OCTOBER 2019 - New Members

[Rustsmith]

Tuesday, October 1

Welcome to

Ctuppy, who has had RLS for years but has been experiencing the symptoms more frequently and the severity has increased lately. It has been interfering with Ctuppy's sleep and as a result Ctuppy is really tired the next day. Ctuppy's Dad had the same issue but nobody knew what it was. So,
Ctuppy is looking for some information on how to get the correct medical or non-medical help.

If you will post a note telling us what you are currently doing for your RLS, that will give us an idea of where to start with our suggestions to you.

[Rustsmith]

Wednesday, October 2

Welcome to

Jayebard, who describes RLS as the most miserable thing to deal with because it takes from sleep and well being. Jayebard is no longer responding to RX.

Please post a note telling us what you have been taking. There are always more meds to try to find something that works, but the problem can be finding a doctor who is willing to prescribe them.

[Rustsmith]

Wednesday, October 2

Welcome to

Glosmenagerie, who has had RLS most of her life and has coped by moving around a lot. Her RLS has been worsening and is turning into full body misery. She needs new coping skills.

Please post a note telling us about what you have been doing and whether you are taking anything for your RLS. That will give us an idea of what we can suggest to you.

[Rustsmith]

Saturday, October 5

Welcome to

Laura95, who has had increased symptoms and needs the support of people who understand.

We would be happy to provide whatever support that you need. Please post a note telling us about your current meds so that we can provide some suggestions about your increasing symptoms.

[Rustsmith]

Saturday, October 5

Welcome to

SueB, who is seeking natural remedies for RLS

Take a look at our forums on Non-Prescription Medications and Physical Treatments to get an idea of what works and what does not. If you do a search using the magnifying glass in the upper left corner, you will also find several discussions on the use of kratom, an herb with opioid like properties.

[Rustsmith]

Sunday, October 6

Welcome to

Jenza62, who is constantly tired and frustrated. She was put on medication 18months ago which was amazing for a time, but then ceased to be effective and she has stopped taking it. Back to square one, and plus some.

Please post a note telling us about that medication and what you are doing now so that we can know where to start with suggestions to improve your sleep.

[Rustsmith]

Monday, October 7

Welcome to

Colehenry, who can't sleep due to Restless Leg. The itchy feeling is terrible. He has tried taking ropinole, gabapenten, showers... Nothing seems to help.

Please post a note telling us about the dose of ropinirole that you were taking. We can offer some suggestions to discuss with your doctor that can help you get that sleep.

[Rustsmith]

Monday, October 7

Welcome to

Winegarden, whose RLS has affected work the most since Winegarden has to sit still.

Please post a note telling us what you are doing to manage your RLS. We should be able to offer some suggestions that will help you be able to do your work.

[Rustsmith]

Monday, October 7

Welcome to

Lipscomb, who has RLS that is being treated by ropinerole. She would like to find physical methods to relieve the RLS. It runs in her family so she would like to keep current with new research on treatments and what causes RLS.

You can find info on Physical Treatments in our forum with that name. You can find info on current research in first entry in the General Topics forum.

[Rustsmith]

Tuesday, October 8

Welcome to

Men3051, who has had marked difficulty sleeping so that he would sometimes nod off at his desk. This continued into his retirement where he would awaken in the night and lie awake for hours and catch up on some sleep in the morning. Gradually it became clear that the occasional bout of aching legs were becoming much worse and interrupting his sleep even more. He started doing internet searches and realized that his symptoms matched criteria for RLS. Pretty scary. He is very interested in anything he can learn that would help him deal with this condition.

Please post a note telling us if you have discussed this with your doctor and have had any blood tests done. We can offer all sorts of suggestions, but we need to know where to start.

[Rustsmith]

Thursday, October 10

Welcome to

Taxitire, who has RLS and cannot seem to find a way to control it.

Please post a note telling us what you have tried so that we will know what type of suggestions to make to you about how to regain control of your life.

[Rustsmith]

Friday, October 11

Welcome to

Myownpillow, who has had RLS for years and it is getting worse. She has taken Clonazepam as needed over several years. Doc wants her off them and other meds cause too many side effects. She wants to stay on clonazepam.

Please post a note telling us what your doctor proposes to use for your RLS if you have to get off of clonazepam. Quitting will be challenging and will require the assistance of your doctor, but you also need to have an idea of what happens after your quit.

[Rustsmith]

Friday, October 11

Welcome to

mstemp, who has had RLS for over 15 years and is trying to figure out how to treat it. It is getting worse and keeping mstemp up much longer.

Please post a note telling us what you have tried so that we will know what sort of suggestions to give you.

[Rustsmith]

Friday, October 11

Welcome to

rierun, whose RLS has led to sleep deprivation, eating disorder from Requip, depression, weight gain, memory problems, inability to concentrate, and misery.

Please post a note telling us if you are still taking ropinirole or whatever you are currently using to manage your RLS so that we can offer some suggestions to discuss with your doctor for how to regain control and improve your life situation.

[Rustsmith]

Saturday, October 12

Welcome to

marian7672, who needs information on the latest research and treatment of RLS.

We can certainly help you with that. If you will post a note with any questions that you have, we can point you in the right direction, such as to take a look at the discussion thread on research in the General Topics forum.