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Welcome mityqwik
Posted: Tue Nov 27, 2018 10:21 am
by Polar Bear
27 November 2018
Welcome today to:
mityqwik - who was diagnosed with rls in 2003 and it has gotten worse. Now searching for help or gain some more insight as to different treatments out there
Please do look at our Just Joined Forum - A Good Place to Start. Are you taking medication?? Please post and tell how how you have coped to date, we will try to help.
Welcome Deblet98
Posted: Tue Nov 27, 2018 10:32 am
by Polar Bear
27th November 2018
Welcome today to:
Deblet98 - who has been on various dopamine drugs for 10 years and was starting to experience argumentation again. Dr took her off drugs and said there was nothing else to provide and Deblet would have to wait 3 months to see a specialist. then a further six months to see another specialist. Now in agony for over five years, the rls is severe now, going off the dopamine in the way she did has left Deblet with nerve damage. She can hardly leave the house and has severe foot pain ( now living on oxycodone, mexiletine, clonazepam and repinex. Just wants some kind of life back
Please make a post telling us about your treatment to date and how you are now coping. There is nearly always something else to try, sometimes a cocktail of various suitable drugs. We want to help but need to do so on a thread.
Welcome to Gayle
Posted: Wed Nov 28, 2018 10:45 am
by Polar Bear
28 November 2018
Welcome to
Gayle - who has suffered with RLS for so many years and it seems to be spiraling out of control now, She needs new ideas, information, and support from others living the nightmare.
There will be information in the Just Joined Forum - Managing your RLS. Please do post and tell us of your rls treatments, what has or has not worked for you. We would hope to be able to help you. Everyone here understands.
Welcome to sculler
Posted: Wed Nov 28, 2018 5:10 pm
by Rustsmith
Wednesday, November 28
Welcome to
sculler, who has been suffering with RLS for 12+ yrs. After years of various limited success drug attempts with his sleep disorder physician and RLS specialist, methadone granted him the best relief, sleeping well and remaining athletically active. Recently due to a trip out of state and the differing dispensing laws for controlled substances, he was without the methadone for 3 days. The RLS symptoms returned with a vengeance. He had never had such pain. This event brought him to the Foundation site and this message board.
Sorry that you had to go through this experience, but running out of meds for a short time is one that many of us have had. Please post a note telling us more about your treatments and asking any questions that you have.
Welcome to thomastami10
Posted: Fri Nov 30, 2018 3:03 pm
by Rustsmith
Friday, November 30
Welcome to
thomastami10, who would like to talk with and ask advice and also share his RLS journey with others who have the same disease.
We look forward to hearing from you. You might start with a message telling us a bit about what you are currently using for your RLS.
Welcome to gerogeconnell
Posted: Fri Nov 30, 2018 3:06 pm
by Rustsmith
Friday, November 30
Welcome to
georgeconnell, whose RLS symptoms have increased in frequency and intensity over last few months. His Dr. claims the problem is due to apnea. He disagrees.
If you are taking a dopamine agonist, it is possible that you are experiencing augmentation. So, please post a note telling us about your current RLS treatment so that we can offer some suggestions.