NOVEMBER 2017 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to tdatman99

Postby Rustsmith » Fri Nov 10, 2017 3:15 am

Thursday, November 9

Welcome to

tdatman99, who has been suffering from RLS symptoms over the last 2 years and it appears to be getting worse over time.

RLS often seems to get worse with age. Please post a note telling us about your symptoms and what you have been doing to manage them. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Hhemm

Postby Rustsmith » Fri Nov 10, 2017 11:23 pm

Friday, November 10

Welcome to

Hhemm, who has suffered with RLS for 20 years now. She has tried just about every treatment out there and then some with no relief. The doctors don't know what to do with her, so she is desperate for some relief.

Please post a note telling us a bit about the types of treatments that you have tried. Our experience is that there is almost always something else to try, the trick is sometimes finding the right doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to slsherman

Postby Rustsmith » Sat Nov 11, 2017 2:30 pm

Saturday, November 11

Welcome to

slsherman, who think she may have RLS. Her doctors have not diagnosed it yet, but she plans to mention it at her next visit. She wants to see what others are experiencing.

Take a look around to get an idea, and then post a note telling us about your symptoms so that we can point you toward the tools used for diagnosing RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to PaisleyMom

Postby Rustsmith » Sun Nov 12, 2017 1:03 am

Saturday, November 11

Welcome to

PaisleyMom, who now realizes that she has suffered with RLS for years. She thought it was just her and later, doctors thought it was ADD. She is currently getting relief with Requip and hopes to one day manage it naturally or with supplements (non-prescription drugs).

Take a look through our forums on Physical Treatments and Non-prescription medications to get an idea of what works and what doesn't. And feel free to post a note telling us about your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Tapegg

Postby Rustsmith » Sun Nov 12, 2017 3:33 am

Saturday, November 11

Welcome to

Tapegg, whose RLS acts up every night without fail to the point of driving Tapegg insane and is therefore looking for any input people have.

Please post a note telling us about your symptoms and what you are currently doing to manage so that we can offer you some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to sachemfoo

Postby Rustsmith » Mon Nov 13, 2017 11:15 pm

Monday, November 13

Welcome to

sachemfoo, who after spending the past 20+ years (I'm in my mid-40s) chronically tired, struggling to concentrate and to remember things, finally had a sleep study and was found to have PLMD (~120 movements/hour; 42 arousals/hour). It was initially exciting to have a diagnosis of PLMD only, not RLS.)

But now that sachemfoo has learned about the recommended treatment with gabapentin, the side effects are scary. So much so that sachemfoo has started experimenting with CBD in hopes that it might resolve my symptoms without having to worry about the gabapentin side effects.

So after lurking quite a bit, sachemfoo is finally joining, hoping to find others with insight into effective alternative treatment for PLMD.

Please post a note telling us both about your experience so far with gabapentin and the CBD. Also let us know if you live in a state where THC is legally available since that helps many of us with sleep more than CBD.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to marshals

Postby Rustsmith » Tue Nov 14, 2017 4:49 pm

Tuesday, November 14

Welcome to

marshals, who is a researcher for RLS and has a study to share that might benefit many people in this support group.

Please post a note telling us about your study, we are always receptive to something that helps.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MikeD

Postby Rustsmith » Tue Nov 14, 2017 9:24 pm

Tuesday, November 14

Welcome to

MikeD, who has had RLS for several years. He primarily uses Rx and supplement therapies but is trying to learn and do better with diet and exercise. He would say he is at the moderate level (on Rx's) to severe level (without meds).

Please feel free to post a note telling us about your prescriptions and also to join into any of our ongoing discussions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jackmac

Postby Rustsmith » Tue Nov 14, 2017 9:34 pm

Tuesday, November 14

Welcome to

jackmac, who has RLS and would like to learn from others and share his findings.

Please feel free to post a note telling us about your RLS, what you do to manage it and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ynonneyohe

Postby Rustsmith » Wed Nov 15, 2017 3:29 am

Tuesday, November 14

Welcome to

yvonneyohe, who lived & functioned for 32 years with this condition. Nighttime was sheer torture and in the daytime she was a zombie.

Please post a note telling us what you are doing to manage your RLS and asking any questions you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to EFOUR

Postby Rustsmith » Wed Nov 15, 2017 4:33 pm

Wednesday, November 15

Welcome to

EFOUR, who has suffered with RLS (including limb movements) for over 40 years. It has a profound affect on quality of life (sleep, travel, life without medications is unbearable). EFOUR would like to keep abreast of studies and to participate in those studies when available.

For info on research, take a look at the Research topic in the General Interest forum. You should also take a look at the clinical trials info on the Foundation's website at www.rls.org
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Koontzd

Postby Rustsmith » Wed Nov 15, 2017 8:29 pm

Wednesday, November 15

Welcome to

Koontzd, who has been suffering with RLS for the past year. It is getting worse to the point of keeping her partner awake. She is looking for advice, support, information, etc.

Please post a note telling us about your symptoms, what you are currently doing to manage and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Chudleigh

Postby Rustsmith » Thu Nov 16, 2017 2:04 pm

Thursday, November 16

Welcome to

Chudleigh, whose RLS has negatively impacted her ability to make/keep commitments in volunteering and social invitations. She never knows whether she will get adequate sleep to do those things or be too exhausted to venture out of the house.

Please take a look around and then post a note telling us about your RLS, what you are doing to manage it and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3278
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to DrWill2010

Postby Rustsmith » Thu Nov 16, 2017 5:29 pm

Thursday, November 16

Welcome to

DrWill2010, who has RLS that has progressed to daytime symptoms in the trunk as well as legs. He is an emergency medicine physician and wishes to continue to support efforts against this terrible disease.

Please post a note telling us what you are doing to manage your RLS and letting us know how we can help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7195
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to G-Lo

Postby Polar Bear » Fri Nov 17, 2017 1:27 pm

Friday 17 November 2017

Today we welcome

G-Lo who has been suffering from RLS for approximately 2 years now. Gets little sleep and stays groggy and tired constantly. has tried quite a few meds with no relief and doctors seem to know very little about how to help and even less interested in attempting to do so.

Many of us are very aware of how little doctors appear to know about RLS and find ourselves educating them.
Please post and tell us how you have been cope, the Just Joined page is a good place, and full of good information. We are here to try and help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation


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