SEPTEMBER 2017 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
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Posts: 7137
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

SEPTEMBER 2017 - NEW MEMBERS

Postby Polar Bear » Fri Sep 01, 2017 8:55 am

1st September 2017

Today we welcome:

J.P. - whose body is restless, particularly the legs. It prevents J.R. from sleeping. seems more active when J.R. is very tired.

We are sorry that you are suffering. When you feel ready please make a post and tell us a little about your RLS Journey, what medications you are taking.
Much good information can be found on the Just Joined forum - A Good Place to Start: Managing your RLS.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Kimrae

Postby Rustsmith » Sat Sep 02, 2017 2:14 pm

Saturday, September 2

Welcome to

Kimrae, whose work has just started suffering because she is just too tired to do a full day. She is depressed and feels like she is losing her mind. She told her doctor and she just ignored her and made her feel like she is crazy.

Please post a note telling us if you are taking anything now to manage your RLS. And please consider finding a new doctor who understands RLS or at least is willing to work with you to learn. It is very unfortunate that doctor's make patients feel like it is a mental problem with the patient when it is really the doctor's ignorance of how to treat a condition like RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Bomholtb

Postby Rustsmith » Tue Sep 05, 2017 8:17 pm

Tuesday, September 5

Welcome to

Bomholtb, whose sleepless nights are now turning into stressful days.

For many of us, the insomnia is harder on us than the need to move. Please post a note telling us a bit about yourself and what you are currently doing to manage your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to lucyarlene

Postby Rustsmith » Tue Sep 05, 2017 9:00 pm

Tuesday, September 5

Welcome to

lucyarlene, who has had RLS symptoms for her entire life and is now 64, RLS was not heard of. Her RLS turned bad at 50 and after 3 sleep studies she was finally diagnosed and treated with a dopamine agonist, until the time she augmented. Quite by accident she realized that Tylenol #3 made her legs settle down sometimes and is now glad to have found a doctor that listens so that she can still get it. But her RLS symptoms still give her nights where she cannot sleep.

After you have a chance to look around, please post a note telling us a bit more about your current treatment and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Ladyslider

Postby Rustsmith » Wed Sep 06, 2017 3:50 pm

Wednesday, September 6

Welcome to

Ladyslider, who is experiencing augmentation from Requip. She and her neurologist are learning together how to get off of Requip and she has found this website has been a godsend.

Please post a note telling us about your situation, your current dose of Requip, what your plans are for getting off of Requip and asking any questions that you have. We would love to be able to help out since all of us have been where you are today.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jduarte

Postby Rustsmith » Wed Sep 06, 2017 9:56 pm

Wednesday, September 6

Welcome to

jduarte, who need advice on how to manage rls symptoms. Wants to see what other have learned and how to cope.

You have come to the right place to get ideas for how to manage RLS. Please post a note telling us about your symptoms and what you are currently doing to manage your RLS so that we can provide some specific suggestions for you to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7137
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to MrsRls

Postby Polar Bear » Thu Sep 07, 2017 12:41 pm

Thursday 7th September 2017

Welcome today to:

MrsRls - who finds that it is worse during pregnancy. MrsRls feels she may have discovered some causes and reasons.

Please look around the site, there is a Section called Special Populations which includes pregnancy. When ready please post and tell us how you have been coping and your history of RLS. RLS is pregnancy is very difficult and we do try to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to judynana

Postby Rustsmith » Fri Sep 08, 2017 12:51 pm

Friday, September 8

Welcome to

judynana, who has had RLS for 53 years and over the years it has become so much worse that she can no longer sit and read, watch tv, type and can't even think straight. She had a knee replacement and after the surgery, came out of the anesthetic and was unable to lie down and keep her leg raised with ice on it.

After you have a chance to look around, please post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Carolann66

Postby Rustsmith » Fri Sep 08, 2017 9:54 pm

Friday, September 8

Welcome to

Carolann66, who need support from other sufferers.

Please post a note telling us about your RLS, what you are doing to manage it and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Dennyd1950

Postby Rustsmith » Sat Sep 09, 2017 2:52 pm

Saturday, September 9

Welcome to

Dennyd1950, who suffered for many years with RLS but has found a permanent solution.

Please post a note telling us about your RLS and about your solution.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Dawn2128

Postby Rustsmith » Sat Sep 09, 2017 4:11 pm

Saturday, September 9

Welcome to

Dawn2128, whose urge to move her legs has her awake most all night every night. Her feet burn all day long and are numb, hard and crunchy feeling like ten million ants are biting continuously and her calf muscles are extremely tight and the cramps are debilitating.

Please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to aDecadeofPain

Postby Rustsmith » Sun Sep 10, 2017 7:29 pm

Sunday, September 10

Welcome to

aDecadeofPain, who has been experiencing extreme chronic restless leg issues for over 20 years.

After you get a chance to look around, please post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to tangojoan

Postby Rustsmith » Mon Sep 11, 2017 4:03 pm

Monday, September 11

Welcome to

tangojoan, who is not able to sleep and is looking for the right med again. Her legs do not feel as strong as they used to. She is a ballroom dancer and her legs get tired easier than they used to.

Please post a note telling us what meds you have tried (and dose), so that we can offer some suggestions for you to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to skeezecks02

Postby Rustsmith » Tue Sep 12, 2017 2:38 pm

Tuesday, September 12

Welcome to

skeezecks02, who has had RLS for skeezzecks02's entire life. skeezeck01used to take quinine sulfate decades ago and that has worked the best, has caused bruised legs trying to pound out the spasm and wonders if others do the same.

Pounding on legs is a common practice. Please post a note telling us what you are currently doing to manage your RLS (other than pounding on your legs) and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3127
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Laura W

Postby Rustsmith » Wed Sep 13, 2017 2:30 am

Tuesday, September 12

Welcome to

Laura W, who has gleaned so much helpful information about WED and may have some comments or questions about her experiences with WED.

We look forward to seeing your post with your comments and questions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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