MAY 2018 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
Moderator
Posts: 7194
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to jeanrich

Postby Polar Bear » Sat May 26, 2018 11:05 am

Saturday 26 May 2018

Welcome to

jeanrich - whose first episode of RLS was in first pregnancy 1973, gradually increased in frequency until age 40 it became every night; now at age 67 it is severely affecting her days and nights.

That's a long time to have been suffering from RLS symptoms. Please post and tell us about how you have managed for this time, what medications you might have tried, what worked and what didn't work. We'd like to try to help and usually find that there is always another avenue to try.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 7194
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Nlbonin

Postby Polar Bear » Sun May 27, 2018 7:54 am

Sunday 27 May 2018

Welcome today to:

Nlbonin - who is experiencing rls and trying variety of meds. Wishes to know which work best and possible treatments that do not involve pharmaceuticals.

Please read 'A Good Place to Start' in this Just Joined Forum. There is also the 'Non Prescription' Forum where you may find helpful information. When you feel ready please tell us what you have been doing to obtain relief from your symptoms. Not everything works best for everyone.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3274
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to charlieP

Postby Rustsmith » Tue May 29, 2018 3:15 pm

Tuesday, May 29

Welcome to

charlieP, whose Restless legs and fingers were not the main problem, their treatment was. RLS is associated with a now progressively disabling neuropathy. There are other neural issues to contend with. charlieP has a history of drug sensitivity. In the third week taking ropinirole charliP had a Stevens Johnson attack. charlieP has pretty much recovered except for visual problems like photophobia.This was the 3rd case of Stevens Johnson, from 3 different drugs, but given the paucity of similar instances charlieP wanted to share this posy as cautionary.

Please post a note telling us more about your situation, including the dose of ropinirole that you were taking and what you are now doing to manage your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3274
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Good Dog

Postby Rustsmith » Wed May 30, 2018 3:19 am

Tuesday, May 29

Welcome to

Good Dog, whose RLS is always there, lurking in the background. Sometimes pills make it fade away for precious hours, but then... Becoming discouraged is easy but it's important to keep going.

Please post a note telling us a bit about what you are currently doing to manage your RLS. We may be able to suggest some ways to improve your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3274
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to aledag1

Postby Rustsmith » Wed May 30, 2018 10:10 pm

Wednesday, May 30

Welcome to

aledag1, whose RLS made evenings miserable. The pain from 7-11pm is unbearable. aledag1 has tried 3/4 medications listed on this site and as noted the condition gets worse.

Please post a note telling us about your symptoms other than the pain, which medications you have tried and what you are currently doing to manage your symptoms. We may be able to offer some suggestions for you to consider, but we need to know more.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3274
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Dragonz71

Postby Rustsmith » Fri Jun 01, 2018 2:54 am

Thursday, May 31

Welcome to

Dragonz71, who can't sleep at night because of RLS. Dragonz71 has tried everything with no relief and is now having to take 2.5 milligrams of lortab before bed to get to sleep.

Many of us have to use various types of opioids to control our RLS. Please post a note telling us about what you have tried and whether getting access to lortab is going to be an issue for you in the long term.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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