MARCH 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Humorbased

Postby Rustsmith » Wed Mar 06, 2019 12:45 am

Tuesday, March 5

Welcome to

Humorbased, whose RLS generally dominates life. Whether it's a new medication, side effects of that medication or driving 6 hours round trip to see a Dr. who understands RLS.

Been there, done that. Many of us have been in exactly your situation. Please post a note telling us about your current RLS treatment(s) and asking any questions that you have. And feel free to jump into any of our ongoing discussions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to fritzy

Postby Rustsmith » Wed Mar 06, 2019 4:16 am

Tuesday, March 5

Welcome to

fritzy, who has had to be proactive and research RLS in order to find different ways to help relieve symptoms. There have been many nights with no sleep. fritzy has used the Relaxis pad, purchased a meditation device called UNYTE and is now on the Nupro patch, and finally off Mirapex.

Take a look around to get an idea of the types of topics that we discuss and feel free to jump in and add your comments.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Laurilei7

Postby Rustsmith » Wed Mar 06, 2019 4:18 am

Tuesday, March 5

Welcome to

Laurilei7, who would like to know others with RLS and see how they handle it.

This is definitely the right place to do that. Please post a note telling us about how you manage your RLS and asking any questions that you have. And feel free to join any of our ongoing discussions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to CherylQ

Postby Rustsmith » Wed Mar 06, 2019 4:20 am

Tuesday, March 5

Welcome to

CherylQ, who has suffered from RLS for years and would love to be part of a community of others who deal with life with RLS.

Please post a note telling us about your RLS and what you do to manage it. And feel free to join any of our discussions or ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Fadedrose

Postby Rustsmith » Wed Mar 06, 2019 2:50 pm

Wednesday, March 6

Welcome to

Fadedrose, who is sleep deprived and sluggish mentally and physically. On the rare nights she does get enough sleep she is a different person the next day.

Please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions to make those good nights the norm rather than the exception.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Tan

Postby Rustsmith » Wed Mar 06, 2019 2:52 pm

Wednesday, March 6

Welcome to

Tan, who says having RLS is depressing! Tan is not able to take long road trips anymore, sit through a movie, etc.. Taking Requip helps but has made symptoms start earlier in day and symptoms are now daily instead of weekly!

Your description of your symptoms sounds like you are starting to augment on Requip. This is something many doctors are not familiar with. If you look through the posts on our Augmentation forum, you should be able to learn more about it.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to LessRest38

Postby Rustsmith » Wed Mar 06, 2019 2:55 pm

Wednesday, March 6

Welcome to

LessRest38, whose RLS it isn't continuous, but it is with him every day. He needs to consider what to expect in planning what he is going to do and how his legs will affect his activities.

Although we can all appreciate your situation, if you will post a note telling us what you take to manage your RLS symptoms, we should be able to offer some suggestions to make them less of a problem.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jeragan

Postby Rustsmith » Wed Mar 06, 2019 10:16 pm

Wednesday, March 6

Welcome to

jeragan, who has had RLS for almost 60 years and is always interested in new meds and experiments.

Please post a note telling us about what meds you have tried so that we can suggest something new. And take a look at the Published Research topic in our General Topics forum to get an idea of what recent research has been published.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dmooresatx

Postby Rustsmith » Wed Mar 06, 2019 11:29 pm

Wednesday, March 6

Welcome to

dmooresatx, who was trying to get off of opioids and starting experiencing RLS while coming off. dmooresatx had to continue taking opioiods (much less) to keep it at bay.

Sorry you have to find us, but glad that you did. Please post a note asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Sherry1818

Postby Rustsmith » Thu Mar 07, 2019 2:18 pm

Thursday, March 7

Welcome to

Sherry1818, who can’t sleep. She quit her job over it because she was just too tired and couldn’t concentrate. Her family thinks she is crazy or just moving more will help. She is at her whits end.

We don't think that you are crazy because we have all been there. Please post a note telling us what you are currently doing to manage your RLS so that we can offer you some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to cbeagle

Postby Rustsmith » Thu Mar 07, 2019 2:21 pm

Thursday, March 7

Welcome to

cbeagle, who has had RLS since surviving bacterial meningitis in the 1970s. cbeagle has severe arthritis in the knees and is having a full replacement today. The combination is just agony. cbeagle requires massive drugs to sleep, and still rarely sleep more than five hours. RLS is a heinous issue.

Please post a note telling us about the medications that you are using so that we can offer some suggestions to discuss with your doctor for improving you RLS. And we hope that your operation today went well.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jairalhill

Postby Rustsmith » Thu Mar 07, 2019 11:38 pm

Thursday, March 7

Welcome to

jairalhill, who says it is just helpful to know how RLS affects other people. And her son has it, too, so she wants to learn as much as possible.

Please post a note telling us what you and your son are doing to manage your RLS. And take a look at our Special Populations forum to get an idea of how others have handled RLS in their children.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to tessnelson

Postby Rustsmith » Fri Mar 08, 2019 2:30 pm

Friday, March 8

Welcome to

tessnelson, who most often has to stand at the back of a movie or live theater event. There are times when she has been up walking all night. Sometimes she has to get up and walk or squat while watching t.v. Often it is difficult to sleep. She tas medicine for it every night and has high anxiety if she is out and forgot to bring it (she now carries the meds in her wallet).

Please post a note telling us about your meds, including the dose, and asking any questions that you have so that we can offer some comments that might help with the management of your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MrsLessels

Postby Rustsmith » Fri Mar 08, 2019 11:51 pm

Friday, March 8

Welcome to

MrsLessels, who has had RLS since 2005 and is always looking for new information and ideas.

Please post a note telling us what you are doing to manage your RLS so that we can offer some new ideas for you to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4033
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to sandakernes

Postby Rustsmith » Sat Mar 09, 2019 11:32 pm

Saturday, March 9

Welcome to

sandakernes, who has had RLS for over 18 years. It effects all aspects of her life. She is currently experiencing breakthrough symptoms on the medicine that was working for 4 years. It's devastating. Daily struggles and so hard to find a doctor that can treat it properly.

Please post a note telling us about what you are currently taking and the dose. We may be able to suggest an alternative that would work better so that you can propose it to your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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