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Welcome to He1ena

Posted: Thu Feb 07, 2019 8:17 am
by ViewsAskew
Thursday, Feb 7th, our newest member is He1ena. He1ena has been in a very rough patch for a few months; no sleep at all in the last 48 hours!

So sorry you are having such a difficult time, He1ena! Hope that you can find some help here. Please do start a new post and let us know about your situation and what you have tried (if anything).

Welcome to BookmanJoe

Posted: Thu Feb 07, 2019 8:22 am
by ViewsAskew
Thursday, Feb 7th, we also welcome BookmanJoe. BookmanJoe has always had RLS, but it's gotten worse the last few years.

It often does get worse as we age. But, other things can cause that and should be looked into. Poke around if you like, or post a new topic in one of the forums and let us know about what is going on in your RLS life as well as ask any questions you have.

Welcome to Shermccormick

Posted: Fri Feb 08, 2019 3:50 am
by Rustsmith
Thursday, February 7

Welcome to

Shermccormick, whose RLS has been a source of many sleepless, awful nights. It’s frustrating to find a health provider that understands. And once she did, the government has decided they know best about her disease. Very frustrating right now.

Please post a note telling us what you are currently doing to manage your RLS and how the government has intruded on the doctor-patient relationship. We may be able to give you some suggestions if we know more.

Welcome to creepycrawly

Posted: Fri Feb 08, 2019 3:52 am
by Rustsmith
Thursday, February 7

Welcome to

creepycrawly, who RLS is awful and runs life. creepycrawly wants to find tips, share learnings and recently got off Ropinirole.

If you will post a note telling us a bit about what you are doing to manage, we would be happy to start sharing with you.

Welcome to Knowmore

Posted: Sun Feb 10, 2019 2:54 pm
by Rustsmith
Sunday, February 10

Welcome to

Knowmore, who is here to learn for family friend.

Please post a note asking whatever questions that you have so that we can hopefully provide the answers that you seek.

Welcome to MarianneK

Posted: Mon Feb 11, 2019 3:55 am
by Rustsmith
Sunday, February 10

Welcome to

MarianneK, whose RLS has been a difficulty for years but lately it’s been unbearable. She needs some relief and hopefully will find information here.

You have come to the right place for information on RLS. If you will post a note telling us what you have been doing to manage and asking any questions that you have, we will do our best to help you out.

Welcome to BruceWiebe47

Posted: Mon Feb 11, 2019 2:48 pm
by Rustsmith
Monday, February 11

Welcome to

BruceWiebe47, who has RLS and wants to know about meds he is taking. And he can't sleep well.

If you will post a note telling us about the meds and asking any other questions that you have, we should be able to answer your questions.

Welcome to Didjit

Posted: Tue Feb 12, 2019 2:31 pm
by Rustsmith
Tuesday, February 11

Welcome to

Didjit, who has had RLS since adolescence, 40+ years along with PLMD and REMD. Very little medication has any effect and then only partially treats it part of the time. The difficulty with sleep has ruined memory, limits energy, and as a result it undermines Didjit's reputation. It's soul draining. And that's just the lack of sleep part. Then there's the discomfort, anxiety as bedtime approaches and anxiety about flying.

Please post a note telling us about the medications that you have tried. We may be able to offer suggestions to help out out and to get better sleep.

Welcome to goberland

Posted: Tue Feb 12, 2019 10:04 pm
by Rustsmith
Tuesday, February 11

Welcome to

goberland, who had struggled with RLS for most of goberland's adult life. goberland is currently in the process of switching from one dopamine agonist medication to another. It is not going well and therefore is eager to get input from other RLS sufferers.

Please post a note telling us which dopamine agonists that you have/are using and whether the reason to switch was due to augmentation on the old one. That way we can offer you some specific guidance and suggestions about how to proceed from here.

Wlcome to - Csherkel

Posted: Wed Feb 13, 2019 2:46 pm
by Polar Bear
13 February 2019

Welcome to:

Csherkel - sho says that controls his/her life. Csherkel works full time, exercises almost daily don’t do drugs. Health is good but rls ruins so many activities and most sleep every single day.

Please post and tell us how you have been coping with your rls symptoms, are you taking medications, what are you taking. Give us some rls history and we will try to help.

Welcome to redshoes

Posted: Thu Feb 14, 2019 3:02 am
by Rustsmith
Wednesday, February 13

Welcome to

redshoes, has had RLS for decades and has been on 2.5 ropinirole for over 15 yrs. Before medication, she would wake her husband by kicking. Terrible sleep. Even with medication, she avoids all evening activity, concerts, theater, performances, because of needing to kick the seat in front of her if unmedicated, and instant sleep if medicated. Air travel is extremely restricted. She is now experiencing augmentation and is trying to switch to Neupro.

If you will post a note telling us about your augmentation and the Neupro dose you are moving to, we can probably offer you comments on our experience when in similar situations.

Welcome to helvio34

Posted: Thu Feb 14, 2019 8:29 pm
by Rustsmith
Thursday, February 14

Welcome to

helvio34, who has been suffering with RLS for a long time, in fact a lifetime, and has been using a lot of medical treatments.

If you will post a note telling us about your symptoms and your current treatments, we may be able to provide some suggestions for improvement. And feel free to ask any questions that you have.

Welcome to Carmax17

Posted: Thu Feb 14, 2019 11:48 pm
by Rustsmith
Thursday, February 14

Welcome to

Carmax17, whose chronic RLS has made life miserable. It has resulted in major depression along with other factors.

Please post a note telling us what you are currently doing to manage your RLS and depression so that we can offer some suggestions for improving your situation.

Welcome to dickandjane

Posted: Fri Feb 15, 2019 3:11 pm
by Rustsmith
Friday, February 15

Welcome to

dickandjane, who can't sit through theatre, fly on planes, or even relax at home for more than an hour without constantly moving legs. dickandjane doesn't have problems at night, but in experiencing the above, drives everyone me nuts with all the squirming.

Please post a note telling us if you are taking anything for your RLS so that we can offer you some suggestions that may help you reduce the motions.

Welcome to beachGolfer

Posted: Fri Feb 15, 2019 3:14 pm
by Rustsmith
Friday, February 15

Welcome to

BeachGolfer, who feels that RLS has taken over her life though, thankfully, she only has symptoms at night. She is currently weaning from Mirapex with the use of Percocet. Fortunately, she has a very supportive neurologist and husband.

You are very lucky to have the support and the Percocet during this phase of your RLS. Please post a note telling us about your neurologist's plans for what you are going to do to manage your RLS once you have transitioned off of Mirapex.