Restless Legs Syndrome (RLS) Discussion Board

Monday, January 1

Welcome to

karwel67, who suffers from sleep deprivation and the torture of restless legs and arms.

Please post a note telling us what you are doing to manage your RLS and feel free to ask any questions that you have.

Thursday, January 4

Welcome to

Lsnow, whose RLS has been the worst thing Lsnow has ever experienced! Lsnow can't sit down until without taking meds, no matter how tired. And now is having a problem with jerky legs that the requip is not touching.

Please take a look at out augmentation forum since that could be why your requip isn't working. And please post a note telling us about the dose that you are taking and asking any questions so that we can offer some specific suggestions.

Thursday, January 4

Welcome to

ososgrl, who has had RLS for most of her life, but didn't understand what it was. It started as intermittent episodes as an adolescent. She has been on Requip for about 15 years and knows she needs to pursue things more. She will also (once again) try to find a neurologist who has dealt with patients with RLS.

Please post a note with any questions that you have and where you are located so that we can try to help you locate an RLS specialist near to you.

Thursday, January 4

Welcome to

KellysLegs, who has a tbi. This restless leg is a brand new diagnosis. It is a living hell with a brain injury where she needs hours of serious sleep. She needs advice and to see others experiences.

Please post a note telling us a bit about what medications you are taking, what you are currently doing to manage your RLS and what your doctor has suggested. Also feel free to ask any questions that you have. We are here to help as best we can.

Thursday, January 4

Welcome to

wzos, who was diagnosed with RLS about seventeen years ago and started on Ropinerole. In the following years wzos experienced severe augmentation that ended in mid 2016 with a very long and painful withdrawal from the DA. Since then wzos has used opiods and alpha-2-delta ligands to control the RLS symptoms with moderate success. Given the impending governmental "war" on opiods, the more information the better.

Please feel free to post a note telling us about your current treatment and asking any questions that you have.

Sunday, January 7

Welcome to

nightcat, who began medication wh when RLS interfered with sleep too much too cope. And now the "cure" is as bad as the disease, so there are only two bad choices (insomnia or medication side effects) and need a third choice.

Please post a note telling us more about your symptoms and your medication. There are always new approaches to try, so would would love to offer some suggestions for you to consider.

Monday, January 8

Welcome to

Mikechy, who has had RLS for almost 32 years.1986. He was 26 years old and has been on nearly every drug there is for RLS. He doesn't know any one else with RLS. So, it would be nice to interact with other people that have RLS.

You have come to the right place to interact with others with RLS. Please post a note telling us about your history or simply jump into one of our ongoing discussions.

Tuesday, January 9

Welcome to

daveotf, who find that RLS is the most disruptive aspect of his life. It is the one problem he always has and for which he has never found a satisfactory solution. It has had a negative impact on the quality of his life on almost a daily basis for the last 64 years.

Please post a note telling us what you are currently doing to manage your RLS and a bit about your symptoms. Experience has found that there is always something new to try.

Tuesday, January 9

Welcome to

JimmyLegs24, whose RLS has effected every aspect of life. It has been severe RLS 24/7 throughout JimmyLegs24's entire body. Without treatment, JimmyLeg24 doesn’t know to get by.

Please post a note telling us about your current treatment and asking any questions that you have.

Friday, January 12

Welcome to

RLS13, whose RLS has made it difficult to sit thru movies or take long trips, and the medication has side-effects that make evening activities difficult to plan.

Please post a note telling us a bit about your medications. Many of us have experience that has helped us get around the issues you describe.

Friday, January 12

Welcome to

Wighill, who finds it very hard to sleep at night and sit still during the day.

Please post a note telling us a bit about what you do to manage your RLS and asking any questions that you have.

Saturday, January 13

Welcome to

Annbenedet, who has always had restless legs after sitting for long periods, but now at 68 it is disturbing her at night as well and affecting her sleep.

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have.

Saturday, January 13

Welcome to

sammcclaren, who has had RLS for about 15 years, gradually worsening as time has passed. It hits at the same time twice daily, if he doesn't medicate at the right time, the right doses and combination of drugs, and before eating. Usually, it's manageable. Usually.

That sounds fairly typical. Please post a not telling us about your combination of drugs and doses. Maybe we can suggest some improvements. And feel free to ask any questions that you have.

Saturday, January 13

Welcome to

StirCrazy, whose husband of almost 5 years has RLS. It is something she wants to learn more about and gain support so that is doesn't interfere with our relationship. She hopes this forum will provide some of that.

What a wonderful thing to do, and yes we can provide the information and support that you are looking for. Please post a note telling us about his RLS and what he is doing to manage it.

Sunday 14th January

Welcome today to

Jacy - who has had symptoms since childhood, and finds it growing more frequent with age. Trying to relieve symptoms Jacy will often hurt other muscles in the legs, from the strain and intensity. Has tried many, many things and is looking for other experiences and ideas

We all understand how you feel and are here to try and help. Please look at our Just Joined section, also post and tell us what treatment you have been on and how you are coping.