FEBRUARY 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

FEBRUARY 2019 - New Members

Postby Rustsmith » Fri Feb 01, 2019 2:32 pm

Friday, February 1

Welcome to

Lukeman, who wants to join to participate in the discussion and wants to get answers. Also to try to help others with his knowledge.

Please post a note telling us about what you do to manage your RLS and asking those questions. We would love to be able to help you out and hear what you can add to our discussions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to nchouston

Postby Rustsmith » Sat Feb 02, 2019 7:30 pm

Saturday, February 2

Welcome to

nchouston, whose RLS has affected life with difficulties with sleep. Augmentation has been tough with needing to take medication earlier and new nausea symptoms are very rough.

Please post a note telling us about your treatment now that you have experienced augmentation and feel free to ask any questions that you have. Many of us have been where you are and would be happy to share our experiences with getting through it.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7635
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome Fefeki53

Postby Polar Bear » Tue Feb 05, 2019 12:29 pm

5th February 2019

Welcome to:

Fefeki53 - who was diagnosed with RLS 5 years ago. With medication, it was under controlled. Six months ago Fefeki53 was treated in the ER diagnosed with augmentation which is very debilitating. After being on RLS medication Fefeki53 is having compulsive behaviors.

If you read our Augmentation Forum there is a great deal of relevant information. Please post and tell us about your medication regime so that we may try to make good suggestions for progress.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ys3369

Postby Rustsmith » Tue Feb 05, 2019 3:24 pm

Tuesday, February 5

Welcome to

ys3369, whose RLS has made his life very poor. He can't have a glass of wine, go to a movie or take a daytime nap without the RLS kicking in. He has also put off getting a lumbar injection for a back problem because he is afraid that the steroid medication will really aggravate the RLS.

Please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have, such as the effects of steroids on RLS. We would be happy to provide you with comments and hopefully answers to any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Techtrooper

Postby Rustsmith » Tue Feb 05, 2019 9:00 pm

Tuesday, February 5

Welcome to

Techtrooper, whose RLS has brought misery and aggravation to his life. It is now a constant reminder that saps away at his enjoyment, relaxation moments and sleep. Many decisions that he makes have to take RLS into consideration.

Please post a note telling us what you are doing to manage your RLS symptoms. We may be able to offer some suggestions for improvement.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to nrpardee

Postby Rustsmith » Wed Feb 06, 2019 4:15 am

Tuesday, February 5

Welcome to

nrpardee, who has had RLS symptoms the last several years, starting around age 60. nrpardee's particular version doesn't cause movement, but sensation that causes insomnia or prevents sitting comfortably. Medication helps, but doesn't completely alleviate the symptoms, and insomnia added to RLS makes sleep even more difficult.

One of the criteria for a diagnosis of RLS is that it has to cause a need to move that is relieved by moving around. It doesn't cause movement, but the need to move makes it impossible not to. So, please post a note telling us what you are taking for the symptoms and a bit more about your situation. We may be able to make some suggestions that will be helpful.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to tiff

Postby Rustsmith » Wed Feb 06, 2019 2:16 pm

Wednesday, February 6

Welcome to

tiff, who is really trying to get her RLS under control. She is tired of it controlling her and decreasing her quality of life.

Please post a note telling us a bit about your symptoms and what you are doing to manage your RLS so that we can offer some suggestions to improve your control and your quality of life.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to alankey

Postby Rustsmith » Wed Feb 06, 2019 2:18 pm

Wednesday, February 6

Welcome to

alankey, who feels RLS has changed his life completely. He doesn’t sleep well and it is hard to travel. He never plans anything at night or even early afternoon as he knows he won’t be comfortable.

If you will post a note telling us what you are doing to manage your RLS and asking any questions that you have, we may be able to provide some suggestions to discuss with your doctor for improving your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to P_L

Postby Rustsmith » Wed Feb 06, 2019 2:21 pm

Wednesday, February 6

Welcome to

P_L, whose RLS drives P_L crazy sometimes and many restless nights. P_L would like share what has worked and learn what has worked for others.

Please post a note telling us about what has worked for you so that the rest of us can share our experiences with you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Robinsa

Postby Rustsmith » Wed Feb 06, 2019 2:23 pm

Wednesday, February 6

Welcome to

Robinsa, who has suffered from RLS for over 30years. She takes a lot of medication and still have problems with her legs.

If you will post a note telling us about your current medications, we may be able to give your some suggestions to discuss with your doctor that will help improve the control of your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to serafina298

Postby Rustsmith » Wed Feb 06, 2019 2:25 pm

Wednesday, February 6

Welcome to

serafina298, who is an RLS sufferer and resultant insomniac looking for help!

Please post a note telling us about the meds that you are currently taking for your RLS so that we can hopefully provide you with the help that you need.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MLW

Postby Rustsmith » Wed Feb 06, 2019 2:31 pm

Wednesday, February 6

Welcome to

MLW, whose RLS severely restricts evening social activities as her worst symptoms are from about 3 pm to bedtime where she can’t sit still.

Please post a note telling us about what you are taking for your RLS, we may be able to give your some suggestions to discuss with your doctor that will help improve your control and regain your evening life.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jac2

Postby Rustsmith » Wed Feb 06, 2019 3:12 pm

Wednesday, February 6

Welcome to

jac2, who is always looking for information and says that the best info comes from "the trenches". RLS had ruined her evenings with her husband watching TV, etc. Sitting through a movie, holding her grandkids on her lap.

If you will post a note telling us what you are doing to manage your RLS, we may be able to offer some suggestions from "the trenches" on how to get better control of your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to freddie

Postby Rustsmith » Wed Feb 06, 2019 4:49 pm

Wednesday, February 6

Welcome to

freddie, who has had RLS since 20, now 70 and it has become worse with time. She takes ropinerole which helps a little but not completely. She can't go to meetings, movies or anything where she has to sit for any length of time. It ws wearing out her joints which in turn means difficulty enjoying life in general and her grandchildren especially. Would love a good nights sleep!! and even a comfortable day. She have tried everything anyone has ever suggested.

If you will post a note telling us about your current dose of ropinirole, we may be able to suggest some things to discuss with your doctor that may be able to improve your situation with sleep and quality of life.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4202
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Kimmerj

Postby Rustsmith » Wed Feb 06, 2019 7:40 pm

Wednesday, February 6

Welcome to

Kimmerj, who has had RLS for most of her life. Although the medications help, the side effects are unpleasant. Every aspect of life is affected.

Please post a note telling us about the medications that you have tried. We may be able to offer some suggestions for something else that would not have the side effects that you have experienced.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


Return to “Just Joined?”

Who is online

Users browsing this forum: No registered users and 2 guests