Restless Legs Syndrome (RLS) Discussion Board

Thursday, July 19

Welcome to

Niab, who has had terrible RLS for 45 years and now it is getting worse and it prevents Niab from going anywhere.

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have. We would love to be able to offer you some suggestions to get things back under control.

Thursday, July 19

Welcome to

Robyn Stalson, who would like to determine if she is experiencing augmentation from taking Gabapentin. Is this possible? Her symptoms are now arms and legs and all day. She is considering alternative drugs (Ropinirole) with Gabapentin. However, she is very scared of taking Ropinirole because of augmentation.....but she seems to have it now????

Augmentation on gabapentin would be unusual. It is possible that you are experiencing a natural progression of your RLS. Please post a note with details such as your dose, your RLS history and whether your doctor is knowledgeable about RLS treatments so that we can offer a few suggestions and comments for you to consider.

Friday, July 20

Welcome to

Sleepless at night, who is suffering with RLS and is seeking any help possible. When it goes into Sleepless's arm, it's the worst. Sleepless also has a few things that may help other people.

Please post a note telling us about what you can share with others about managing RLS. We always love to hear new suggestions for help.

Saturday, July 21

Welcome to

Anitasara, who has consistent pain but prefers not to take any medicine so she basically suffers. It has really affected her sleep, so she I feels like she is 40 years older than she actually is.

Please take a look through our forum on Non-prescription meds to get an idea of some of the non-medication coping mechanisms that have worked for others. And please post a note with any questions that you have.

Saturday, July 21

Welcome to

curqlink, who has had RLS for the past 30 years or so. Like with most people it started out just being a nuisance. Now curqlink longs for the good old days when it was just an unpleasant sensation.

Please post a note telling us about what you are doing to manage your RLS and asking any questions that you have. We may be able to help you improve your situation back toward those good old days.

Saturday, July 21

Welcome to

Brynmr, who has RLS and says that knowledge is power.

We totally agree, which is why we strive to share our knowledge. Please post a note telling us what you do to manage your RLS and asking any questions that you have.

22 July, Sunday

gbrown has had RLS for about 15 years and it's getting worse, so will be going to see a doctor soon.

We hope that helps; there is a lot of good info here to help you prepare.

Tuesday, July 24

Welcome to

Janno, who is interested in finding a solution to RLS without drugs, but Janno's symptoms are getting worse.

Take a look through our forum on Non-Prescription medications to get an idea of the limited number of things that work on RLS without drugs. There is also the question of your ferritin levels and whether you would benefit from taking iron supplements. So, please post a note telling us a bit about your symptoms so that we can offer you some specific suggestions.

Tuesday, July 23

Welcome to

Jean623, who can’t sit for long, take long car rides or sleep well.

That pretty much sums it up for most of us. Please post a note telling us what you do to manage your symptoms and asking any questions that you have. Hopefully we can provide some suggestions to improve your situation.

Sunday, July 29

Welcome to

tragam, whose RLS has progressively gotten worse and no prescriptions are helping. So, tragam is trying to find options and support.

Please post a note telling us what medications that you have tried and why they no longer work so that we can offer some suggestions of things to try. And feel free to ask any questions that you have.

Sunday, July 29

Welcome to

ju2nek, who has suffered with RLS and knows what a horrible disease it is. Fortunately ju2nek sees a wonderful neurosurgeon who controls it at present. So, ju2nek would like to be able to share and help others who suffer with this terrible disease.

Please post a note telling us what your doctor is doing to help you manage your RLS.

Monday, July 30

Welcome to

Chai, whose RLS has been an up and down. For a while it was very intense, at some point it went away and recently it started again. So, Chai would like to share some experiences.

Please post a note telling us about your experiences with RLS. We are always interested to hear about new ideas.

Monday, July 30

Welcome to

simba777, who had to stand and walk while registering because of the symptoms of RLS. simba777 has had RLS for 30 years now and is always hoping and experimenting to find relief.

Please post a note telling us what you are currently doing to manage your RLS. We can all relate to the need to stand and walk while working on a computer, so perhaps we can offer some suggestions for new means of finding some relief.

Monday, July 30

Welcome to

Kele, who has dealt with severe RLS both day and night, including arms for several years on almost daily basis.

There are many of us here who have similar experiences. Please post a note telling us what you have been doing to manage your RLS. We may be able to offer some suggestions for improving your situation. And feel free to ask any questions that you have.

Tuesday, July 31

Welcome to

Jillmac, whose RLS has become worse as she's gotten older and is now causing significant insomnia and thus having a huge negative impact on her life. She's been trying so many different remedies but so far only magnesium oil seems to help a little.

Please take a look around and also post a note telling us about the things that you have tried. Most of us have found combinations of treatments that work for us, so we may be able to suggest something to try that will help improve your RLS.