MAY 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

MAY 2019 - New Members

Postby Rustsmith » Thu May 02, 2019 2:17 am

Wednesday, May 1

Welcome to

debtol_oh, who is currently going thru the augmentation stage and is trying to see what others are going through and what options do she has. She is anemic and has RLS. She is constantly tired, legs that won't stop, and is at wits end with this entire thing. She has two sisters that are following suit on this. Although all three of them have had gastric bypass, is this a cause of it... She knows the low iron is mostly part of it, but then she looks at others in the family and they are not gastric bypass patients and they have. So is it hereditary??? Things she is just trying to figure out.

First, yes it is there is a genetic link to RLS as well as the issue with iron. As for augmentation, it is something that many of us have been through. If you will post a note telling us what you are taking (including dose) and what you have previously tried, we can give you an idea of what is ahead.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to hokuahi

Postby Rustsmith » Sun May 05, 2019 12:55 am

Saturday, May 4

Welcome to

hokuahi, whose RLS is causing poor and lack of sleep mostly, and so is having to take medication.

Please post a note telling us about your medication and asking any questions that you have. I would like to be able to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to mjmarrah

Postby Rustsmith » Sun May 05, 2019 4:06 pm

Sunday, May 5

Welcome to

mjmarrah, whose RLS ruins mj's evenings and medication helps, but rules mj's life.

Please post a note telling us what you are taking and asking any questions that you have. We can probably offer some suggestions for improvement as well as answers.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to vedor666

Postby Rustsmith » Mon May 06, 2019 1:56 pm

Monday, May 6

Welcome to

vedor666, who is unable to sleep most nights and has difficulties during traveling.

Please post a note telling us what you are doing to manage the symptoms. We can probably suggest something that will improve the management of your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to JimGeorgia58

Postby Rustsmith » Tue May 07, 2019 2:38 am

Monday, May 6

Welcome to

JimGeorgia58, who self-diagnosed RLS using resources on this website so he thanks. Johns Hopkins University also has some excellent resources. His doctor recently confirmed his condition and ordered blood work with iron status.

We are glad that you found us to be helpful and that you followed up with your doctor. As for Hopkins, most of us are very familiar with their website, some of us are patients there and others have spoken with their doctors on numerous occasions. If you have any questions, especially after you get your blood test results, please post a note and ask about whatever seems appropriate.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to donnasimmons

Postby Rustsmith » Tue May 07, 2019 3:14 pm

Tuesday, May 7

Welcome to

donnasimmons, who has only been recently officially diagnosed with RLS, although she has had progressive symptoms for over 25 years. It has became more difficult to sleep from the strong feelings of electricity up and down her legs. She finds it difficult during the day to be on her feet for long periods of time due to foot pain and burning. The electric sensations are continual throughout the day as well.

Please post a note telling us what you and your doctor is doing to manage your symptoms. There may be a few thing that we can suggest that will also help out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to wkpalley

Postby Rustsmith » Tue May 07, 2019 3:16 pm

Tuesday, May 7

Welcome to

wkpalley, who has suffered from RLS for about 10 years but just recently started treatment. He would like to discuss with others how to possibly treat the causes rather than just the symptoms.

Please post a note telling us what you are currently doing to manage. We can tell you about the causes and what can currently be done.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to tskessinger

Postby Rustsmith » Tue May 07, 2019 3:20 pm

Tuesday, May 7

Welcome to

tskessinger, who has RLS and is looking for over the counter meds to relieve it.

The only thing that you can buy over the counter that helps with RLS is an iron supplement. These will not provide help for everyone and can take a few weeks before they show any benefit. And even these should be taken under a doctor's guidance since too much iron can be dangerous. If you will post a note telling us a bit more, we can offer you further information about RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to juliehionas

Postby Rustsmith » Tue May 07, 2019 3:59 pm

Tuesday, May 7

Welcome to

juliehionas, who I has had RLS for the past 14 years. It has progressed and is making it so hard to get up in the AM after having a bad night. She just wants to cry and feels like she is going insane during the night. She can't take this any more and needs to make some kind of change.

Please post a note telling us what you are currently doing to manage your RLS. We can offer you some suggestions to get it under better control so that you can get some sleep.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to stathamlaura

Postby Rustsmith » Tue May 07, 2019 7:30 pm

Tuesday, May 7

Welcome to

stathamlaura, who have suffered with RLS for many years. And so ,it's time she talked with others.

We would love to talk with your about RLS. If you can post a note telling us what you are doing to manage it now, that will provide us an opportunity to share and get the conversation going.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to maryaj55

Postby Rustsmith » Tue May 07, 2019 10:07 pm

Tuesday, May 7

Welcome to

maryaj55, who was diagnosed with RLS many years ago and wants to pick up new ideas.

If you will post a note telling us about the things that you have tried, we can probably offer you new ideas of things that will help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

maryaj55
Posts: 1
Joined: Tue May 07, 2019 9:58 pm

Re: MAY 2019 - New Members

Postby maryaj55 » Tue May 07, 2019 10:24 pm

Greetings. Thanks for the join.
My daytime meds include ropinerole .25mg 2-3 times a day, and tramadol 100 mg 3-4 times a day. At night I take ropinerole 1 mg. This has been the regimen now for several years. Nights have been good, but am beginning to awaken with symptoms early in the morning. Most days are tolerable, none are good and occasionally there is a horrible day. Gabapentin has been tried with little effect on symptoms but extreme somnolence. Any increase in roponerole results in somnolence and nausea--acceptable at night maybe, but not during the day. As the bad days seem to be slowly increasing, I am looking for my triggers, looking for new pharmaceutical and non-pharmaceutical methods and considering a trip to a certified RLS center. There are many stories worse than mine and I'm trying my best not to head there myself.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to margyly

Postby Rustsmith » Thu May 09, 2019 7:41 pm

Thursday, May 9

Welcome to

margyly, who has had RLS for 30 years and it is slowly getting worse.

Please post a note telling us what you are currently doing for your RLS so that we can offer some suggestions to gain better control of the symptoms.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Suzhartson

Postby Rustsmith » Thu May 09, 2019 10:27 pm

Thursday, May 9

Welcome to

Suzhartson, who has had RLS for about 12 years after having a whipple resection.

Please post a note telling us a bit about your symptoms and what you are doing to manage them so that we can offer you some suggestions for improvement.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4085
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Susanhooper

Postby Rustsmith » Fri May 10, 2019 11:22 am

Friday, May 10

Welcome to

Susanhooper, who has suffered with RLS since she was 30 and now she is 76. She takes medication daily and would love a cure.

We all look forward to a cure. Please post a note telling us what medication you are taking and how well it is working so that maybe we can help suggest alternatives. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


Return to “Just Joined?”

Who is online

Users browsing this forum: No registered users and 1 guest