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Welcome to Gatita42676

Posted: Thu Mar 14, 2019 1:20 pm
by Rustsmith
Thursday, March 14

Welcome to

Gatita42686, who has had RLS since childhood, every year it gets worse (42 now). If Gatitia can't or fails to take meds for this aggravating condition, Gatita feels as if would rather die because it is means being constantly up, moving around, with no sleep, and the worst time is driving! It gets so excruciating that Gatita cries in agony, wanting to just get out and start walking!!!

We have all been there and understand, so you are not alone in this. Please post a note telling us about your meds. We may be able to offer some suggestions to gain better control, or at least for how to better remember to take your meds on time.

Welcome to bon2beez

Posted: Fri Mar 15, 2019 12:30 pm
by Polar Bear
15th March 2019

Welcome today to:

bon2beez - who can't sleep and this affects day time life. bon2beez now dreads night time.

We understand very well how you feel and how night time can be a misery. Please post and tell us how your RLS is treated and how your symptoms are, we would like to try and help.

Welcome to Karyn

Posted: Fri Mar 15, 2019 12:55 pm
by Polar Bear
15th March 2019

Welcome today to

Karyn - who would like to educate herself further on Rls which she has had for many years and is now augmenting on current meds. Karyn would like some professional opinions on this please.

Karyn, This is a discussion board and we try to help. We are made up of Volunteer Moderators and many sufferers of RLS. We cannot provide professional opinions but if you make a post on the Just Joined Forum we will do our best to help using our experiences. Please post and tell us of your RLS history, and your treatment, medications and dosages.

Welcome to Sixia

Posted: Fri Mar 15, 2019 12:59 pm
by Polar Bear
15 March 2019

Welcome to Sixia - who has suffered rls for as long as can be remember, Sixia is now 65 years old.

Welcome to the dicussion board, you will find a lot of very useful information. Please post and tell us about your RLS and your medication/dosages. We are all RLS suffers and will try to help.

Welcome to Kittyjane

Posted: Fri Mar 15, 2019 2:08 pm
by Rustsmith
Friday. March 15

Welcome to

Kittyjane, whose RLS has gotten worse with age at the age of 70, she seldom has a peaceful night. In addition, she has lupus, peripheral neuropathy and adult acquired spinal deformity. Hoping to gain more insight into this disease.

We can definitely provide you with that insight. Please post a note telling us what you are taking for your RLS so that we can offer you some suggestions on how to get a better night's sleep.

Welcome to lbpederson

Posted: Fri Mar 15, 2019 10:55 pm
by Rustsmith
Friday, March 15

Welcome to

lbpederson, whose 8 year old son was diagnosed with RLS and PLMD at the age of 6. They have struggled with different treatments and have had very little success, even after transferring him to the Mayo Clinic. The sleep deprivation and pain from the RLS has disrupted his development both academically and socially. Every day is a struggle. Desperate to find and connect with other families with young children who have RLS.

Please take a look through our Special Populations forum to get an idea of what other parents have done. You should also call the RLS Foundation office in Austin, TX. Not only do they have a number of documents specific to pediatric RLS, but the Executive Director's daughter (now grown) was diagnosed with RLS at about the same age. I am certain that Karla would want to talk with you about what can be done to help your son.

Welcome to philoff

Posted: Sat Mar 16, 2019 10:11 pm
by Rustsmith
Saturday, March 16

Welcome to

philoff, who has increasingly gotten worse over the past 25 years and is still hoping for answers that do not involve drugs.

Take a look at our forums on Physical Treatments and Non-prescription meds to get an idea of the limited number of things that work and of the much longer list of things that do not. And please post a note telling us a bit about your RLS so that we can offer other suggestions or comments.

Welcome to jej345

Posted: Sun Mar 17, 2019 12:18 am
by Rustsmith
Saturday, March 16

Welcome to

jej345, whose RLS prevented a good night's sleep. That, in turn, exacerbated depression/anxiety issues during the daytime.

