Hi De De and welcome to this group. You certainly got some good advise from these members but wanted to welcome you. I am sorry that you have rls but you know have a place to come to and talk as we will be more than happy to listen.
I know that one of the members gave you the link for the Mayo Clinic Algorithm. Please read it and if able to, print it out and give it to your dr. It is so important to educate yourself as much as possible before seeing your dr. Also hope that your dr has knowledge of rls and is willing to work and above all listen to you.
De De we also have a Monday night chat which starts at 7pm mountain time and wherever you live it will be either 8 or 9pm your time in the states. We would love to have you join us.
Please keep us posted on how you are doing as we really do care.
newbie
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mackjergens
- Posts: 406
- Joined: Sat Jul 21, 2007 5:10 am
Sorry about the Dee Dee in above post.. So welcome De De.
I copied/pasted the info below from www.rlshelp.org. its gives you a description of RLS and PLMD. PLMD is the jerking and involuntary moving of legs.
RLS is actually the strange feelings ( I call it creepy crawly feelings other call it tingly and many other things. Hope this will be helpful to you.
copied/pasted from www.rlshelp.org
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What are the Restless Legs Syndrome (RLS) and PLMD (Periodic Limb Movement Disorder) ?
This is a chronic condition which occurs in 5-12% of the population. RLS has probably a disease for thousands of years, but it was only first described in the English literature in 1672 by the physician, Sir Thomas Willis. Oppenheim, in 1923, described the disease as a neurological disorder. Dr. Ekbom, a Swedish neurologist, described the condition more fully in1944. The next year, in 1945, he named the disease, Restless Legs Syndrome. Dr. Symonds, in 1953, used the term, Nocturnal Myoclonus, to describe the leg jerks that occur at night.
People with this problem complain of discomfort in their legs (sometimes even arms) that is difficult to describe (often described as "ants crawling up the insides of my legs") and control. The discomfort makes them want to move their legs ( to get up and walk or often even resorting to vigorous exercise) to gain relief. Their legs feel "restless" and this may be associated with other unpleasant sensations including "pins and needles", muscle twitching, or aching. These symptoms generally occur when the patient is sitting quietly or lying in bed. For a good description of what it is like to be a patient with RLS and a good discussion of the symptoms read the letter from an actual patient with RLS. It can be a significant cause of sleep disturbance (often causing severe insomnia) in most people afflicted with the disorder.
RLS occurs most commonly in middle age and gets worse as one gets older. However, a large portion of patients (up to 43%) may have onset of the disease before age 20 (and often as a very young child). A family history is found in over 60% of RLS cases and new evidence point out possible linkage to chromosomes 5 and 10.
Eighty percent or more of these people may have an associated disorder called PLMD - Periodic Leg Movement Disorder (also known by the older name as Nocturnal Myoclonus). This condition causes leg jerks from uncontrolled contractions of the hip, thigh and calf muscles of one or both legs. During the leg jerks, the hip, knee and ankle move in flexion and the toes extend. These leg jerks can be very small (barely perceptible twitches) to gross large kicks that may even propel the patient's spouse out of bed. The leg jerks may last 1/2 - 5 seconds and recur every 20-40 seconds.
This condition may also cause significant sleep disturbances including insomnia or excessive daytime sleepiness (by causing micro-arousals not noticed by the patient all night). However, some sleep specialists do not believe that PLMD really causes enough of a sleep disorder to result in daytime sleepiness or should be treated. There is little research on this topic which has resulted in this controversy about the importance of PLMD.
What causes RLS? At this time, we do not know. We are not even sure from where in the body that the RLS impulses are generated. One study (Annals of Neurology, May 1997, 41:5, pages 639-45) found that the cerebellum and thalamus were activated during RLS symptoms. Other studies have found conflicting results. Clearly, more research is definitely needed to more fully understand this disorder
I copied/pasted the info below from www.rlshelp.org. its gives you a description of RLS and PLMD. PLMD is the jerking and involuntary moving of legs.
RLS is actually the strange feelings ( I call it creepy crawly feelings other call it tingly and many other things. Hope this will be helpful to you.
copied/pasted from www.rlshelp.org
--------------------------------------------------------------------------
What are the Restless Legs Syndrome (RLS) and PLMD (Periodic Limb Movement Disorder) ?
This is a chronic condition which occurs in 5-12% of the population. RLS has probably a disease for thousands of years, but it was only first described in the English literature in 1672 by the physician, Sir Thomas Willis. Oppenheim, in 1923, described the disease as a neurological disorder. Dr. Ekbom, a Swedish neurologist, described the condition more fully in1944. The next year, in 1945, he named the disease, Restless Legs Syndrome. Dr. Symonds, in 1953, used the term, Nocturnal Myoclonus, to describe the leg jerks that occur at night.
People with this problem complain of discomfort in their legs (sometimes even arms) that is difficult to describe (often described as "ants crawling up the insides of my legs") and control. The discomfort makes them want to move their legs ( to get up and walk or often even resorting to vigorous exercise) to gain relief. Their legs feel "restless" and this may be associated with other unpleasant sensations including "pins and needles", muscle twitching, or aching. These symptoms generally occur when the patient is sitting quietly or lying in bed. For a good description of what it is like to be a patient with RLS and a good discussion of the symptoms read the letter from an actual patient with RLS. It can be a significant cause of sleep disturbance (often causing severe insomnia) in most people afflicted with the disorder.
RLS occurs most commonly in middle age and gets worse as one gets older. However, a large portion of patients (up to 43%) may have onset of the disease before age 20 (and often as a very young child). A family history is found in over 60% of RLS cases and new evidence point out possible linkage to chromosomes 5 and 10.
Eighty percent or more of these people may have an associated disorder called PLMD - Periodic Leg Movement Disorder (also known by the older name as Nocturnal Myoclonus). This condition causes leg jerks from uncontrolled contractions of the hip, thigh and calf muscles of one or both legs. During the leg jerks, the hip, knee and ankle move in flexion and the toes extend. These leg jerks can be very small (barely perceptible twitches) to gross large kicks that may even propel the patient's spouse out of bed. The leg jerks may last 1/2 - 5 seconds and recur every 20-40 seconds.
This condition may also cause significant sleep disturbances including insomnia or excessive daytime sleepiness (by causing micro-arousals not noticed by the patient all night). However, some sleep specialists do not believe that PLMD really causes enough of a sleep disorder to result in daytime sleepiness or should be treated. There is little research on this topic which has resulted in this controversy about the importance of PLMD.
What causes RLS? At this time, we do not know. We are not even sure from where in the body that the RLS impulses are generated. One study (Annals of Neurology, May 1997, 41:5, pages 639-45) found that the cerebellum and thalamus were activated during RLS symptoms. Other studies have found conflicting results. Clearly, more research is definitely needed to more fully understand this disorder
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Polar Bear
- Moderator
- Posts: 8862
- Joined: Tue Dec 26, 2006 4:34 pm
- Location: United Kingdom
Yes, I get the burning also, tho usually the burning is only in my right leg.
Betty
Betty
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation