MARCH 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to michellev

Postby Rustsmith » Fri Mar 22, 2019 5:53 pm

Friday, March 22

Welcome to

michellev, who can’t sleep well at night and her RLS affects her daytime alertness.

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have so that we can help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to bae

Postby Rustsmith » Sat Mar 23, 2019 2:34 pm

Saturday, March 23

Welcome to

bae, who has suffered with RLS for at least 20 years. Because of a back injury resulting in surgery, bae's doctors thought symptoms were due to nerve damage related to that. bae is now learning that most of her symptoms are from RLS which her father suffered from horribly for years without treatment. Happy to be learning more about this obnoxious disease and looking forward to new treatments and hopeful for a cure.

Please post a note telling us about your current treatment and how well it is working. We hope that we will be able to help you improve control of your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to karenreich

Postby Rustsmith » Sat Mar 23, 2019 7:20 pm

Saturday, March 23

Welcome to

karenreich, who hasn't been officially diagnosed but wants to learn more about it. She is having trouble sleeping but even more than that has difficulty during the day sitting through a movie or a theatre production or sitting in a car for a prolonged period of time. She thinks the problem is mostly her right leg. She finds that at night she does better sleeping on a hard surface such as the floor.

Sleeping on a hard floor Is not that unusual for those of us with RLS. If you will post a note, we can point you toward even more info about how RLS is diagnosed and can offer you some suggestions on working with your doctor or finding a specialist who is qualified to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7552
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Sunfish

Postby Polar Bear » Sun Mar 24, 2019 11:53 am

24th March 2019

Welcome today to:

Sunfish - who needs help. Her husband has RLS, keeps waking her up, She is exhausted as he refuses to believe he has a problem, says she is the one with a problem because she is a light sleeper. They have changed mattresses. But because his movement can be so violent she is finally sleeping in the guest bedroom.

This goes to show just how RLS can affect partners. Please do make a post in our Just Joined section. Tell us if your husband has been officially diagnosed with RLS. Is he taking any medications and if so what are they? Is your hushand sleeping through this RLS. There is also a condition called PLMS. Please post and we will work through this with you.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to stanmarc

Postby Rustsmith » Mon Mar 25, 2019 2:09 pm

Monday, March 25

Welcome to

stanmarc, whose nighttime sleep is severely disturbed, resulting in many daylight hours lost to compensatory sleep. The condition now amounts to a major disability.

Please post a note telling us what you are doing to manage your RLS and sleep issues so that we can offer our suggestions about how to improve then and reduce you disability.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Skywalker

Postby Rustsmith » Tue Mar 26, 2019 4:23 pm

Tuesday, March 26

Welcome to

Skywalker, who has had RLS since childhood but in seems to have gotten worse lately (Skywalker is over sixty). Sleep has become more difficult and Skywalker seems to have become mildly claustrophobic if confined to small areas (eg. airplanes).

Most of us can relate to issues with airplanes and situations where we cannot get up to walk around. Please post a note telling us if you are taking anything to help manage your RLS. With that info, we should be able to offer you some suggestions for improving the control of you symptoms.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ggmccurts1

Postby Rustsmith » Tue Mar 26, 2019 9:54 pm

Tuesday, March 26

Welcome to

ggmccurts1, who has suffered for 45 years with RLS and it is getting worse with age. This condition would make ggmccurts1 go days without sleep.
And so wants to know what are others doing?

Most of us take one or more meds to keep things relatively under control. If you are not being treated now, we can suggest ways to find a doctor who is knowledgeable about RLS and can therefore help you out. All we ask is that you post a note with your question so that we can provide a customized answer for you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Circe

Postby Rustsmith » Wed Mar 27, 2019 1:30 pm

Wednesday, March 27

Welcome to

Circe, who has had severe RLS for about 6 years now with moderate success of treatment with pramipexiole.

Please post a note telling us why your success has only been moderate and the dose of pramipexole. We may be able to offer some suggestions for improving your control.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Nithyadurai

Postby Rustsmith » Wed Mar 27, 2019 1:33 pm

Wednesday, March 27

Welcome to

Nithyadurai, who has been on tramadol for past 4 years after which she started developing severe restless legs. Nothing is helpful . Her life is so debilitating.

Have you tried something other than Tramadol for your RLS? Tramadol is the only non-dopamine agonist that can cause augmentation, so switching to a different medication might help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to NewYorkTim

Postby Rustsmith » Thu Mar 28, 2019 2:50 pm

Thursday, March 28

Welcome to

NewYorkTim, whose RLS started out mildly annoying but he could tell it was getting worse. (He is male, 67.) He has anecdotal personal evidence of a common prescription medication he has taken that stops his RLS symptoms in a few minutes. He has been using it for several months with regular success. He would like to share his findings with other sufferers.

Please post a note telling us about the medication and the dose. It would be great if you found something new that helps.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Rwise2008

Postby Rustsmith » Sat Mar 30, 2019 8:46 pm

Sunday, March 30

Welcome to

Rwise2008, who has had RLS at least 20 years and at age 71 is experiencing augmentation. Rwise2008 is also noticing onset earlier in the day. As someone who must travel a lot on airplanes, this can be a very painful and stressful situation.

One of the symptoms of augmentation is that your RLS occurs earlier in the day. Before I retired, I used to travel internationally at least once a month, so I fully understand the challenges that you face.

Please post a note telling us about your current medication so that we can offer you some suggestions for improvement.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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