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DECEMBER 2019 - New Members

Posted: Tue Dec 03, 2019 1:22 am
by Rustsmith
Monday, December 2

Welcome to

mkarp, who can't sleep due to aches during rest and leg drags while walking.

Please post a note telling us if you have officially been diagnosed with RLS and what you are doing to manage the symptoms

Welcome to T-Rich

Posted: Wed Dec 04, 2019 7:11 pm
by Rustsmith
Wednesday, December 4

Welcome to

T-Rich, who has had severe RLS for approximately 5 years and has tried almost everything with varying results.

Most of us have found that it takes some experimentation to find our individual treatment plan. If you will tell us what you have tried, what works and what doesn't, we can probably offer some suggestions of things to try that may work better for you.

Welcome to Starkloph

Posted: Thu Dec 05, 2019 10:38 pm
by Rustsmith
Thursday, December 5

Welcome to

Starkloph, who has had RLS for several years and it is getting worse. Stark dreads each night due to not knowing if it will be easy to sleep or not. Most nights it is not. Stark cannot sit for long before the RLS starts up and so is looking for possible ways to minimize its impact.

Please post a note telling us what (if any) treatment that your doctor has provided and whether you know your ferritin (an iron blood test) number. That info will give us an idea of where we can start with our suggestions.

Welcome to SCHNIBBLER1

Posted: Thu Dec 05, 2019 11:05 pm
by Rustsmith
Thursday, December 5

Welcome to

SCHNIBBLER1, whose RLS keeps her awake at night. Sometimes when she is sitting for prolonged times it'll also kick in.
She is currently doing Physical Therapy for it and it's helping.

Please let us know what sort of therapy that you are doing and whether you are getting any other sort of treatment. We may be able to offer some other suggestions that will help you get better sleep and to be able to sit for longer periods.

Welcome to jqrestless

Posted: Fri Dec 06, 2019 4:47 pm
by Rustsmith
Friday, December 6

Welcome to

jqrestless, who is experiencing augmentation and can't find relief.

Please post a note telling us which dopamine agonist is causing your augmentation, your current dose and what instructions you have been given. That way we can offer some suggestions on how to survive withdrawal from DAs.

Welcome to js1589

Posted: Sat Dec 07, 2019 1:08 am
by Rustsmith
Friday, December 6

Welcome to

js1589, who has had RLS and PLMS for about two years, controlled at the present time through medication overseen by a neurologist. JS is concerned about augmentation and how to deal with that. RLS is a maddening condition, and it's important to understand more about it and how to control its symptoms.

Please take a look through our forum on augmentation. And please post a note telling us what you are taking, including the dose, and your ferritin number if you know it. That way we can know what sort of suggestions to make to you.

Welcome to Carolynbtt

Posted: Mon Dec 09, 2019 4:06 pm
by Rustsmith
Monday, December 9

Welcome to

Carolynbtt, who has RLS and wants to keep up with treatment developments.

You can get an idea of the latest research by looking at our General Topics Forum's Published Research discussion.

Welcome to irazig

Posted: Mon Dec 09, 2019 10:55 pm
by Rustsmith
Monday, December 9

Welcome to

irazig, who has suffered with RLS & is seeking ways to control it.

Please post a note telling us a bit about your symptoms and what you are currently doing to manage them so that we can know where to start with our suggestions.

Welcome to kshowen

Posted: Wed Dec 11, 2019 4:29 am
by Rustsmith
Tuesday, December 10

Welcome to

kshowen, who has had RLS since childhood. It affects her quality of life (lack of sleep, social barriers, travel barriers, depression, etc). She has refractory RLS; many medications tried; they work for a while, then a new med needs to be tried, so on and so on.

Please post a note giving us an idea of what meds you have tried. Many of us have refractory RLS and have found that we need a cocktail of meds that are constantly being adjusted so that we can maintain control of our symptoms.

Welcome to henrydavidthoreau

Posted: Wed Dec 11, 2019 4:49 pm
by Rustsmith
Wednesday, December 11

Welcome to

henrydavidthoreau, who has had RLS for about 20 years and always thought it was associated with sertraline. She takes DA meds and id curious to know more about RLS. Experience strong symptoms immediately if she doesn't take her DA meds every night.

Please post a note telling us which DA you take and what the dose is so that we will know more about what to tell you about your RLS. And please feel free to ask any questions you have or simply jump into any of our ongoing discussions.

Welcome to perchi

Posted: Thu Dec 12, 2019 2:59 pm
by Rustsmith
Thursday, December 12

Welcome to

perchi, who wakes in the night and wondered what everyone else does.

We all have something that each of us uses to kill time until we can get back to sleep. Some walk, others read or play games, etc. If you post a note I am sure that you will get a multitude of different answers.

Welcome to Jeff63

Posted: Fri Dec 13, 2019 1:24 am
by Rustsmith
Thursday, December 12

Welcome to

Jeff63, whose RLS is killing him. He needs relief.

Please post a note telling us what you are currently doing to try to control your RLS so that we know where to start with our suggestions for relief.

Welcome to psagot

Posted: Sat Dec 14, 2019 3:03 pm
by Rustsmith
Saturday, December 14

Welcome to

psagot, who suffered from RLS two years ago but with meditation it is has practically disappeared for 18 months now.

Congratulations on finding a method to control your RLS. If you have any questions, please feel free to post a note asking them.

Welcome to JanM

Posted: Sun Dec 15, 2019 12:25 pm
by Rustsmith
Sunday, December 15

Welcome to

JanM, who was diagnosed in 2017 with RLS. Prior to being on her current medication (Sifrol), she was exhausted and depressed due to lack of sleep. Her current medication is working so far.

Glad to hear that you are doing well and that you realize that they may be a time limit on how long Sifrol works for you. Please get us involved when that time comes so that we can help you understand the options you have for the next phase of treatment.

Welcome to LaurieB

Posted: Sun Dec 15, 2019 12:30 pm
by Rustsmith
Sunday, December 15

Welcome to

LaurieB, who has RLS and it is getting worse. She feels she could benefit from other RLS sufferers as she does not know how to make it better or if she can. It disrupts her life and well being.

You can definitely make it better. Please post a note telling us what you are doing to manage your RLS so that we know where to start with our suggestions for improving your well being.