DECEMBER 2017 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to FrankR

Postby Rustsmith » Sat Dec 16, 2017 5:46 pm

Saturday, December 16

Welcome to

FrankR, whose RLS makes it difficult to sleep. Often, leg and testicular pain occurs at the same time. He gets out of bed and walk to to obtain relief and has a 15 year history.

Please take a look around and then feel free to post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Cranberry

Postby Rustsmith » Sat Dec 16, 2017 11:32 pm

Saturday, December 16

Welcome to

Cranberry, who has had primary RLS since childhood.

Please post a note telling us a bit more about your RLS symptoms, what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Brian5475E

Postby Rustsmith » Sun Dec 17, 2017 5:52 pm

Sunday, December 17

Welcome to

Brian5475E, who suffers from RLS and would talk with others who also suffer and ask questions.

We are here for just those reasons. Please post a note telling us about your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to bookdoug

Postby Rustsmith » Mon Dec 18, 2017 2:05 pm

Monday, December 18

Welcome to

bookdoug, who can't sleep more then 5 hrs night, can't sit more then 30 minutes, and takes ropinirole 2mgx6 day, @6am, 11am, 3pm, 5pm, 8pm

That is a lot of rompinrole, so please take a look at our forum on Augmentation and also post a note telling us about your symptoms so that we can offer some specific suggestions for your to discuss with your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to bunny6810

Postby Rustsmith » Mon Dec 18, 2017 4:39 pm

Monday, December 18

Welcome to

bunny6810, who has had RLS for 4 years. She is now experiencing increasing leg pain which is affecting her sleep and wants to find more natural solutions than all the drugs her doctor prescribes.

For more natural solutions, take a look through the non-prescription medication forum and the physical treatments sections. And then post a note telling us what your doctor has been prescribing so that we can offer you some specific suggestions, such as iron supplements.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Kjackson60

Postby Rustsmith » Mon Dec 18, 2017 7:41 pm

Monday, December 18

Welcome to

Kjackson60, whose wife suffers from RLS. They are both seeking answers.

It can be difficult to get information about RLS from doctors. Please post a note with any questions that you have and we will do our best to answer them.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jimgpe

Postby Rustsmith » Mon Dec 18, 2017 8:38 pm

Monday, December 18

Welcome to

Jimgpe, who RLS was torture, especially for the most recent 5 years. He thought he would have to just live with the condition, but found a solution that has eliminated 98% of his symptoms.

Please post a note telling us about your RLS and about your solution.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to paulyea

Postby Rustsmith » Wed Dec 20, 2017 2:07 am

Tuesday, December 19

Welcome to

paulyea, whose wife has restless legs and they are looking for solutions.

Take a look around and then please post a note telling us about her situation and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to JTUREL

Postby Rustsmith » Thu Dec 21, 2017 3:38 pm

Wednesday, December 20

Welcome to

JTUREL, who says medication for this condition has been a mistake.

Please tell us a bit more. Dopamine agonist medications can lead to augmentation and others have some significant side effects. However, it is almost always possible to find a treatment that helps and does not cause too many unwanted problems.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7221
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to - darant3

Postby Polar Bear » Fri Dec 22, 2017 12:31 am

Thursday 22 December 2017

Welcome today to:

darant3 - whose sister has Parkinson's Disease and along with it, the symptoms of RLS...

RLS is quite a common occurrence for sufferers of Parkinson's disease. Has your sister been diagnosed as having RLS. Parkinson's disease medication is also used for the treatment of RLS. Please tell us how your sister has been coping and has she been able to find any relief.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Chello

Postby Rustsmith » Sat Dec 23, 2017 10:07 pm

Saturday, December 23

Welcome to

Chello, who has a genetic delayed sleep phase disorder which makes it very hard to fall asleep. A few years ago, very sudden adult age onset of RLS made things even worse for about a year. Have been able to eliminate RLS with Methylcobalamin sublingual form of B-12along with a slightly higher level of iron supplementation. With the regular cyanacobalimin form of B-12, there was no improvement in RLS symptoms, but somehow, the Methyl form caused a complete remission of all RLS symptoms, even before the increased iron. Chello's mother has been a long time sufferer with RLS but has not found relief with these supplements.

It appears that there are a number of dietary issues that can influence RLS and out members indicate that B-12 deficiency can be one of them. So glad that this has helped you. So, after you have a chance to look around, please post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Twitchylegs

Postby Rustsmith » Sun Dec 24, 2017 2:03 am

Saturday, December 23

Welcome to

Twitchylegs, who has had had RLS for over 30 years. It can control Twitchyleg's life at times and the side effects of RLS meds can also affect quality of life.

Please post a note telling us a bit about your symptoms and what you are currently doing to manage your RLS. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to acquistapace

Postby Rustsmith » Sun Dec 24, 2017 2:04 pm

Sunday, December 24

Welcome to

acquistapace, who is in a crazy cycle, RLS keeps her from sleeping, not sleeping soundly keeps her up to notice her RLS. She wakes up too soon in the morning and her legs are so sore. She wants to learn what to do to live with her RLS better!

Please post a note telling us what you are currently doing so that we can provide you with some suggestions to discuss with your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dbbutterworth

Postby Rustsmith » Wed Dec 27, 2017 2:25 am

Tuesday, December 26

Welcome to

dbbutterworth, who has had RLS for a lifetime and It seems to have taken over dbbutterworth's life. dbbutterworth can't sleep, can't rest and may be up for days at a time. dbbutterworth can't drive without being in sheer agony and has been hurt after falling down from a standing position.

Please post a note telling us what you are doing to manage your RLS. There are always new things to try. Your life can be better than what you have described.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3344
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to yvonneh57

Postby Rustsmith » Wed Dec 27, 2017 5:39 pm

Wednesday, December 27

Welcome to

yvonneh57, who would like to find ways to cope!

Please post a note telling us what you are currently doing to manage your RLS so that we can offer some suggestions to improve your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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