Restless Legs Syndrome (RLS) Discussion Board

Saturday, December 2

Welcome to

Ritadale, who can’t sleep and has spasms all day.

Please post a note telling us a bit more about your RLS symptoms, what you are doing to manage them and asking any questions that you have.

Monday, December 4

Welcome to

johnhampel, who would like to know how others manage RLS.

Take a look around to see the variety of approaches that we all use. And please post a note telling us what you do and asking any questions that you have.

Tuesday, December 5

Welcome to

Kirkrizzola, who has had horrible RLS since age 14 and is 50 now. Works closely with a known doctor at Johns Hopkins in Baltimore. He is prescribed 5mg methadone and it doesn’t work very well and is therefore trying to learn more and take control with the help of his doctor.

Please post a note telling us about how the methadone isn't working so that we can offer some suggestions for your to consider.

Tuesday, December 5

Welcome to

Jonz, who has had it. He can't sleep and mirapex makes his drowsy, so what to do? He feels helpless and at the end.

Please post a note telling us a bit more about your symptoms and what you have tried. There are almost always other options available that you can suggest for discussion with your doctor.

Tuesday, December 5

Welcome to

hazyj, who is a long time horrible sleeper and RLS sufferer who understands how a life can be held hostage by lack of sleep. His RLS is agonizing, frustrating, exhausting and life interrupting. He suspects that every RLS sufferer has had hope at some point that it "would just go away" only to realize after months or years of denial ("it's really not THAT big of a deal") that yes, it IS that big of a deal and dealing with it can improve your life dramatically.

He is convinced there's more than just Requip and Neupro to help out and his hope is to go off drugs completely some day soon.

Please feel free to look around and post a note telling us a bit more about your symptoms and asking any questions that you have.

Wednesday, December 6

Welcome to

chug, who has not been able to get a good night's sleep in more than a year. chug does not want to take medication but would like to know the latest in restless leg research.

Take a look at the Published Research thread in our General Topics section to get an idea of recent RLS research. And please post a note telling us a bit about your symptoms and asking any questions that you have.

Thursday, December 7

Welcome to

Karr, who has suffered with RLS for thirty years and it continues to get worse and medications are helping less. Sleep is almost impossible now.

Please take a look around and then post a note telling us about your medication(s) so that we can offer you some suggestions to discuss with your doctor.

Friday, December 8

Welcome to

Tomebro, who has had RLS for over 50 years. At first, it was infrequent but In the last ten years, it has gotten progressively worse. The last five years it hits daily. The drugs that he has been using don’t seem to help. He just not able to function like he used to.

Please post a note telling is about your current medication since it sounds like a switch to something more effective would help. And feel free to ask any questions or jump into any other discussions that seem interesting.

Friday, December 8

Welcome to

davidl5012, whose RLS is an ongoing bane.

Please post a note telling us a bit about your RLS, what you are doing to manage it and asking any questions that you have.

Saturday, December 9

Welcome to

Soozierules, who has had RLS for many years, is operating on sleep deprivation most days and it really has affected her life negatively. She has been to many doctors and been on a lot of different medications, but is still seeking relief.

Most of us have multiple doctors in our history until we found one who understands and is willing to help. Please post a note telling us about your treatment history so that we can offer some suggestions for you to consider.

Saturday, December 9

Welcome to

Tparls, whose RLS has affected life due to the hard time standing to get through the day. It keeps Tparls at home when ready to go out. It also affects sleep negatively keeping Tparls up throughout the night.

Please post a note telling us what you are currently doing to manage your RLS so that we can offer some suggestions for you to consider.

Saturday, December 9

Welcome to

shohny32, who has had RLS more than 30 years.

Please post a note telling us a bit about your RLS and what you are doing to manage it.

Monday, December 11

Welcome to

Lynn88, whose RLS usually causes symptoms at night and lack of quality sleep.

Please take a look around and then post a note telling us a bit more about your RLS and what you are doing to manage it. And feel free to ask any questions that you have.

Thursday, December 14

Welcome to

dulcetsix, who is reluctant to make plans since she doesn't know from day to day how she will feel and doesn't want to do anything that involves traveling far from home.

We all know those feelings. Please post a note telling us what you are doing to manage your RLS and asking any questions that you have.

Friday, December 15

Welcome to

Pax, who has had RLS since childhood, pretty much guaranteed every night. Pax struggles to get a good night sleep and a night out at a theatre is a challenge!

All that sounds very familiar. Please post a note telling us a bit about your symptoms and what you are doing to manage your RLS.