SEPTEMBER 2019 - New Members

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to napster

Post by Rustsmith »

Monday, September 16

Welcome to

napster, who has been trying EVERYTHING to become normal for the last 10 yrs. Napster just wants to see what others are doing to cope.

Take a look around to get an idea of what others are doing to manage their RLS. And please post a note telling us what you have tried so that maybe we can offer some suggestions that you haven't tried yet.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Welcome to Thivi

Post by Polar Bear »

17 September 2019

Welcome to Thivi - who is seriously sleep deprived due to RLS and it is impacting on overall mood and health.

We understand exactly what you mean. Please do post, ask questions, and tell us how you are and what you have done to try alleviate your RLS symptoms. We are here to try and help you.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Welcome to Mermaid

Post by Polar Bear »

18 September 2019

Welcome to Mermaid - who has RLS and Rheumatoid arthritis, so the RLS is painful. It interferes with sleep for both her and her husband. Her doctor doesn’t know much about it, so she has had to educate herself. She has tried to education her doctors but they don't really understand.

Mermaid, please make a post telling us about your medications and your ways of trying to cope with your RLS. Unfortunately we all understand this too well especially many having doctors who are not well educated/experienced in successfully treating RLS. We are here because we care. Please do post.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to bbogart54

Post by Rustsmith »

Thursday, September 19

Welcome to

bbogart54, whose symptoms have greatly increased recently and so bbogart is just trying to figure out how to cope.

Please post a note telling us what you are doing to manage your symptoms so that we will have an idea of what to suggest to you.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to meghcelmayster

Post by Rustsmith »

Friday, September 20

Welcome to

meghcelmayster, who has RLS and would like to learn from others and share her experience.

Please post a note telling us about your experiences so that we will have an idea of what sort of things to share with you.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Milly2

Post by Rustsmith »

Saturday, September 21

Welcome to

Milly2, who has had RLS for over 30 years and now she is getting it in the daytime as well as at night. She is afraid her meds will lose effectiveness and what does she do then?

Please post a note telling us about your meds (including dose). There are always new meds or combinations to try. We can probably give you some suggestions that you can discuss with your doctor.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to inkypinkysquid

Post by Rustsmith »

Sunday, September 22

Welcome to

inkypinkysquid, who is 21 and in college, currently working on grad school application. Inky can't sleep and it is also affecting mental health. Inky is scared of what the future may bring with symptoms in mind.

We wish you luck on your grad school application. Please post a note telling us a bit more about your symptoms as well as what you are doing to manage them and whether you have a formal diagnosis of RLS. Many of us have had RLS for many years and it can be managed if you get the right help and develop your own set of ways to cope. We can share a lot with you, but we need to have a better idea of your current status.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to browneydcaligirl67

Post by Rustsmith »

Monday, September 23

Welcome to

browneydcaligirl67, who is curious as to how RLS has affected other people and what methods have worked best for them to alleviate the symptoms.

You will find that each of us has slightly different issues with RLS and our situations in life also have an impact. If you will post a note telling us a bit about your RLS and being a bit more specific about what you are looking for, I am sure that you will get quite a few responses.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to doghairinmytea

Post by Rustsmith »

Wednesday, September 25

Welcome to

doghairinmytea, who has had RLS for at least 15 years, but the past three years have been really bad with it. doghair recently went on disability due to issues staying awake at work, comprehending what was being reading, following discussions, and meeting deadlines. The lack of sleep has made functioning normally during the day hard.

We all can relate to those problems. Please post a note telling us what you are doing to manage your RLS so that we can know what suggestions to give you to improve your sleep.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to DreiTageWach

Post by Rustsmith »

Wednesday, September 25

Welcome to

DreiTageWach, who has had RLS symptoms for as long as she can remember. Since 2011 she has been taking dopamine agonists and the symptoms are under control. She is very worried about augmentation, however, and thinks the drug negatively affects her in other ways too. Because of that, she would like to get off the drug and share her experiences with other people on the forum while she is going through the process.

We would love to hear about your experiences as you come off of your DA. But before you start, you should give some thought to what you will do once you are off of DAs. Is your RLS tolerable without treatment? Will your doctor be willing to prescribe an opioid?
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Harish_ShareRLSExp

Post by Rustsmith »

Friday, September 26

Welcome to

Harish_ShareRLSExp, who is suffering from RLS since 20+ years and is now 34 years old. Harish has spent years without sleep because of severe sensations in legs when trying to sleep and so was just sleeping 3-4 hours everyday. Two years back when Harish saw a Neurologist was diagnosed with RLS. Initial blood test showed many deficiencies, like very low Iron & Ferratin, very low B12, below average HB etc. These were then treated. Currently Harish is regularly taking Pramipexole Er 1.5 and Pregabalin 75 tablets

Thank you for sharing and please feel free to post a note with any questions that you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Klupo1970

Post by Rustsmith »

Friday, September 27

Welcome to

Klupo1970m who dreads lying down at night, it can get so bad that she feels it in her arms chest and neck. She and her husband and really enjoy the evenings when they relax and watch TV. Thankfully it's not that extreme every single night but she would say a good five out of the seven days.

Please post a note telling us what you are doing to manage your symptoms. We may be able to suggest some things that would make it allow you to relax seven out of seven nights.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to lilmimi

Post by Rustsmith »

Saturday, September 28

Welcome to

lilmimi, who has had RLS for over 60 years now, and is always looking for new ideas for coping and for exchanging those with other people with this disease.

If you will post a note telling us a bit about how you are currently coping, we will try to offer some suggestions and new ideas.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

welcome to mjtkgundy

Post by Rustsmith »

Saturday, September 28

Welcome to

mjtkgundy, who as a sufferer of RLS is always interested in discussions to increase her knowledge and awareness of treatments. RLS has made her life very difficult and at times, unbearable.

Please post a note to let us know what you do to manage your RLS and asking any questions that you have so that we can make your life a bit more bearable.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Missouriwalker

Post by Rustsmith »

Monday, September 30

Welcome to

Missouriwalker, who has had RLS for 30yrs. Missouriwalker augmented on Mirapex/Pramipexole back in 2018 and it took 5mos to wean off it. And is now trying to find right combo.

Please post a note telling us what combos you have tried. Most of us have been through augmentation and are familiar with the options that are available to you.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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