MARCH 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
ViewsAskew
Moderator
Posts: 15765
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

WELCOME to goodolfin

Postby ViewsAskew » Mon Mar 18, 2019 9:31 pm

Monay, 18 of March -

Welcome to goodolfin, who has had mild rls for many years. After an virus, it has become much worse, so goodofin is looking to learn more about RLS.

Many of us have an event that caused a worsening. Interesting that yours was a virus. Please start a new topic and let us know more about it; we cannot promise we can help, but we certainly will try!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4129
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Bunkiegal

Postby Rustsmith » Tue Mar 19, 2019 10:34 am

Tuesday, March 19

Welcome to

Bunkiegal, whose RLS is effected her ability to sleep and function the next day. It’s progressively getting worse.

Unfortunately, RLS tends to get worse with age. Please post a note telling us what you are doing to manage your RLS so that we can try to give you some suggestions for improvement.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4129
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Ian Foster

Postby Rustsmith » Tue Mar 19, 2019 5:25 pm

Tuesday, March 19

Welcome to

Ian Foster, who has RLS and would like to hear more about what is working for others; augmentation; new research; etc

Take a look around to see if you can find some of the answers that you seek and then please post a note telling us about what you are doing to manage and asking any questions that you have so that we can try to fill in any holes that you have in your understanding.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4129
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Sue-Q

Postby Rustsmith » Tue Mar 19, 2019 8:50 pm

Tuesday, March 19

Welcome to

Sue-Q, who says that there are very few things that RLS does not effect. She has had RLS for about 40 years.

Please post a note telling us what you do to manage your RLS after 40 yrs and asking any questions that you have. We look forward to helping you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4129
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcomet to madigan

Postby Rustsmith » Wed Mar 20, 2019 1:58 am

Tuesday, March 19

Welcome to

madigan, whose life revolves around her legs 24/7. Will she sleep? Can she sit long enough to watch a TV show? Will the 4 hour drive to visit grandchildren be torture? When will her next augmentation start? Every activity depends on how she is feeling at that moment.

Please post a note telling us how you manage your RLS. We can probably offer some suggestions for improvement.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4129
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to bethkickit

Postby Rustsmith » Wed Mar 20, 2019 10:32 am

Wednesday, March 20

Welcome to

bethkickit, who has struggled with RLS for many years. Recently she experienced augmentation while taking mirapex. RLS has affected her ability to achieve adequate sleep. She is often very tired and this affects her ability to work and participate in activities that she enjoys.

Please post a note telling us if you have been treated for augmentation and what you are currently taking for your RLS. We should be able to help you out either way.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7593
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Tom Thumb

Postby Polar Bear » Wed Mar 20, 2019 7:12 pm

20th March 2019

Welcome today to:

Tom Thumb - whose wife has RLS. He would like to learn more about the disease and the newest developments in treatment. The physicians locally do not have a good understanding of the illness.

You will find lots of information on the Just Joined Forum - A Good Place to Start. Most of us find that it takes some time to find a doctor with RLS knowledge and often we need to educate them ourselves. Your wife is fortunate that you are understanding of this disease.
Please post and tell us the history and medication used, and feel free to ask questions.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 4129
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to GMG

Postby Rustsmith » Wed Mar 20, 2019 9:09 pm

Wednesday, March 20

Welcome to

GMG, who when an RLS "attacks" occur, it robs him of sleep. He has been taking Mirapex (generic) for several years with very good results. Unfortunately, red wine (which he loves) is a trigger.

Wine in general tends to be a trigger for many. Please post a note telling about your dose and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4129
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Dmagjoe

Postby Rustsmith » Thu Mar 21, 2019 11:38 am

Thursday, March 21

Welcome to

Dmagjoe, who has had RLS his whole life. He remembers as a boy standing next to his bed raising himself on his toes until his calves burned. He was in his 40s before he found out he had a condition called RLS. He has been through augmentation and things are getting worse with age.

Please post a note telling us what you are taking now since you are post-augmentation. We may be able to help you improve things a bit.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4129
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to lbrls123

Postby Rustsmith » Thu Mar 21, 2019 7:13 pm

Thursday, March 21

Welcome to

lbrls123, who is a 68yo male who has had hereditary RLS since childhood. He does not remember a time when he did not have to deal with nightly symptoms. Because his symptoms became worse with age, he was forced to quit his job at age 61 and apply for SS disability. He currently manages his symptoms with opoids but still has to adjust his daily activities because of his symptoms.

Please post a note asking any questions that you have and hopefully we will be able to answer them.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4129
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Sophie

Postby Rustsmith » Thu Mar 21, 2019 7:17 pm

Thursday, March 21

Welcome to

Sophie, who has had RLS over 10 years and has to plan many activities according to her RLS and the timing of her medication. She thinks that augmentation may be starting and would like ideas on the best way forward.

Please post a note telling us about your new symptoms, the med that you are using and the dose, and your ferritin level (if you know it). With that info, we can give you some advice about augmentation as well as the options that you can discuss with your doctor for deciding on your best approach for addressing augmentation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4129
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to gln

Postby Rustsmith » Thu Mar 21, 2019 7:43 pm

Thursday, March 21

Welcome to

gln, who hase suffered with RLS for over 40 years. Recently it has been increasing effecting sleep and making life miserable.

Please post a note telling us what you are doing to manage your RLS so that we can offer you some suggestions for getting more sleep and achieving better control of your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4129
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Lbblues98

Postby Rustsmith » Thu Mar 21, 2019 7:45 pm

Thursday, March 21

Welcome to

Lbblues98, whose RLS is causing lost sleep and pain 24 hours a day, mainly in Lbblues98's legs.

Please post a note telling about what you are doing to manage your RLS so that we will know where to start with our suggestions to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7593
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to tevans19

Postby Polar Bear » Fri Mar 22, 2019 10:06 am

22nd Marach 2019

Welcome to

tevans19 - who hasa severe case of RLS that has been life changing with no help available. tevans19 hopes to connect to others with the same problem and find some help.

Finding good rls help is a challenge for most of us. Please post and tell us how you have been managing your symptoms so far. We want to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 7593
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Timbertom

Postby Polar Bear » Fri Mar 22, 2019 10:10 am

22 March 2019

Welcome today to:

Timbertom - who has suffered from RLS for most of my 71 years. Finally making some progress in the battle and would like to share what has been working for me and see what others have found.

That's a long time to have been coping with your symptoms. We look forward to hearing what has worked for you.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation


Return to “Just Joined?”

Who is online

Users browsing this forum: No registered users and 1 guest