MAY 2019 - New Members

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Welcome, usskywatch

Post by ViewsAskew »

19 May 2019

Welcome to usskywatch, who has had RLS for about 2 years. it has greatly worsened and usskywatch has little sleep and the RLS is really affecting daily life.

So sorry to hear that. It sounds as if it may be augmentation. My guess is that the doc prescribed a dopamine agonists - ropinerole, rotigotine, or pramipexole. If so, please read more about that. Either way, please start a new post and tell us more about what is happening.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome Dougnddeb

Post by Rustsmith »

Monday, May 20

Welcome to

Dougnddeb, whose RLS has interfered with his sleep since he started having this condition in 2015. He is tired all the time and it is mentally and physically exhausted. His quality of life suffers.

Please post a note telling us what you are doing to manage your symptoms. We can probably help you return to a more normal quality of life.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Sjm

Post by Rustsmith »

Tuesday, May 21

Welcome to

Sjm, who is pregnant and her RLS is so bad that she is up for days.

Please take a look at the info in our Special Populations forum to get an idea of how to manage RLS during pregnancy. And please post a note telling us what you are currently doing to manage the symptoms so that we can offer you some suggestions.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to kBreese

Post by Rustsmith »

Tuesday, May 21

Welcome to

kBreese, who says that it takes a village to try to understand and live with this dreaded disease!

So true. You found the village, so please post a note telling us about your RLS, what you are doing to manage it and asking any questions that you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to r10harmsel

Post by Rustsmith »

Tuesday, May 21

Welcome to

r10harmsel, whose RLS has greatly affected his life because his sleep is never consistent. He can usually get about 1-3 hours when he first goes to sleep. Then have to be up for 1/2 -1 1/2 hours before he can go back to sleep. Usually he has to repeat that pattern at least one more time that same night, causing his to sleep too long in the morning hours.

Please post a note telling us what you are doing to manage your RLS. There are ways to improve upon your current sleep pattern, but we need to have a better idea of where you are now so that we can provide more specific suggestions.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Kevin

Post by Rustsmith »

Tuesday, May 21

Welcome to

Kevin, who has had RLS for a long time and needs more support.

You have come to the right place for support. If you will post a note telling us a bit about your symptoms and what you are currently doing to manage them, we can offer you some specific suggestions to improve your situation. Also, feel free to ask any questions that you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to mlionberger

Post by Rustsmith »

Thursday, May 23

Welcome to

mlionberger, who works as the Administrative Assistant for the RLS Foundation.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Fer5497

Post by Rustsmith »

Friday, May 24

Welcome to

Fer5497, who needs information regarding RLS to better understand it.

We can definitely help you with information about RLS. Please post a note with any questions that you have and we will try to answer all of them.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Micheleg

Post by Rustsmith »

Saturday, May 25

Welcome to

Micheleg, who wants to learn what others are doing to help with RLS. Compression socks? Medication? It can drive her crazy at times.

The discussion board tends to attract the more severe cases of RLS, so most of us are on medication. Please post a note telling us what you are currently doing and asking any questions that you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to cbird114gb

Post by Rustsmith »

Saturday, May 25

Welcome to

cbird114gb, whose RLS has created great anxiety in life. It limits what cbird can do, especially in the evenings. At night cbird is very tired, but dreads the thought of being awake all night due to legs and knowing the same experience awaits the next night.

Please post a note telling us what you are doing to manage your RLS so that we can give you some specific suggestion for improving your ability to sleep.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Sleeplessinmadison

Post by Rustsmith »

Saturday, May 25

Welcome to

Sleeplessinmadison, whose RLS has disrupted sleep and has caused her to take medication that she would rather not have to in order to sleep.

That is something that is common to all of us. Please post a note telling us how you are doing, what you are taking and asking any questions that you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Welcome, RLSEXP

Post by ViewsAskew »

Monday 26 of May

We welcome RLSEXP whose life revolves around the issues of RLS, including the insomnia which has resulted from the RLS and the associated medications.

I sure get that! Hope you can find some peace. Please post and tell us about what you are taking. Who knows...maybe one of us has some ideas.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to dmann88

Post by Rustsmith »

Wednesday, May 29

Welcome to

dman88, who has had RLS for years and it is bad enough that dmann has to take drugs for it. If dmann doesn't take them at just the right time, it either causes a loss of sleep or forces going to bed early. If dmann has to go to bed earlier, it results in missing time with the kids. dmann can't take long drives and airplane rides are horrible. dmann has a number of ailments and this is by far, the worst.

We can all relate to those problems. Please post a note telling us about your medications and schedule. We may be able to offer some suggestions that will help you get both sleep and time with the kids.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to hdf

Post by Rustsmith »

Thursday, May 30

Welcome to

hdf, whose RLS causes frequent worry and concerns about overall health.

Although there can be some related health issues, generally RLS does not cause as many other issues as some conditions. Please post a note telling us about your RLS symptoms and what you are doing to manage them so that we can offer you some specific suggestions.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to tony27s

Post by Rustsmith »

Thursday, May 30

Welcome to

tony27s, who cant sleep at night. So he takes Advil and Ambien because they are the only way to sleep.

If you are taking Advil PM, then it could be making your RLS worse. The Bendryl in all PM products us a potent RLS trigger. But, please post with any questions that you have. We would love to hear from you and possibly help you out.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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