Is this RLS? So confused and need help
Posted: Fri Apr 12, 2019 1:51 pm
Hello,
New here. So would like to tell my story to see if anyone has had something similar?? I'm 43 year old female, decent diet, NO medications except advil.
Throughout my 30's I would experience (about 1 or 2 times a month) a jerking in my legs (Involuntary jerking) right as I would fall asleep. Causing me to wake up. Never thought much of it as I would always be able to sleep. Husband claims there were nights my legs were "twitching" he would get mad and put one of his legs on top of mine to hold it down. I never woke up or realized he was doing this...
Fast forward to last February 2018 at age 42. I went to bed and had one of my "twitching episodes", usually I would toss and turn until about 1 or so fall asleep and wake up tired but totally fine. Meaning legs felt fine ect. Only THIS Sunday I was awake almost all night with very little sleep and on Monday morning top of thighs felt weird. I had this feeling in my legs all day and Monday, Tuesday, Wed, and Thursday night. With hardly any sleep these days....By Friday morning I lost it and got in with a doctor. He prescribed me Mirpex .0125mg 2 hours before bed and told me I needed to take for 4 days and break the cycle. This drug did take the weird feeling away from my leg, but I was still jerking right as I was falling asleep causing me to wake up. I finally took Ambien 5mg and was able to sleep. I took Ambien for a few days, ONLY took the Mirpex for 4 nights and stopped. and after a week or so was fine. (I had other issues going on with an inner ear infection that took an additional 4 weeks to clear up) BUT by mid-april of last year I was back to sleeping my normal way, NO DRUGS, with about 2 nights a week (if that) of the "twitching" right as I fall asleep.
Fast forward to April 2nd 2019....I am back to same thing as last year and I'm in full panick mode. I do not want to be on medication but the only way I sleep is if I take Ambien to stop me from twitching. I have lower back soreness (not sharp pain just sore) that when sitting certain ways causes my legs to get that weird feeling. I know when they feel like this the involuntary jerking/twitching right when I fall asleep will be horrible.
My questions: Has anyone ever had a whole year "remission?"
Does your RLS act up every night?
Do you have involuntary twitching? It is not always just in my legs but also in arms and feels like all over. It is horrible.
I think my lower sore back pain might have something to do with this??? I wouldn't think that soreness in lower back would be a symptom of RLS?
THanks for any advise and I do have an appointment with my GP in two weeks.
New here. So would like to tell my story to see if anyone has had something similar?? I'm 43 year old female, decent diet, NO medications except advil.
Throughout my 30's I would experience (about 1 or 2 times a month) a jerking in my legs (Involuntary jerking) right as I would fall asleep. Causing me to wake up. Never thought much of it as I would always be able to sleep. Husband claims there were nights my legs were "twitching" he would get mad and put one of his legs on top of mine to hold it down. I never woke up or realized he was doing this...
Fast forward to last February 2018 at age 42. I went to bed and had one of my "twitching episodes", usually I would toss and turn until about 1 or so fall asleep and wake up tired but totally fine. Meaning legs felt fine ect. Only THIS Sunday I was awake almost all night with very little sleep and on Monday morning top of thighs felt weird. I had this feeling in my legs all day and Monday, Tuesday, Wed, and Thursday night. With hardly any sleep these days....By Friday morning I lost it and got in with a doctor. He prescribed me Mirpex .0125mg 2 hours before bed and told me I needed to take for 4 days and break the cycle. This drug did take the weird feeling away from my leg, but I was still jerking right as I was falling asleep causing me to wake up. I finally took Ambien 5mg and was able to sleep. I took Ambien for a few days, ONLY took the Mirpex for 4 nights and stopped. and after a week or so was fine. (I had other issues going on with an inner ear infection that took an additional 4 weeks to clear up) BUT by mid-april of last year I was back to sleeping my normal way, NO DRUGS, with about 2 nights a week (if that) of the "twitching" right as I fall asleep.
Fast forward to April 2nd 2019....I am back to same thing as last year and I'm in full panick mode. I do not want to be on medication but the only way I sleep is if I take Ambien to stop me from twitching. I have lower back soreness (not sharp pain just sore) that when sitting certain ways causes my legs to get that weird feeling. I know when they feel like this the involuntary jerking/twitching right when I fall asleep will be horrible.
My questions: Has anyone ever had a whole year "remission?"
Does your RLS act up every night?
Do you have involuntary twitching? It is not always just in my legs but also in arms and feels like all over. It is horrible.
I think my lower sore back pain might have something to do with this??? I wouldn't think that soreness in lower back would be a symptom of RLS?
THanks for any advise and I do have an appointment with my GP in two weeks.