AUGUST 2019 - New Members

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
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Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

AUGUST 2019 - New Members

Post by Rustsmith »

Friday, August 2

Welcome to

hungryghost, whose partner has RLS and occasionally experiences severe sleep deprivation. She can be debilitated for days at a time. Hungryghost would like to learn more about how to support her.

Please post a note telling us what, if anything, your partner is doing to manage her symptoms so that we can help both of you get better sleep.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to jp101010

Post by Rustsmith »

Saturday, August 3

Welcome to

jp101010, who wants to learn from others with RLS about their experience with treatment methods.

If you will post a short note with any questions that you have, we will be happy to share.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to KickyD

Post by Rustsmith »

Sunday, August 4

Welcome to

KickyD, who has had RLS her whole life, but only diagnosed and treated 5 years ago. KickyD has noticed some side effects with Requip that KickyD would love to talk to others about.

Please post a note describing your side effects. Requip can have some pretty nasty ones, so we would love to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to glangston

Post by Rustsmith »

Monday, August 5

Welcome to

glangston, who was diagnosed with RLS through a sleep study and doesn't sleep through the night; waking up after about 3-4 hours.

Please post a note telling us if you are being treated for RLS, we can suggest ways to improve your sleep.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to SircharlsO

Post by Rustsmith »

Monday, August 5

Welcome to

SirCharlsO, who has issues with both arms and legs and it probably prevents relaxation and impacts sleep.

Are you doing anything to manage your RLS? Please post a note telling us about it so that we can offer some suggestions for improvement.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to KarenM

Post by Rustsmith »

Monday, August 5

Welcome to

KarenM, whose RLS has been much worse since she had chemo. Now it happens in afternoon. She need tips for dealing with this.

Could you please post a note telling us what you are taking for your RLS, including the dose? That will help us know what to suggest to you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Zombie Mom

Post by Rustsmith »

Tuesday, August 6

Welcome to

Zombie Mom, who is at the point where sleeping pills won't work. She often finds herself not falling asleep until 5 or 6am. Sometimes, she just don't sleep at all and is a zombie for the following 24 hours. It seems to worsen with age. She now finds it traveling up her arms... is this possible???!!! She has spent too much trying to solve this. She can't hold down a regular job and can't plan things or go on vacation because she can't travel with all of her "sleep devices" and pills. It is making her miserable.

Most of us have been where you are and there are ways to get more sleep. It also sounds like you may be experiencing augmentation. Please post a note telling us what pills you are taking so that we can offer some suggestions to get more and better sleep.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7833
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Aspireinhomecare

Post by Polar Bear »

6 August 2019

Welcome to:

Aspireinhomecare - who wants to know how people with RLS experience the symptoms of this syndrome and how their life is affected by it.


You will find loads of information on here about how we suffer with this horrible condition and how we try to manage it. But please post and ask questions. If you are trying to help someone, we want to help you.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
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Posts: 16067
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Welcome, jane-dr

Post by ViewsAskew »

7 August 2019

Welcome to jane-dr who is experiencing symptoms that may or may not be RLS. They have been diagnosed with RLS, but doesn't seem right to them.

jane-dr, RLS can be tough to diagnose. And, can occur simultaneously with other things, making it hard to tease apart. Please start a new post and tell us about what is happening. We will do our best to share our experiences and hopefully help you figure it out.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Nightcrawlers

Post by Rustsmith »

Thursday, August 8

Welcome to

Nightcrawlers, whose mother has severe RLS. She doesn’t want her to suffer anymore. She rarely gets sufficient sleep and cries often.

Please let us know what your mother is doing to manage her RLS so that we can offer some suggestions for improving her situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Bravenutt

Post by Rustsmith »

Friday, August 9

Welcome to

Bravenutt, whose RLS has taken over her life and is in her every waking moment. She can’t sleep. The RLS is debilitating!

Please post a note telling us what you are currently doing to manage your RLS so that we can offer some suggestions to improve your life and reduce the debilitating effects of RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to teachkdz

Post by Rustsmith »

Friday, August 9

Welcome to

teachkdz, who wants to join so that she can talk to others who have RLS. How do they help themselves? She cannot sleep very long at night and her legs now jump in the daytime.

Please post a note asking any questions that you have or simply jump into any of our ongoing discussions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to meiatflask

Post by Rustsmith »

Saturday, August 10

Welcome to

meiatflask, who is looking for help with RLS. Reading the entries makes meiatflask want to post questions for more specific answers.

Please post whatever questions that you have so that we can try to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to lailamers

Post by Rustsmith »

Saturday, August 10

Welcome to

lailamers, who has great difficulties for about 8 years with falling and staying asleep. Did a sleep study and now has now a cpap but no real improvement
with RLS.

Most of us do not see any RLS improvement with CPAP. Please post a note telling us if you are doing anything else to manage your RLS so that we will know what suggestions to give to you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4651
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to craiglou

Post by Rustsmith »

Saturday, August 10

Welcome to

craiglou, whose RLS has happened upon her at the age of 76. She is shocked by its capacity to wreck your peace, both of mind and body. She had no idea!

Unfortunately, all of us totally understand your point. Please post a note asking any questions that you have so that we can try to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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