JUNE 2018 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3400
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

JUNE 2018 - NEW MEMBERS

Postby Rustsmith » Sat Jun 02, 2018 9:16 pm

Saturday, June 2

Welcome to

imawanderer, whose progressively diminishing sleep over a 45-year span due to RLS has impacted her life in a myriad of ways, including possibly paving the way for 2004 breast cancer. She has had RLS treatment all along (during early years by perusing research in medical school libraries and educating her doctors). Now her medical assistance comes from an RLS credentialed institution. But with her RLS off the NIH charts during the past year, she has finally lost patience—which, actually has been a positive gain from RLS—she has learned patience, the value of not complaining and how to create ways to deal with the hand she has been dealt. However, this past year she hit the high water mark of sleep deficiency and has set the RLS solution as her top priority.

Please post a note telling us a bit about the treatments that you have tried and what you are doing now. Although it appears that you are very well versed in RLS treatments, perhaps we can offer some new ideas to think about.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3400
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jeffr31

Postby Rustsmith » Sat Jun 02, 2018 9:18 pm

Saturday, June 2

Welcome to

jeffr31, who has a bad case of RLS and is looking for answers.

Please post a note telling us a bit about your symptoms and what you are currently doing to manage your RLS. We should be able to offer you some suggestions as well as answers to any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7241
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to dforbes

Postby Polar Bear » Sun Jun 03, 2018 1:28 pm

Sunday 3 June 2018

Welcome today to:

dforbes - whose RLS has been a dominant feature for the last 40 years- a lack of sleep has been accepted as the way things are. dforbes have seen sunrises and usually it's welcome as the long, long night is over.

So many of us understand exactly what you mean and how you feel. Please start a thread (or join a suitable thread) and tell us how you have coped. We wsant to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3400
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ppp

Postby Rustsmith » Mon Jun 04, 2018 2:47 am

Sunday, June 3

Welcome to

ppp, who has been suffering from excessive daytime sleepiness(EDS) since she was a teenager and the condition is getting so serious that she had to quit her job and focus on finding the reason behind her EDS. At first she thought she belonged to Idiopathic Hypersomnia but the more she looks into online materials related to sleep disorders, the more she is convinced that she has RLS because she has always had the sensations under her legs during childhood and sometimes I couldn't get back to sleep when she woke up in the middle of the night.

Please take a look at the diagnostic criteria published by the International RLS Study Group (IRLSSG) to decide whether you have RLS. If so, please post a note telling us about your symptoms and whether you have tried any medications up to now.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 4934
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: JUNE 2018 - NEW MEMBERS

Postby badnights » Mon Jun 04, 2018 5:01 am

Please take a look at the diagnostic criteria published by the International RLS Study Group (IRLSSG) to decide whether you have RLS. If so, please post a note telling us about your symptoms and whether you have tried any medications up to now.

Note to PPP
You can just post a note if you want. Steve didn't mean that you have to read anything before you post, just meant that you might want to.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Rustsmith
Moderator
Posts: 3400
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to pam.willcock

Postby Rustsmith » Wed Jun 06, 2018 1:19 pm

Wednesday, June 6

Welcome to

pam.wilcock, who has suffered from RLS all her life and it has become considerably worse since reaching menopause. She is employed full time and finds functioning with little or no sleep very difficult.

Please post a note telling us a bit about your symptoms and what you are doing to manage them. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3400
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Empierce

Postby Rustsmith » Thu Jun 07, 2018 12:17 am

Wednesday, June 6

Welcome to

Empierce, who has RLS and would like some support.

Please post a note telling us a bit about your symptoms and what you are doing to manage it. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7241
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Penno0396

Postby Polar Bear » Thu Jun 07, 2018 6:03 am

Thursday 7 June 2018

Welcoome today to

Penno0396 - who has had this condition since a child. It has become progressively progressively worse and has gotten to the stage where some feedback is needed. Penno0396 is interested in any alternative methods.

