JULY 2018 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to annamariemoyer

Postby Rustsmith » Tue Jul 10, 2018 7:59 pm

Tuesday, July 10

Welcome to

annamariemoyer, whose RLS causes insomnia and depression. She just saw a vein specialist today. He recommended that she join this group. She has been suffering with RLS for over 15 years, but is exhausted and can't seem to get ahead in her life.

Please post a note telling is if you are currently using any form of treatment for the symptoms of your RLS. We can probably make some suggestions to discuss with your doctor that will allow you to get some rest and get your RLS under control.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to cmk001

Postby Rustsmith » Wed Jul 11, 2018 12:40 pm

Wednesday, July 11

Welcome to

cmk001, who has RLS wants to get guidance from others.

Please post a note telling us about your symptoms and what you are currently doing to manage them so that we can provide you with the guidance you seek. Also feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Cpinkston77

Postby Rustsmith » Wed Jul 11, 2018 12:45 pm

Wednesday, July 11

Welcome to

Cpinkston77, whose RLS is very severe.. Cpinkston has battled for a lifetime, was prescribed Neupro patch in April and it worked great for about a year and now Cpinkston is back to square 1. Just got a new Rx for Requip and is hoping to get some relief soon.

Your experience with Neupro sounds a lot like augmentation. Please take a look through that forum to get some ideas. And please post a note telling us a bit about your RLS and asking any questions that you have so that we can provide some specific comments for you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Nlbonin

Postby Rustsmith » Wed Jul 11, 2018 2:18 pm

Wednesday, July 11

Welcome to

Nlbonin, who is experiencing RLS and trying a variety of meds and so wishes to know which work best and possible treatments that do not involve pharmaceuticals.

Please post a note telling us about what you have tried and what you are currently doing to manage your RLS. And please take a look at our forum on non-pharmaceutical treatments to get an idea of your options in that area.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to McDesh51

Postby Rustsmith » Thu Jul 12, 2018 11:32 pm

Thursday, July 12

Welcome to

McDesh51, whose RLS has interfered with sleep for 20 yrs and the sensations becoming increasingly worse.

Please post a note telling us about what you are currently doing to manage your RLS. We may be able to offer some suggestions to improve your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
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Posts: 15298
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: JULY 2018 - NEW MEMBERS

Postby ViewsAskew » Fri Jul 13, 2018 5:32 am

Friday, July 13

Welcome to CCWags. Sorry you had to find us, CC. The RLS came from nowhere just recently and CC is waking up all the time and not getting the sleep that is needed.

A suggestion is to start a new topic and introduce yourself. Tell us if anything changed about that time - new medication, surgery, job change, anything stressful. We will try to help you sleuth it out.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Meow

Postby Rustsmith » Mon Jul 16, 2018 1:27 pm

Monday, July 16

Welcome to

Meow, who is looking for a solution for the Restless Legs she has been experiencing for fifteen years. It is limiting her lifestyle and effecting her health.

Please post a note telling us what you are doing to manage your symptoms so that we can offer you some specific suggestions. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to twarr69

Postby Rustsmith » Mon Jul 16, 2018 5:06 pm

Monday, July 16

Welcome to

twarr69, whose husband has severe RLS and it is affecting his quality of life.

Please post a note telling us about his symptoms and what he is doing to manage them so that we can offer some specific suggestions to improve things.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Chumley

Postby Rustsmith » Mon Jul 16, 2018 7:09 pm

Monday, July 16

Welcome to

Chumley, whose RLS has mainly denied restful sleep. In addition, it's difficult to sit quietly to enjoy a play, movie, or any type of entertainment. It's extremely annoying that most of Chumley's friends don't understand RLS or believe such a disease exists.

Please post a note telling us what you are doing to manage your symptoms. And you now have friends here who not only believe that RLS exists, but suffer along with you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to KBRN

Postby Rustsmith » Mon Jul 16, 2018 9:36 pm

Monday, July 16

Welcome to

KBRN, whose RLS has ruined life by not sleeping unless she takes Requip and she can barely sit thru a movie after 7p. If she happens to have a glass of wine, the RLS gets worse.

Please post a note asking any questions that you have. We would love to be able to offer some suggestions on how to improve things, or at least learn to live with them.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Posts: 7221
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Sherripie1234567

Postby Polar Bear » Tue Jul 17, 2018 7:26 am

Tuesday 17 July 2018

Welcome today to:

Sherripie1234567 - whose RLS is driving him/her crazy.

You have certainly come to the right place. We all understand. Please make a post telling us about your RLS and how you have been managing it so that we can make a few suggestions to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 15298
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Welcome to Gasheadalan

Postby ViewsAskew » Tue Jul 17, 2018 11:38 am

Tuesday, 17 July, 2018

Our newest memeber, Gasheadalan, has had this for the last 30 years and is currently wearing tights which reduces the need for medication for the RLS.

Great to hear! Thanks for sharing and welcome.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to timed

Postby Rustsmith » Tue Jul 17, 2018 2:41 pm

Tuesday, July 17

Welcome to

timed, who is not able to get timed's primary care doctor to prescribe ropinirol, and so was hoping to get some advice.

Please post a note telling us what your PCP is willing to prescribe and if he/she gave any reason. This is generally an issue for those of us who need opioids, ropinirole is usually not a problem.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Sanschutz

Postby Rustsmith » Wed Jul 18, 2018 11:30 pm

Wednesday, July 18

Welcome to

Sanschutz, who cannot sleep. About 30 minutes after laying down in bed,the creepy crawly feeling. Sanschutz has tried ice packs, compression, propping leg up, meditation, and many more. It’s no use.

Take a look around to get an idea of what others do to manage symptoms, including the various types of medication. You didn't mention heat, some of us find that soaking in a very hot bath helps shut down the need to move long enough to fall asleep. And please post a note telling us a bit more about your experience(s) with things that you have tried so that we can offer some more specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3338
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Iman01

Postby Rustsmith » Thu Jul 19, 2018 3:40 pm

Thursday, July 19

Welcome to

Iman01, who can remember the creepy sensations in his legs during rest as a child. His mother understood and told him she had it too but she didn’t know what to do about it. For the most part it stopped for many years but now that he is 67 it has returned with a vengeance and he hasn’t slept well in weeks.

Please post a note telling us if you have been taking any medication to manage your symptoms and asking any questions that you have. We can almost certainly provide you with some help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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