JANUARY 2018 - NEW MEMEBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Myrt86

Postby Rustsmith » Fri Jan 26, 2018 4:50 pm

Friday, January 26

Welcome to

Myrt86, whose mom experienced "aching legs" at night intermittently and then she began to demonstrate symptoms in her 60s. She now takes a minor dosage of Ropinirole but her doctor is prescribing more for her symptoms. She wants to be a better informed patient and maximize her ability to remain active in retirement.

Please post a note telling us about your dose of ropinirole since there is a chance that you are experiencing augmentation, which is an issue with dopamine meds like ropinirole that many doctors are not aware of. And also feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Kathyatwell

Postby Rustsmith » Sat Jan 27, 2018 3:18 am

Friday, January 26

Welcome to

Kathyatwell, who is living an absolute nightmare. She has had RLS for 41 years and it is out of control. Her sleep doctor had her on 7 meds for it.

Please post a note telling us about your meds and what you are doing to manage your RLS now. We would love to be able to offer you some suggestions to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to zebra2

Postby Rustsmith » Sat Jan 27, 2018 2:36 pm

Saturday, January 27

Welcome to

zebra2, who has had RLS for her entire life, but was diagnosed in her 50s. Weirdest symptoms ever to describe. She recently ran out of meds for a week and could find nothing that worked as an alternative treatment. Being able to sleep even as a child would have probably helped her immensely. One of her passions is awareness as she has Ehlers-Danlos Syndrome too.

Please take a look around and then post a note telling us about your meds. And since your passions include awareness, please take a look at the advocacy tab on the Foundation's website (http://www.rls.org).
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7162
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Enigmaman

Postby Polar Bear » Sat Jan 27, 2018 6:13 pm

27th January 2018

Welcome to:

Enigmaman - who has had RLS and sleep apnoea for many years and is desperate to get better.

Please do read the Just Joined Forum and then it would be great if you would post telling us of your experience with RLS. What medications you have tried (or not). How you are coping. We are here to try and help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 7162
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Claudiacrone

Postby Polar Bear » Sun Jan 28, 2018 11:00 am

28 January 2018

Welcome today to:

Claudiacrone = who has suffered from rls off and on since 1980 and is usually unable to sit through a movie or concert without discomfort.

We all understand exactly how you feel. Please post and tell us of your treatment regime. There is always something else to suggest.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 7162
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to - XWelcome

Postby Polar Bear » Sun Jan 28, 2018 11:12 am

28 January 2018

Welcome today to:

XWelcome - Whose sleep is suffering greatly because of RLS Symptoms. While taking oxycodone briefly for another condition XWelcome discovered that it helped the RLS although no doctor has ever suggested oxycodone for the RLS. Currently on neuro patch and gabapentin. Feels that neuropatch now at 4mgs is not working so well.

Please post in the Just Joined section and tell us how you cope, what you have tried already.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to 2restless

Postby Rustsmith » Sun Jan 28, 2018 3:21 pm

Sunday, January 28

Welcome to

2restless, whose husband has had RLS for 40 years, and they just returned from an appointment with a specialist at Mayo Clinic, as his symptoms are now so severe he cannot go on like this. He is on a large dose of Pramipexole (3 MG) and his augmentation is severe. They gave options for other treatment, which we are trying, but the withdrawal symptoms have made everything even worse, with symptoms 24 hours/day. They need help. She has been reading the discussion boards and they are wonderful.

Please post a note telling us about the options that they gave you and what he is currently doing for the transition. We would love to offer you some specific comments.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Billdel

Postby Rustsmith » Sun Jan 28, 2018 11:13 pm

Sunday, January 28

Welcome to

Billdell, who is a long term sufferer of RLS and very interested in sharing his experience and learning others experience as well as staying up to date on the latest RLS medical treatments, studies and results.

Please post a note telling us a bit about your symptoms, what you are currently doing to manage them and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to bmcarthur

Postby Rustsmith » Mon Jan 29, 2018 5:02 pm

Monday, January 29

Welcome to

bmcarthur, who has had RLS for many years and have had intermittent relief until now. Now bmcarthur is unable to sleep, is irritated and walking the floor at night. bmcarthur also had a severe reaction to Parkinson drugs as well as gabapentin and is using various modalities with short term relief.

Please post a note telling us something about these other modalities you are using to get short term relief. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to sleeplesssinohio

Postby Rustsmith » Tue Jan 30, 2018 4:41 pm

Tuesday, January 30

Welcome to

sleeplessinohio, who RLS is preventing sleepless from sleeping at night.

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to erinmaryuhoh

Postby Rustsmith » Wed Jan 31, 2018 9:32 pm

Wednesday, January 31

Welcome to

erinmaryuhoh, whose mom is a longtime RLS sufferer and she is hoping to look through the boards to help her find ideas!

Please post a note telling us a bit about her symptoms and what she is currently doing to manage them. And feel free to ask any questions that you have. We would love to be able to help her out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Coaches01

Postby Rustsmith » Wed Jan 31, 2018 11:03 pm

Wednesday, January 31

Welcome to

Coaches01, who is an RLS Member. For the past 20 years RLS has consumed every night. RLS drugs offer only partial relief.

Please post a note telling us a bit more about your symptoms and what you are doing to manage them. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to chuckletner

Postby Rustsmith » Thu Feb 01, 2018 12:23 am

Wednesday, January 31

Welcome to

chuckletner, who has suffered for several years... and is looking for resources to help

Please post a note telling us about your RLS and what you are doing to manage it. We would love to offer you some suggestions to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MSusan

Postby Rustsmith » Thu Feb 01, 2018 2:09 am

Wednesday, January 31

Welcome to

MSusan, who suspects she may have RLS and is looking for additional information.

Take a look through "A Good Place to Start" at the top of this forum. You might also want to check the International RLS Support Group's diagnostic criteria web page to get an idea of how RLS is diagnosed. And feel free to post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3179
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to browland

Postby Rustsmith » Thu Feb 01, 2018 2:13 am

Wednesday, January 31

Welcome to

browland, whose RLS has made life miserable. It has lead to depression and is threatening browland's marriage.

First, please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions. Second, please take a look through our forum on Help for Relationships. Depression is a common side effect of RLS and the depression along with the sleep issues can take their toll on a marriage. If you provide us with some of your current issues, we can also offer suggestions in that area since many of us have been there.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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