Please make a post about your medications and dosage, what you have done to relieve symptoms. We will try to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3400
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Horse

Postby Rustsmith » Thu Jun 07, 2018 2:07 pm

Thursday, June 7

Welcome to

Horse, who is never able to fall asleep, which is making Horse kookoo.

Please post a note telling us a bit about what you are doing to manage your RLS so that we can offer some suggestions to improve your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7241
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Reba1

Postby Polar Bear » Thu Jun 07, 2018 4:29 pm

7th June 2018

Today we welcome:

Reba1 - who finds that several “awake” hours are filled with such discomfort and anxiety that not only Reba1, but also the family is feeling the effects of RLS.
Reba1 tries “hide” symptoms so as not to upset others, but sometimes they see through the attempts.
Reba1 doesn't know from day to day what to expect; peaceful morning? Crazy legs all afternoon? Sleepless night? Depression and anxiety most of the day?

Most of us will find we could have written your post. You may already have read the information on the Just Joined Forum - A Good Place to Start. When you are ready please make a post or start your own thread telling us of your RLS History. We do understand that life is difficult and we want to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3400
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to SleepyJudy

Postby Rustsmith » Fri Jun 08, 2018 8:22 pm

Friday, June 8

Welcome to

SleepyJudy, who has been really struggling with RLS for at least 10 years, although she has had it off and on for 30 years. Not being able to get a solid night's sleep has made her feel hopeless at times. Being able to talk to others going through this and getting suggestions of things to try would help her not feel so alone.

You are in the right place to talk with others about coping with RLS. Please post a note telling us a bit about yourself and what you are doing to manage it.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7241
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome

Postby Polar Bear » Sat Jun 09, 2018 9:30 pm

9th June 2018

Welcome today to:

bexter - RLS has increased stress level tremendously and obviously, the older bexter get sthe more frequent episodes become. It makes for a lousy evening and even worse bedtime.

omarv13 - who has undiagnosed RLS and omarv13's 18 year old daughter has an official RLS diagnosis. omarv13's is mild compared to many people, but it has been worse lately. Daughter is constantly tired, has anxiety, depression, and is about to go to college in the fall. Looking for treatments and good doctors to help both of them.

JuleeLom - who has RLS that interferes with being able to sit still at work, at movies and at bedtime. JuleeLom is seeking information and support to manage the symptoms effectively.

You have all come to the right place and although we are glad that you have found us we are sorry that you need us. Please feel free to start a thread, or join a thread, tell us something of your RLS history, how you have coped, what medications you have used and how you are at present. We will do what we can to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3400
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to omarv13

Postby Rustsmith » Sat Jun 09, 2018 9:36 pm

Saturday, June 9

Welcome to

omarv31, who has undiagnosed RLS and omarv's 18 year old daughter has an official RLS diagnosis. omarv's is mild compared to many people, but it has been worse lately. But the daughter is constantly tired, has anxiety, depression, and is about to go to college in the fall. Looking for treatments and good doctors to help us.

We should be able to help you with suggested treatments and ways to find a good doctor. Please post a note telling us a bit about what the two of you are currently doing so that we can offer some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3400
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to JuleeLom

Postby Rustsmith » Sat Jun 09, 2018 9:38 pm

Saturday, June 9

Welcome to

JuleeLom, who has RLS that I interferes with being able to sit still at work, at movies and at bedtime and so is seeking information and support to manage the symptoms effectively.

Please post a note telling us about what you are currently doing to manage your RLS so that we can offer some suggestions for improvement.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3400
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Ziedite

Postby Rustsmith » Mon Jun 11, 2018 1:20 pm

Monday, June 11

Welcome to

Ziedite, who is suffering terribly with RLS and needs to find a treatment that helps.

Please post a note telling us about the treatments that you have tried so that we can suggest something to discuss with your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


Return to “Just Joined?”

Who is online

Users browsing this forum: No registered users and 1 guest