JANUARY 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Becky Miller

Postby Rustsmith » Sun Jan 27, 2019 3:22 pm

Sunday, January 27

Welcome to

Becky Miller, whose RLS is effecting sleep which causes her fatigue, anxiety and depression. Lack of sleep is causing her to be moody effecting her relationship with others.

Please post a note telling us what you are doing to treat your RLS so that we can offer some suggestions for improving your relationships.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to G4grace

Postby Rustsmith » Sun Jan 27, 2019 3:25 pm

Sunday, January 27

Welcome to

G4grace, who has RLS affecting both legs and arms (more frequently the right side) as a result of a severe case of peripheral polyneuropathy back in the early 1980’s. It greatly disrupts the sleep cycle. Rarely does G4grace ever feel rested.

Please post a note telling us what you are taking for your RLS and neuropathy. We may be able to offer some suggestions to discuss with your doctor for improving your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Cchahal

Postby Rustsmith » Wed Jan 30, 2019 8:35 pm

Wednesday, January 30

Welcome to

Cchahal, whose RLS has made it uncomfortable watching a movie or going to the theatre or flying.

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have. We may be able to make some suggestions that would help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to muddauber

Postby Rustsmith » Wed Jan 30, 2019 8:38 pm

Wednesday, January 30

Welcome to

muddauber, who has had RLS for many years. It has gotten worse gradually. He has been on medication for 15+ years and everything he has taken gradually becomes less effective, but his neurologist keeps him on the old stuff. He worries about cumulative affects and is looking for options.

If you will post a note telling us about the meds and doses that your neurologist has had you taking, we can probably offer some suggestions to discuss with your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7552
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: JANUARY 2019 - New Members

Postby Polar Bear » Thu Jan 31, 2019 2:37 pm

30 January 2019

Welcome today to

Scott - who has been suffering from rls since he was early 40s. Now he is 55. The medicine prescribed is slowly not working anymore.
This is his 3rd night back to back not sleeping...

We all understand how difficult it is, the medications, the lack of sleep. Please make a post and tell us what you are doing at present to cope, we are here to try and help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to GJocoehn

Postby Rustsmith » Thu Jan 31, 2019 9:09 pm

Thursday, January 31

Welcome to

GJocoehn, whose RLS has ruined most of her adult life, lack of sleep for the last forty plus years has been just awful, the pain and aches of legs from late afternoon to 4 or 5 am day and night after day and night is mind numbing hell. She has tried several Doctors who just don't believe her or just don't care. With the advent of the internet in the late 1980's she has gotten more information than from any Doctor, not much help and no cure but some treatment ideas. She won't do it, but now knows why some people commit suicide, the thought of one more night without sleep due to RLS just might be worth the end of all the torment. Just a thought but if it ain't happened yet it probably won't.

Please post a note telling us about your current (and past) treatments. We can offer some suggestions, including how to find a doctor who not only believes, but can also provide help. It might require a bit of travel, but it would be worth it. And, you are not alone in all of this. Almost all of us have been were you are today.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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