OCTOBER 2017 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
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Posts: 7076
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

OCTOBER 2017 - NEW MEMBERS

Postby Polar Bear » Wed Oct 04, 2017 11:07 am

4 October 2017

Welcome today to:

Cutieswan - who wants to be able to sightsee the country by automobile and discover all the beautiful sights instead of pacing or half heartily doing household chores having to move because every evening RLS sets in and feeling exhausted yet having to stand or kneel.

Go the Just Joined forum - A Good Place to Start Managing RLS - you will find lots of good information. We are all RLS sufferers and fully understand how frustrated you feel. If you make a post and tell us how you have been managing your symptoms we will try to help you. There is always another option.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

badnights
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Posts: 4805
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to Rll95de

Postby badnights » Thu Oct 05, 2017 1:58 am

Welcome today to Rll95de, who has had RLS/WED for 24 yrs and has used methadone to control it for the last 8. Now Blue Cross won't pay for the methadone.

Rll95de, you're in a tough spot, but you'll find support and assistance from the members here. Please look around and post your questions about alternative medications. One Forum that may be useful is the Prescription Medications forum but there are useful discussions in all the forums.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to berk1006

Postby Rustsmith » Thu Oct 05, 2017 2:50 pm

Thursday, October 5

Welcome to

berk1006, who experiences occasional discomfort at bedtime and finds it very annoying when it happens.

After you have a chance to look around, please post a note telling us more about your RLS and if you are doing anything to manage it.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Bronwen

Postby Rustsmith » Thu Oct 05, 2017 4:48 pm

Thursday, October 5

Welcome to

Bronwen, who is 73 years old, has had RLS since being a teenager, and it has become steadily worse over the decades. Bronwen has been medicated with pramipexole for some years, but augmentation and other side effects are making it impossible to continue. There are no super-specialists where Bronwen lives, so Bronwen is hoping this site can provide needed information.

Many of us have been where you are today, so we can definitely provide you with a list of options for you and your doctor to consider. Please post a note telling us a bit more about your RLS and your doctor(s) so that we can provide the specifics that you are looking for.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Carollochmann

Postby Rustsmith » Fri Oct 06, 2017 12:29 am

Thursday, October 5

Welcome to

Carollochmann, who has had RLS for over 40 years and it has been a nightmare. She has symptoms about 18 hrs a day and have tried most everything. She has a very supportive family and they have kept her from losing her mind at times.

After you have a chance to look around, please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to mbward3740

Postby Rustsmith » Fri Oct 06, 2017 2:38 pm

Friday, October 6

Welcome to

mbward3740, who has had RLS since being very young. The symptoms went away for several years and have gradually returned to moderate/severe. Augmentation has started and mbward3740 is at a loss how to proceed for relief.

There are ways to get past augmentation, but it will require the help of your doctor. Please post a note telling us what you are currently taking (and the dose) and whether your doctor has any experience with treating RLS patients with augmentation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Roger H

Postby Rustsmith » Fri Oct 06, 2017 2:42 pm

Friday, October 6

Welcome to

Roger H, whose RLS is creating an enormous amount of anxiety from experimenting with different medications trying to control his RLS. He is afraid of augmentation and not being able to sleep at night. He is currently retired taking Lyrica but is switching to Gabapentin due to cost. But he is very concerned about the transition and if it will cause any side effects. He is also taking Mirapex.

Switching from Lyrica to gabapentin should be relatively easy, if you can get enough gabapentin to match the Lyrica dose. But augmentation is not an issue with Lyrica or gabapentin, it is the Mirapex that is the issue there. Please post a note telling us more about your RLS and asking any other questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to s7o6p5h4i3e2

Postby Rustsmith » Fri Oct 06, 2017 2:45 pm

Friday, October 6

Welcome to

s7o6p5h4i3e2, whose RLS is worsening despite Rx and measured exercise. s7o6p5h4i3e2's RLS is markedly worse in the last year.

Please post a note telling us about what you are currently doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to corfu

Postby Rustsmith » Fri Oct 06, 2017 7:33 pm

Friday, October 6

Welcome to

corfu, who has had RLS for many years, is currently on the max dose for pills, and finds afternoon/evening period challenging.

After you get a chance to look around, please post a note telling us about what pills you are taking and how they are currently handling your RLS. Also please feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7076
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Lmontgom1951

Postby Polar Bear » Mon Oct 09, 2017 9:33 am

Monday 9 October

Welcome to:

Lmotgom1951 - whose life is a living hell much of the time. And it is getting worse and meds are doing less. He would give anything to be “normal “ .

We are glad you have found us, we are all sufferers and want to help. Please tell us about your RLS and what you are doing to find relief, ask any questions, we want to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Shive

Postby Rustsmith » Mon Oct 09, 2017 4:00 pm

Monday, October 9

Welcome to

Shive, whose RLS has severely disrupted life since approx 15yrs old is now 66 yrs. Shive's prescriptions are not that effective.

Please post a note telling us what you are currently using to manage your RLS and how familiar your doctor is with treating RLS. You might also want to look through the forum on Augmentation if you have been taking a dopamine agonist med for an extended period.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to think2100

Postby Rustsmith » Mon Oct 09, 2017 5:34 pm

Monday, October 9

Welcome to

think2100, who has had RLS for over 20 years. In the past, dopamine agonists have kept the symptoms at bay, but augmentation has begun, so he is trying to transition to a successful alternative.

Take a look through our forum on Augmentation and then please post a note telling us how your transition is going. Feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Slimchunky

Postby Rustsmith » Tue Oct 10, 2017 12:59 am

Monday, October 9

Welcome to

Slimchunky, who has been suffering from RLS for close to 15 yrs and have always been prescribed Clonazepam. However, due to a myriad of other health issues Slimchunky's doctor is no longer allowed by law to prescribe it.

Please post a note telling us if your doctor has proposed anything different and how you are getting off of the Clonazepam. That will allow us to make some suggestions for you to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Suse

Postby Rustsmith » Tue Oct 10, 2017 7:21 pm

Tuesday, October 10

Welcome to

Suse, who was diagnosed with RLS a couple of years ago and recently had augmentation confirmed. She wakes from about 2am or 4 am onwards and her symptoms keep her awake from then on. She relies on her husband for driving and keeping the household running. She has hobbies such as drawing and painting to keep her mind absorbed.

Take a look through our section on Augmentation. And please post a note telling us what you and your doctor intend to do to address your treatment now that you are augmented. Most of us have been there, so we can offer some suggestions even if it comes to needing to find a new doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3008
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Heather

Postby Rustsmith » Tue Oct 10, 2017 8:27 pm

Tuesday, October 10

Welcome to

Heather, who has just started RLS treatment after having it for over 30 years. She didn't know there was any treatment! People don't understand how awful RLS is. She hopes to be able to seriously discuss RLS issues here.

Please take a look around and then post a note telling us about your new treatment and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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