Restless Legs Syndrome (RLS) Discussion Board

Welcome to sleejennings, who has suffered for years and now watches a 20-yr old daughter augmenting from Mirapex.

Tell us a little about yourself, how you have found relief, and the issues you and your daughter are facing. There is a lot of information tucked away on this site; browse around, ask questions and share your own advice.

Friday, March 2

Welcome to

SDA, who is a director of Sleep Disorders Australia. She would like to hear from people with RLS so that she can better help and support RLS sufferers in Australia. On a more personal level, her mother and aunt have RLS. They do not use the internet so she helps them by finding info that may be helpful and relevant to them.

Welcome to the discussion board. Please feel free to post any questions that you have or simply jump into any of our ongoing discussions.

Saturday, March 3

Welcome to

Emmeline 5108, who would love to hear how other people are dealing with their RLS. Hers happens at night. She is on Mirapex and it depends on the night if she sleeps or not. She is not sure why this happens and why her RLS is worse some nights other than others. Help!!

Please post a note telling about your symptoms and dose of Mirapex that you are taking and how long you have been on it. We might be able to offer some suggestions.

Monday 5 March 2018

Welcome to Nehart - who is starting to feel crazy, sporadic nights when can just sleep without RLS keeping awake for hours. has tried different meds, supplements..nothing helps.

Please go to Just Joined, you can start a thread or join a suitable thread, and tell us what you have tried so far, what hasn't worked and what has 'sort of' worked. Tell us how long you have had RLS. We would like to be able to help and offer some suggestions.

Welcome to redwings28, who has WED/RLS and would like to know how other people deal with it.

redwings, you can browse around, start a topic to tell us a bit about yourself, or post on existing topics. Hopefully you will feel at home. There is a Topic in this forum (Just Joined) called A Good Place to Start, and that would be a good place to browse through especially if you're just learning about the disease.

Tuesday, March 6

Welcome to

westkari, who suffers from RLS and takes medication for it but it is not working well and is therefore looking for alternatives to treatment.

Please post a note telling us about the medication that you are currently taking (with the dose), so that we can offer you some suggestions about alternatives.

Wednesday, March 7

Welcome to

BarryO, whose RLS causes sleep deprivation, which in turn lead to many negative quality of life and health consequences. Rx's have not worked for his, so he is still suffering. So, he is trying to become educated to better lead his own future.

Please post a note telling us a bit about your symptoms and what treatments that you have tried. Our experience has been that there is always something else to try, often with better results.

Thursday, March 8

Welcome to

33Coursey, who is a newbie to this disease and looking for support.

Please post a note telling us a bit about your RLS and what you are doing to manage it. We would love to be able to help you out.

Thursday, March 8

Welcome to

Dzina, whose RLS has impacted sleep as well as comfort level when reading/watching TV in the evening. It has been pretty successfully treated by PCP but had to change PCP's and now the new one is very reluctant to continue with that treatment, so now Dzina is pursuing finding out more about the condition.

After you have a chance to look around, please post a note telling us about your RLS and the what you were doing to manage it. That way we can offer suggestions for you to discuss with your new PCP.

Sunday, March 11

Welcome to

wishfull, who is 78 years and has been suffering for many years with RLS, seeing doctors, had a sleeping test in clinic and used tramozol and now Sifrol for two years. Good results until some months ago. sometimes wishfull takes 1 1/2 sifrol and has a good night. Most of the time 1 tablet is not enough and the nights are horrible. wishful's weight has climbed due to eating at night. It is very reasonable during the day but can be hungry two hours after taking sifrol.

The eating side of your question sounds like an impulse control issue that can be caused by the Sifrol, which is a fairly common side effect. As for the required increase in dose, that sound like it could be the beginning of augmentation. You can read about Augmentation in our forum on that topic. Both of these issues may be reasons to switch from Sifrol to something else. So you should bring these issues up with your doctor as soon as possible.

Sunday, March 11

Welcome to

gregboehmer, who in addition to RLS, has other medical conditions that are eroding his quality of life. The sleep deprivations caused by the RLS is devastating.

Please post a note telling us a bit about your situation and what you are doing to manage your RLS. We would love to be able to help, if possible.

Wednesday, March 14

Welcome to

Wandering3, who has had RLS for 30 years. It is getting worse and harder to find meds or other ways to control it. Wandering is often too tired to enjoy family or to have a meaningful lifestyle, sees fewer people, travels very little and have given up a favorite volunteer job.

Please post a note telling us about what you have been trying in the way of meds. Experience shows that there is almost always another option to try.

Friday, March 16

Welcome to

agarcia, who was diagnosed with RLS over a decade ago and it impacted him in several ways. In sports, He had physical lows and highs over the season, with muscular injuries occurring in "bad" times. At school & university, it made it hard to focus, staying awake in classes and even impacted his memory. At work was not too different. As a father, keeping regular routines and exercising has become harder, making it worse.

Please post a note telling us a bit about your RLS symptoms and what you are doing to manage them. And feel free to ask any questions that you have.

Monday, March 19

Welcome to

Ibesbaby27, whose RLS HAS TAKEN OVER LIFE. Ibesbaby has been getting some relief from Fentynl patches for 10 years and is now losing them because the opiod crisis. Ibesbaby is scared because of fear to continue working without the patches and I would go anywhere to try anything.

Although you may be get the patches, if you go to one of the Foundation Quality Care Centers, you should be able to get access to an opioid to treat your RLS. The experts at these centers understand the need for opioids to treat severe RLS. To find the Center that is most convenient to you, go to www.RLS.org and click on the Treatment pulldown. Also, please post a note telling us about your symptoms, we may be able to offer you some other suggestions to consider trying. There is no cure for RLS, but there are ways to manage.

Tuesday, March 20

Welcome to

Bwb, who has had RLS for over 20 years and is seeking support.

Please post a note telling us about your symptoms, what you have done to manage them and asking any questions that you have. We would love to be able to not only provide you with some support but also maybe even some suggestions for improvement.