DECEMBER 2019 - New Members

[Rustsmith]

Sunday, December 15

Welcome to

Mwykes, who has had RLS for many years and is always looking to share and receive information.

This is a great place to both share and receive info on RLS. Please post a note telling us a bit about your RLS and what you are doing to manage the symptoms.

[Rustsmith]

Sunday, December 15

Welcome to

Shelby, who has severe RLS and has tried more remedies than she can count! RX meds, increasing dosage again and again does nothing but cause horrific side effects! She has researched RLS and tried numerous heath supplements, homeopathy, vitamins, cannabis etc, with no satisfactory results. She is at a point of considering amputation except for the phantom pain!!

We all know exactly you are talking about. Please post a note telling us about all the failed meds. There are answers, but often it requires guiding the doctor toward the answer rather than the other way around. Many of us have also had to fire doctors that were not willing to work with us.

[Rustsmith]

Monday, December 16

Welcome to

Will C, whose lack of sleep has caused anxiety and depression.

Those are complaints that most of us share. Please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions for improving your sleep.

[Rustsmith]

Monday, December 16

Welcome to

jumpylegs1, who has had PLMS for many years and it has gotten to the point where it occurs nightly along with insomnia. It leaves jumpy fatigued during the day. jumpy has been a Foundation member for many years and is wondering if anyone has tried weighted blankets or light therapy.

Take a look through our forum on Physical Treatments for some of that info. Some people report that weighted blankets help while others simply cannot stand the weight of a sheet, much less a weighted blanket. As for light therapy, we recently had a discussion about the use of near infra-red light, but it was too soon to tell if it was helping.

[Polar Bear]

Wedesday 18th December 2019

Welcome today to

Danthespan - who is suffering with rls, is at his/her wits end and is desperately seeking help,

Each and every one of us has felt your desperation and we are here to try and help you.
Please post and tell us how your rls is affecting your life, tell us what medication you may be taking, also what medication you may already have tried and has failed to help you.

[Polar Bear]

18th December 2019

Welcome today to -

Gramov8 - who has RLS and neuropathy in feet, insomnia and is unable to work because of this.

Please tell us how you are coping and what medications if any, that you have tried.
The more information you provide the better we can try to help.

[Rustsmith]

Wednesday, December 18

Welocme to

Danthespan, who is suffering with RLS and is at his wits end.

Please post a note telling us what you are currently doing to treat your RLS so that we can offer some suggestions to help you out.

[Rustsmith]

Wednesday, December 18

Welcome to

cravenmonket, whose symptoms began several months/one year ago and have progressed to the point that he is dreading night time. He has to get up every night and move around to get the symptoms to stop. Looking for any help or advice he can get.

Have you spoken with your physician yet? If so, what sort of treatment are you using to manage the symptoms other than moving around at night? If you will post a note and tell us a bit more, we can offer you some advice on how to proceed from where you currently are.

[Rustsmith]

Thursday, December 19

Welcome to

gmiller43, who has had RLS since being a child (1950's) and back then when you went to the movies, you saw to feature films, cartoons and news reel. gmiller was never able to sit thru the second feature. It was in the 90's that RLS really began to become a problem. gmiller has experienced augmentation for the last several years. Last April gmiller read an article about a study using Mirapex ER in which all the subjects were experiencing augmentation on the the regular release medications. They were put on Mirapex ER and the augmentation went away. At the end of the study which lasted 7 months the augmentation had not returned. Last June, gmiller switched to Mirapex ER and has not experienced any augmentation.

I hope that you success with Mirapex ER continues for a long time. When I augmented on Mirapex, I was switched to Neupro (another slow release dopamine agonist). I went for another 15 months before augmenting again and had to change to a completely different treatment scheme.

[Rustsmith]

Saturday, December 21

Welcome to

Kasch2, who has RLS and it’s gotten to be really bad after having it for approximately 20 years. Kasch doesn’t get much sleep and it affects functioning during the day.

Please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions for improving your situation.

[Rustsmith]

Sunday, December 22

Welcome to

Bellagirl, who cannot sleep at night, so is up most nights walking. It starts around 6 pm every night. She exercises, stretchs and takes epsom salt baths at night sometimes 2 baths to help. So exhausted during day.

Please post a note telling us if your doctor is treating your RLS. There are ways to help you and for you to get some sleep. But we need to have a idea about where to start with our suggestions.

[Rustsmith]

Monday, December 23

Welcome to

Silentmeow, whose RLS has lately it has started to control her life since she has to take meds every 2to3 hours to get by.

Please post a note telling us about your med (including the dose). There is a very good chance that we can provide you with some help.

[Rustsmith]

Monday, December 23

Welcome to

rlxtreme, who has an extreme case of RLS. He has had this disease 38 years. It has ruined his life, and his wife's as well. Thank goodness she is helpful, and is the only reason he still exists. My thoughts are, I could share my experiences, attempts at relief, maybe help someone, or find help.

That sounds like something that I could have written. Please post a note telling us about your current treatment and past attempts at relief so that we can offer some suggestions for improvement.

[Polar Bear]

25th December 2019
Christmas Day

Welcome today to

nikki - who I has had to change careers from writing to painting because sitting for long lengths of time writing and doing research is too painful, but with art nikki can get up and stretch/walk often. Also there seems to be "augmentation".

You have already taken steps to try and accommodate your rls. Please post and tell us about your medication. We want to help.

[Polar Bear]

Saturday 28th December 2019

Welcome today to:

littlejack who would like to share his success story regarding RLS

Please do post. We are always eager to learn what has worked for someone coping with rls symptoms.