Restless Legs Syndrome (RLS) Discussion Board

Monday, February 5

Welcome to

ErnieB, who has had RLS since birth. It causes intense foot pain in addition the restless leg. He is now retired but it was only ten years ago that he learned that there was medication for this problem but this is not a disease well known by our doctors in this small city.

Your doctor situation is not something that is limited to small cities, it is a problem in large ones as well. Please post a note telling us what you are currently doing to manage your RLS so that we can offer some suggestions on how to proceed and improve your situation.

Friday, February 9

Welcome to

Thrilled2Pieces, who needs to communicate with other RLS sufferers

You have definitely come to the right place for that. Please post a note telling us a bit about your RLS and what you are doing to manage it.

Monday, February 12

Welcome to

judiart, who has suffered for 60 years with separate bedrooms, separate sleep hours, thousands of hours of discomfort and frustration. Also medicines that don't work or that have unacceptable side effects.

Please post a note telling us what you are currently doing to manage your symptoms. Our experience has been that there is always something else to try.

Monday, February 12

Welcome to

ChattyKathy, whose RLS is driving her insane!!

Please post a note telling us a bit about your current medications and anything else you are doing to manage the symptoms. We would love to be able to offer some suggestions for you to consider.

Tuesday, February 13

Welcome to

Deb B, who has had RLS her whole life but was diagnosed 15 years ago. She is 59 years old. She has to sleep alone, is always tired, pills are a drain on the pocketbook and she just hates the creepy feeling.

Please post a note telling us what you are (of have been) taking for your RLS. We have found that there is usually something else to try that either doesn't cost as much or doesn't cause unpleasant side effects.

Saturday, February 17

Welcome to

lacey97, who is very interested in sharing and learning about this terrible disorder. She is suffering more now than ever and hopes to help someone else or find help with support.

We can very definitely provide support and maybe even some suggestions to improve your situation. If you will post a note telling us what you are currently doing to manage your RLS, we can probably provide some suggestions.

Saturday, February 17

Welcome to

jjgcmg56, whom he and his wife have suffered from chronic lower lower back and neck pain as well as RLS for years. His wife also has neuropathy throughout her body.

Please post a note telling us what you are currently taking to manage your pain, neuropathy and RLS. We may be able to offer some suggestions to discuss with your doctor.

Thursday, February 22

Welcome to

Kristinapw, whose legs twitch and hurt all of the time whether she is laying down or sitting. Not only do they twitch but they hurt as do her feet.

Please post a note telling whether you have a diagnosis of RLS. Your symptoms are close, but there are other things that can cause what you are describing. We would like to help you out, but need to know more.

Thursday, February 22

Welcome to

Markg, who has RLS symptoms and is Interested to know more.

Please take a look around and then post a note telling us about your symptoms and asking any questions that you have. We would love to be able to help you out.

Friday 23rd February 2018

Welcome today to

JRock1947 who finds RLS has been torture. Symptoms have gotten worse in the past year. Every aspect of life is affected: daily activities, dealing with others, depression, medication reactions and more.

We are all so aware of this, your symptoms are exactly what we understand. How it has affected you is well understood by us.
Please make a post telling us about your symptoms and your medication regime. Everyone here wants to help.

Saturday, February 24

Welcome to

atpoli, who has suffered from RLS in various degrees over many years. The condition has worsened greatly over the last 5 years, this coincided with a long bought of depression. atpoli has worked hard at finding help with RLS from many different sources across various fields and hopes to help others relate to RLS and offer insight into various medical and homeopathic medications and devices.

We look forward to hearing about your experiences and hopefully we can offer you some new insights into managing your RLS.

Saturday, February 24

Welcome to

jamieryan56, who has been suffering with RLS for several years now and it is getting worse enough to finally need treatment.

Please post a note telling us about your symptoms and where you intend to go from here.

Saturday, February 24

Welcome to

crokjcc, who has RLS and is happy to have found a natural treatment.

Please post a note telling us about your treatment and also a bit about your symptoms and the severity of your RLS.

Welcome to Zotis12, who has had WED/RLS for over 20 years and is currently augmenting and suffering from impulse control disorder.

Zotsi12, tell us your story, ask questions, provide advice; please make yourself at home! From what you have said, it seems almost as if you have resigned yourself to living with augmentation and ICD. (Did I read you wrong?) There are alternatives to the dopamine agonists that you probably should investigate. You can begin here! Welcome.

Sunday, February 25

Welcome to

Ugh_Not_Again, who although, not diagnosed needs support. It is driving her crazy. Also, she is taking a Psychology class and one of her assignments is Sleep Disorders (she says "trust me, I can totally relate on this").

Please post a note telling us a bit about your symptoms and asking any questions that you have, especially if it can help with your assignment.