JULY 2019 - New Members

Post by **Rustsmith** » Tue Jul 23, 2019 2:20 pm

Tuesday, July 23

Welcome to

alaka3355, for whom RLS is a constant battle....alaka has been on medication for years and would like to contact others with the condition to find out if there is something working better for them.

If you will post a note telling us about your medication, we would be happy to share what is working for us.

Post by **Rustsmith** » Tue Jul 23, 2019 8:28 pm

Tuesday, July 23

Welcome to

Taco Bill, who has a case of refractory RLS. It has unequivocally destroyed his life. His biggest struggle is obtaining the medication he needs to live. Without medication he cannot sleep, even a nap. He can go days without sleep. The problem is that the only medication that helps is an opiate.

Please post a note giving us a bit better idea of the challenges you face getting an opioid med. Many of us have faced the same challenge and we have a few suggestions that may help. The RLS Foundation is also working on federal regulators to try to get them to ease up on doctors and pharmacies when it comes to providing this type of medication that is so critical to so many of us.

Post by **Rustsmith** » Thu Jul 25, 2019 11:08 pm

Thursday, July 25

Welcome to

tallbald, who is interested in hearing the experiences of others, getting support and new ideas for coping with RLS. He has had RLS for over 40 years.

If you will post a note telling us what you are currently doing to manage your RLS, we would be happy to share our experiences as well as provide any support that you need.

Post by **Rustsmith** » Fri Jul 26, 2019 3:21 am

Thursday, July 25

Welcome to

JonathanS, who can't sleep and can't do a full-time job so he has no money. His productivity hours are few.

Please post a note telling us what you are doing to manage your RLS and asking any questions you have so that we can provide any help possible.

Post by **Rustsmith** » Fri Jul 26, 2019 3:11 pm

Friday, July 26

Welcome to

tension55, who needs informations about mirapex withdrawal.

Please post a note telling us what dose of mirapex you are taking so that we can have an idea of what to suggest to you.

Post by **Rustsmith** » Sat Jul 27, 2019 2:47 pm

Saturday, July 27

Welcome to

Rugerhd, who is in RLs augmentation needs help on what medication is the best.

If you will post a note telling us about the dose and medication that has you augmenting, we can offer you some suggestions about the medications that will help (and those that will not).

Post by **Rustsmith** » Sat Jul 27, 2019 2:49 pm

Saturday, July 27

Welcome to

Jeanpernia1958, who has lived in denial for very long time but is aware that it is a very present problem in her life.

If you will post a note, we can advise you on how to get started with treatment and what you should expect from a doctor.

Post by **Rustsmith** » Sat Jul 27, 2019 5:01 pm

Saturday, July 27

Welcome to

Tpr, whose quality of sleep has gotten bad.

If you will post a note telling us what you are currently doing to manage your RLS, we can offer some suggestions for improving the quality of your sleep.

Post by **Rustsmith** » Sun Jul 28, 2019 2:30 pm

Sunday, July 28

Welcome to

Mroe67, who wants to see what others are doing to relieve their RLS.

If you will post a message telling us what you currently do, we would be happy to share our experiences.

Post by **Rustsmith** » Tue Jul 30, 2019 1:12 am

Monday, July 29

Welcome to

JKaylor03, who has RLS and it’s making JKaylor miserable. Not getting sleep is causing depression and bringing about anxiety. JKaylor is considering medication but want to reads about others experiences!

There are a number of medication options, if you will post a note telling us about your symptoms, we can walk you through the current recommendations and point you to publications that you can share with your doctor.

Post by **Rustsmith** » Tue Jul 30, 2019 8:03 pm

Tuesday, July 30

Welcome to

Lorry, who has suffered from RLS for many years. Lorry started taking Maripex a year ago. It helps but doesn't always stop all of the RLS sensations. So, Lorry would like to know how others are treating their symptoms.

If you will post a note telling us about your dose of Mirapex and asking any questions that you have, I am sure that many of us will be more than happy to share our experiences and opinions.

Post by **Rustsmith** » Wed Jul 31, 2019 2:46 am

Tuesday, July 30

Welcome to

Dial911, who hasn't been diagnosed yet, but she is being driven nuts by these symptoms that seem to match with RLS, and she can't get an appointment with a neurologist for another couple of months. Her internist and physical therapist have tried some things, but nothing works, so she is hoping to get some ideas here.

Please post a note telling us about your symptoms so that we can point you to some things to help educate yourself. As for a "treatment" that does not involve meds, try soaking your legs in very hot water (as hot as you can stand) or very cold water. This often helps calm the sensations of RLS for long enough to be able to fall asleep.

Post by **Rustsmith** » Wed Jul 31, 2019 1:17 pm

Wednesday, July 31

Welcome to

Lisa*, whose RLS is so awful she cannot fall asleep. She went to bed at 10:30pm and was still suffering at 2:15. This is happening every night. She is nearly falling asleep driving because RLS is preventing her from getting enough sleep. She is becoming very depressed because of it.

Lisa, we can all relate. Please post a note telling us what you are doing to treat your RLS so that we will know what we can suggest so that you can get some sleep.

Post by **Rustsmith** » Wed Jul 31, 2019 5:48 pm

Wednesday, July 31

Welcome to

krockwell, whose RLS has been difficult to manage most of the time. krockwell doesn't get good sleep and that affects so many aspects of life.

Please post a note telling us what you are currently doing to manage your RLS so that we can offer you some suggestions to improve how well it is managed.