Please post a note telling us what you are doing to manage your RLS so that we can offer you some suggestions for improving your control and getting a good night's sleep.

Welcome to TRCSr39

Posted: Sun Mar 17, 2019 12:21 am
by Rustsmith
Saturday, March 16

Welcome to

TRCSr39, whose RLS is causing Sleep problems and restlessness while being seated for a length of time like watching TV or working on the computer.

Please post a note telling us about your RLS treatment(s) and asking any questions that you have so that we can try to help you out.

Welcome to Werbers

Posted: Sun Mar 17, 2019 3:05 am
by Rustsmith
Saturday, March 16

Welcome to

Werbers, who is 68 years old and has had RLS in various degrees of severity for a long time. It has been particularly bad since about 1990. Werbers has take Tramadol 100mg daily and Oxycodone 10mg daily since about 1995 and took ropinorole for a couple of years and dealt with augmentation from that. Werbers is currently dealing with augmentation from tramadol. About week 4 now and is finally getting over it. Werbers much appreciates all of the resources the Foundation provides and looks forward to this board.

Please post a note telling us a bit about your Tramadol augmentation experience since it isn't something that occurs with great frequency. We would love to learn from you and look forward to being able to help you out as well.

Welcome to Quercus

Posted: Sun Mar 17, 2019 10:39 am
by Polar Bear
17th March 2019

Welcome to:

Quercus -who has suffered from RLS on and off for over 25 years. For the last 6 years, it has been fairly well-controlled with Mirapex but now symptoms are breaking through at least twice a day. Sleep is difficult and it's sometimes very hard to keep a positive attitude.

Please do post and tell us about your rls and your medication treatment. We are here to understand and to try to help.

Welcome to Quercus

Posted: Sun Mar 17, 2019 1:56 pm
by Rustsmith
Sunday, March 17

Welcome to

Quercus, who has suffered from RLS on and off for over 25 years. For the last 6 years, it has been fairly well-controlled with Mirapex but now symptoms are breaking through at least twice a day. At night, sometimes Quercus can't sleep and the next day is horrible trying to function with a sleep-deprived brain. Furthermore, the sensations are so unpleasant and so hard to control that it's sometimes very hard to keep a positive attitude.

It sounds like you may be going through augmentation from the Mirapex. Take a look through our forum on Augmentation to get more info on the subject. And please post a note telling us about your dose so that we can offer you some suggestions for addressing the problem.

Welcome to colleen116

Posted: Mon Mar 18, 2019 12:32 am
by Rustsmith
Sunday, March 17

Welcome to

colleen116, who has had RLS for over 20 years and has been on meds for most of that time. She has been on all the typical meds, augmented and had impulse control issues on dopamine agonists and is now on low dose opioids. She loves the work the RLS Foundation does and is always looking for new things on the horizon to treat her RLS.

Since you are interested in new things, take a look at the Published Research thread in our General Topics forum. It is quite long, so you may want to skip to the end and work backwards. And feel free to jump into any of our ongoing discussions. We can always use a fresh point of view as well as someone else's experiences.

Welcome to PaulBenn

Posted: Mon Mar 18, 2019 3:01 pm
by Rustsmith
Monday, March 18

Welcome to

PaulBenn, whose RLS is causing sleep disruption, limited social activities, and painful leg movements.

That pretty much describes what it does to all of us. If you post a note telling us about your meds, including the dose, we may be able to offer you some suggestions for improving control of your RLS.

WELCOME TO WKG

Posted: Mon Mar 18, 2019 9:27 pm
by ViewsAskew
Monday, 18 of March -

Welcome to WKG, who cannot remember life without RLS. As with many of us, sleep and sleeping arrangements have been impacted.


We can all relate to that! If you want, poke around yourself, or introduce yourself by starting a new post. Either way, welcome.