JULY 2019 - New Members

[Rustsmith]

Monday, July 15

Welcome to

laurat, who was diagnosed over 10 years ago but has had symptoms since 2000. Using pramipexole at this time. Takes 2-3 hours for medication to take affect. Looking into medical marijuana.

You will find that we have several ongoing discussions on marijuana if you use our search function (magnifying glass in upper right). And if you don't find what you are looking for, post a note with any questions that you have.

[Rustsmith]

Tuesday, July 16

Welcome to

rosalinda, whose twenty years of RLS has led her to use a prescirbed med, methadone, which works well. However, she worries about side effects, like forgetfulness and other brain changes. She would like to share her experience and hear from others.

We would love to hear about your experiences. Many of us use, or have used, methadone. So we will well have lots of experience to share with you.

[Rustsmith]

Tuesday, July 16

Welcome to

Cal, who found that using an slow release iron supplement cured her RLS after so many uncomfortable years of suffering. She wanted to reach out to let everyone know that this worked for her and wants to shout it from the rooftops to help others.

Increasing iron helps many of us and can be done in a variety of ways. Feel free to post a note telling us about your experience.

[Rustsmith]

Thursday, July 18

Welcome to

Sharon Ann, whose RLS has affected her life for over 15years. She is looking for support and encouragement as well as for others that suffer with this. She also likes the title Night walkers because that's how she feels.

Please post a note telling us what you do to manage your RLS and asking any questions that you have. Also, feel free to join any of our ongoing discussions.

[Rustsmith]

Thursday, July 18

Welcome to

Mcintojr, whose husband is suffering from augmentation and so they need a doctor to help.

If you will post a note giving us an idea of where you live, we can provide you with a list of suggestions about how to find someone to help.

[Rustsmith]

Friday, July 19

Welcome to

freakason, who likes to keep current with RLS treatments as freakason has a severe case.

Please post a note telling us about your current treatment or simply join one of our existing discussion threads.

[Rustsmith]

Friday, July 19

Welcome to

durrable2, who is dealing with RLS every day and needs some options for relief.

Please post a note telling us what you are currently doing to manage so that we know where to start with suggesting options.

[Rustsmith]

Friday, July 19

Welcome to

Tanager, whose RLS interrupts sleep and forces activities to be planned around symptoms. Tanager finds it embarrassing when legs start twitching/jerking in public. The thought of long air flights in cramped seats is unsettling.

Please post a note telling us what you do to manage, we can probably offer some suggestions for improvement as well as how to survive airline flights.

[Rustsmith]

Friday, July 19

Welcome to

Dancepam, whose RLS started in 2016. She took gabapentin for a while, but her PCP switched her to Requip. That caused incontinence issues as well as an ongoing battler with her PCP and pharmacy about refills. She is not thinking about seeing a neurologist.

Feel free to post your longer message to start a new discussion thread or to tell us how things go with the neurologist.

[Polar Bear]

Saturday 20th July 2019

Welcome today to:

hastynote who is a patient of Mark Buchfuhrer in augmentation. hastynote is not able to sleep, arms will start flailing even if my legs are still. Got a lot out of the symposium in San Diego. Since being allergic to Methadone, is now trying Belbucca with limited results so far.

hastynote, wonderful that you made it to San Diego. Please post and tell us about your rls and treatment, we are here for support and ideas.

[Rustsmith]

Saturday, July 20

Welcome to

hastynote, who is a patient of Dr. Mark Buchfuhrer and is in augmentation. Hasty is not able to sleep when arms start flailing even if legs are still. Hasty got a lot out of the symposium in San Diego. Since hasty is allergic to Methadone, they are trying Belbucca with limited results so far.

Please post a note telling us about you experience with Belbucca and then keep us informed about your progress.

[Rustsmith]

Saturday, July 20

Welcome to

Scooter, whose RLS causes restless nights and daytime narcolepsy.

Please post a note telling us what you are doing to manage your symptoms so that we can offer some suggestions that might help improve your situation.

[Rustsmith]

Saturday, July 20

Welcome to

patsy, who just found out that what she has is RLS... So, she needs all kind of info on what to do....

We can definitely provide you with information. Please post a note telling us a bit about your symptoms and asking any questions that you have so that we know where to start.

[Rustsmith]

Sunday, July 21

Welcome to

Muscovy, whose RLS has had a huge impact on wellbeing. It has affected career and confidence to pursue simple life goals.

Please post a note telling us about what you do to manage your RLS so that we can offer you some specific suggestions to improve your control.

[Rustsmith]

Monday, July 22

Welcome to

Peaceful Sleep, who has had RLS issues since 5 years old.

Please post a note telling us about your RLS and what you are doing to manage and get "peaceful sleep".