MARCH 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

MARCH 2019 - New Members

Postby Rustsmith » Sat Mar 02, 2019 2:25 am

Friday, March 1

Welcome to

Tom, whose wife has RLS because of anti-psychotics.

Please post a note telling us about her meds and if she is currently being treated for RLS. And feel free to ask any questions that you have. There is hope, but it may take a little bit of educating her doctors to make progress.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Twinklb

Postby Rustsmith » Sat Mar 02, 2019 10:55 pm

Saturday, March 2

Welcome to

Twinklb, who has RLS and her daughters also have it. It is managed right now with gabapentin. She just wants to stay informed of things related to RLS.

You have come to the right place to stay informed, and congrats on managing it with gabapentin. If you have any questions, feel free to ask. And you might want to check out the VERY long thread on Research in the General Topics forum to find out what has been going on recently.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Burroughts

Postby Rustsmith » Sun Mar 03, 2019 7:12 pm

Sunday, March 3

Welcome to

Burroughs, whose RLS has made life miserable. The terrible sensations make Burroughs have to get up and move to get relief without medication. It has been a miserable condition that has gone on for years.

Please post a note telling us about your medication and how well it is working. We would love to be able to offer some suggestions for improvement.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to DKDUTTA3M

Postby Rustsmith » Mon Mar 04, 2019 1:59 pm

Monday, March 4

Welcome to

DKDUTTA3M, who has been suffering a lot ....started taking medicine...augmentation of medicine occured during last 4 months.

Please post a note telling us about the medication you have been taking and the dose. And take a look at the information in our Augmentation forum to learn about what you can expect to happen next. Many of us have been where you are now.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Broncoman96

Postby Rustsmith » Tue Mar 05, 2019 3:47 am

Monday, March 4

Welcome to

Broncoman96, who is trying to learn more about RLSs in order to improve his sleep and quality of life. He has some questions he'd like to ask others.

Post a note asking as many questions as you like. Hopefully we have the information that you seek.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to DRae

Postby Rustsmith » Tue Mar 05, 2019 2:45 pm

Tuesday, March 5

Welcome to

DRae, who was awake because of RLS and is looking for ideas and help for a better quality of life.

Please post a note telling us what you are currently doing to manage your RLS so that we can offer you some suggestions to improve both your sleep and quality of life.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to mollym

Postby Rustsmith » Tue Mar 05, 2019 2:51 pm

Tuesday, March 5

Welcome to

mollym, who has had RLS for what seems like her entire life. She is currently trying to switch medications and it’s not going well. Her nights are miserable. RLS feels like a very lonely condition.

Please post a note telling us about those medications and your doses so that we can offer you our suggestions. Many of us have been in your situation, so we can appreciate what you are going through.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to utzlee

Postby Rustsmith » Tue Mar 05, 2019 9:35 pm

Tuesday, March 5

Welcome to

utzlee, who is going on 12 years of RLS. This condition has often robbed utzlee of the simple pleasure of relaxation. Fortunately, the symptoms are not always present but the disease does appear to be progressing.

Unfortunately you are correct that RLS often is a progressive condition that worsens with age. Please post a note telling us what you are currently doing to manage the symptoms and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Gdzgo4

Postby Rustsmith » Tue Mar 05, 2019 10:27 pm

Tuesday, March 5

Welcome to

Gdzgo4, whose RLS, which is moderate to severe, can be embarrassing when in public her legs start hopping. Even standing, sometimes one leg will paw the ground like a horse. When she cannot sit or lie down, whether for an afternoon nap or at 3 AM and she is exhausted, sometimes she has become suicidal. Certainly it causes great anxiety and distress.

Sounds very familiar! Please post a note telling us about what you are doing to manage your RLS so that we can offer you some suggestions to discuss with your doctor for improving your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Pamela

Postby Rustsmith » Tue Mar 05, 2019 10:31 pm

Tuesday, March 5

Welcome to

Pamela, who has suffered from RLS since her early twenties. She is always searching for information and guidance on how to manage my RLS and stay sane.

Take a look around, especially at the Published Research thread in the General Topics forum for loads of information. And if you will post a note telling us a bit about your RLS, how you are managing the symptoms and/or asking any questions that you have, we should be able to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dm23

Postby Rustsmith » Tue Mar 05, 2019 10:50 pm

Tuesday, March 5

Welcome to

dm23, who has had RLS for almost 50 years and have been using the RLS newsletter and webinars for a few years but would also like to start using the discussion board to exchange directly with other RLS people.

Now you are on the board, so please post a note to introduce yourself and tell us what you are currently doing to manage your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to sophiegirl4657

Postby Rustsmith » Tue Mar 05, 2019 10:54 pm

Tuesday, March 5

Welcome to

sophiegirl4657, who has had RLS for over 25 years and now is 65 and her RLS is getting worse. She is trying to find out everything she can about medications and natural resources. Everyday she has to think ahead of what she will be doing for the day, so she doesn't have a problem.

If you will post a note telling us about your medications, we may be able to suggest some things to discuss with your doctor. And yes, RLS gets seems to get worse as we get older.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Monet

Postby Rustsmith » Tue Mar 05, 2019 10:56 pm

Tuesday, March 5

Welcome to

Monet, who is not getting adequate sleep and is concerned about flying long distances.

Please post a note telling us about your medications so that we can offer some suggestions. As for flying long distances, we can offer a number of suggestions that should make that less stressful as well.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to freeneazy

Postby Rustsmith » Tue Mar 05, 2019 11:41 pm

Tuesday, March 5

Welcome to

freeneazy, whose RLS is accompanied by Neuropathy and has been at the center of life for the past 15 years. freeneazy takes Mirapex and Gabapentin which usually works well.

Please feel free to post a note with any questions that you have. We would love to be able to help you learn more.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3868
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Gabennett

Postby Rustsmith » Wed Mar 06, 2019 12:28 am

Tuesday, March 5

Welcome to

Gabennett, who has has RLS for 20 year and is always looking for more knowledge and thinks a group like this would be very beneficial.

We can definitely help you out when it comes to info on RLS. Please post a note telling us a bit about what you are doing to manage yours and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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