep) to manage your RLS so that we can know what options to suggest for you to discuss with your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MikeS

Postby Rustsmith » Fri Sep 13, 2019 1:09 pm

Friday, September 13

Welcome to

MikeS, who suffers from RLS and has questions, and wants to discuss this with others with similar conditions.

Please post a note with any questions that you have, and be sure to tell us what you are currently doing to manage your symptoms so that we will know how to frame our answers to your questions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to 24/7RLS

Postby Rustsmith » Sat Sep 14, 2019 11:58 pm

Saturday, September 14

Welcome to

24/6RLS, whose RLS makes it difficult to sit still at work and also to have an active social life. She wakes up with it and has it during the day every day of her life.

Please post a note telling us what you are doing to manage your RLS. We may be able to suggest some things that you can discuss with your doctor that will improve your situation and help you regain control of your life.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Slanecd

Postby Rustsmith » Sun Sep 15, 2019 12:00 am

Saturday, September 14

Welcome to

SlaneCD, who has had RLS for a year and it’s awful.

If you will post a note telling us what you are doing for your RLS, we can probably suggest some things that will help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4086
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to veralynj

Postby Rustsmith » Sun Sep 15, 2019 3:33 pm

Sunday, September 15

Welcome to

veralynj, whose mother and grandmother had RLS all their lives, currently her siblings and children have it as well. While she takes medication, her symptoms have worsened considerably. She is doing any research she can to help with this issue, since hasn't had a day without symptoms in several years.

Take a look through our section on augmentation to see if that helps. And please post a note telling us about your medication (including dose) so that maybe we can offer some suggestions to regain control of your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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