SEPTEMBER 2017 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Corinne

Postby Rustsmith » Wed Sep 13, 2017 2:32 am

Tuesday, September 12

Welcome to

Corinne, who has had RLS since a very young and as she is getting older it seems to be worse. It's painful, she can't sleep and is on 2 medications

Unfortunately, most of us experience a worsening of symptoms with age. Please post a note telling us about you meds and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Ari

Postby Rustsmith » Wed Sep 13, 2017 6:01 pm

Wednesday, September 13

Welcome to

Ari, whose RLS has been the worst affliction of his life! For 23 years his legs have felt like ants are crawling inside them. Luckily, he now has a nurse practitioner who also has RLS and they collaborate on it well.

You cannot understand how lucky you are to have found that nurse practitioner. Please post a note telling us what you are doing to control your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to rp77

Postby Rustsmith » Thu Sep 14, 2017 12:36 pm

Thursday, September 14

Welcome to

rp77, who has suffered from extreme sleep deprivation and struggles to find a medication that works and has acceptable side effects.

Please post a note telling us a bit about your RLS and the medications that you have tried.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Coco-Cola Man

Postby Rustsmith » Thu Sep 14, 2017 4:19 pm

Thursday, September 14

Welcome to

Coca-Cola Man, who has lived with RLS many years and has been on several different meds.

We look forward to hearing from you about you different meds and you experiences with managing your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to randolfrls

Postby Rustsmith » Wed Sep 20, 2017 11:24 pm

Wednesday, September 20

Welcome to

randolfrls, who has had RLS for about 30 years, but in the last 5, it has become much worse and is negatively impacting life in every way - work, personal, health, diet, etc. He has been trying various drugs: mirapex, gabapentin, tramadol, lyrica... but always augments, builds up a tolerance and symptoms get worse. Recently, his doctor put started with Lyrica, but it's not working yet and he has to add Tramadol. He feels totally drugged out and useless even though he is sleeping about 6 hours.

As you look through our discussions, you will see that many of us use a combination of different meds, all in low doses, to control our RLS and avoid the unpleasant side effects. Please post a note telling us about your current symptoms and the doses of Lyrica and Tramadol that you are using. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 4956
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to neoleopard

Postby badnights » Thu Sep 21, 2017 6:01 am

Welcome to neoleopard, who lived with RLS/WED from age 14 to mid-50's when a near-cure took place. Please do share your journey here! Start a new Topic in this or another forum to tell your story, reply to posts in other Topics, and feel welcome.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Tonkaman

Postby Rustsmith » Mon Sep 25, 2017 12:22 pm

Monday, September 25

Welcome to

Tonkaman, who has been suffering with R:S and mental health for longer than he can remember. He is 48 now and just started with a mental health team. His RLS lead to self harm and a whole world of issues that come with sleep deprivation. He was feeling suicidal and reading this site to try and distract himself. It worked as he is writing this the following day :)

I am thrilled that we were able to help. Unfortunately, suicide can be a side effect of RLS. Please post a note telling us more about your situation and what you are doing to manage it so that we can make some specific suggestions for you and your team to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MCSHEA

Postby Rustsmith » Mon Sep 25, 2017 12:24 pm

Monday, September 25

Welcome to

MCSHEA, whose RLS causes issues with sleep, social interactions and travel.

These are all common problems for those of us with RLS. Please post a note telling us about what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to 3805houma

Postby Rustsmith » Mon Sep 25, 2017 4:50 pm

Monday, September 25

Welcome to

3805houma, who has difficulty getting enough rest due to waking up in pain and the only was to relieve it is to walk around until the pain goes away.

That is something that we can all relate to. Please post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jcheung

Postby Rustsmith » Tue Sep 26, 2017 11:16 pm

Tuesday, September 25

Welcome to

Jcheung, who was just diagnosed with RLS.

Please post a note telling us a bit about your RLS, what you have started doing to manage it and asking any questions that you have. We would love to be able to help you out at this point in your journey.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to juju777

Postby Rustsmith » Fri Sep 29, 2017 1:16 pm

Friday, September 29

Welcome to

juju777, who has had RLS for 10-12 years. It is making evenings miserable and has now begun to effect days also. juju777 is beginning to notice it in the arms and hands lately. juju777 is hoping to try new "timed release" med., but having trouble with insurance approving it.

Take a look around, especially at the forum on Augmentation since that could be what is causing your symptoms to move to both days and spread to your arms and hands. And then please post a note telling us about your meds so that we can provide some suggestions that are specific to your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to bbrjtr

Postby Rustsmith » Sat Sep 30, 2017 7:07 pm

Saturday, September 30

Welcome to

bbrjtr, who is currently trying to get off reqiup after taking over 30 years and it is real struggle so far.

Please take a look at the info in the Augmentation forum to get an idea of issues involving getting off of any dopamine agonist. You could also take a look at the info in links of the signature line for badnights. And please post a note telling us about how you are quitting and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3443
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to LisaRene

Postby Rustsmith » Sat Sep 30, 2017 11:09 pm

Saturday, September 30

Welcome to

LisaRene, whose siblings and mother have RLS and she thinks she may be getting it too. She has low ferritin levels. She does not sleep over 6 hours, and has occasional tingling in her legs.

Sounds like you are already familiar with the issues associated with RLS. Please feel free to post a note asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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