Restless Legs Syndrome (RLS) Discussion Board

Tuesday, January 14

Welcome to

psorlin, who has suffered for 15 years from RLS/WED and only seldom sleeps without vigilant stretching of the calves.

If you will post a note telling us what you are doing to manage your RLS beyond stretching, we can probably provide some suggestions for improving your sleep.

Thursday, January 16

Welcome to

BagCke02, who has RLS plus neuropathy and needs help with medications to control her symptoms. She would like to hear how other people are coping with these disorders.

Please post a note telling us what you are taking for both of your conditions so that we can provide some comments and suggestions for you.

Thursday, January 16

Welcome to

Kharr6869, who has not been able to relax or sleep in the 2 years since Kharr's RLS started. It has been difficult to find the right dosage and timing of medicine to provide relief. Kharr's friends do not understand what what it is like.

We understand and may be able to provide some suggestions to bring it under better control. Please post a note telling us about your medication experience so that we can offer some suggestions.

Thursday, January 16

Welcome to

DOutlaw, whose RLS is a daily challenge. DOutlaw is on medication, but is still challenged. DOutlaw is going to seek a doctor who really knows about RLS.

If you will post a note giving us a general idea of where you live, we may be able to help in your quest for a doctor. At the lease, we can give you some suggestions on how to proceed.

Friday 17 January 2020

Welcome today to:

Crystal3777 who has Rls ruining her life. The older she gets the worse it gets. She averages 3 days a week with no sleep at all and has to try to work all the next day.

Crystal I can empathise with this, I also worked many days having had no sleep the previous night. Many members here will have been in the same position. Please post and tell us how you cope, are you taking any medications, we will try to help.

Friday, January 17

Welcome to

Dadhadit1972, who is seeking non prescription solutions for self and family members.

Take a look through our information in the Physical Treatments and Non-Prescription Drugs forums to get idea of what works and just as important, what doesn't.

Saturday, January 18

Welcome to

akhar53, whose RLS is making it hard to find a doctor. Clonazepam has helped her 95% of the time. However, doctors are no longer willing to give her the drug. Ropinirole caused her to go crazy, she had the impulse to kill herself and was falling down all the time. The list is much longer. She didn't know what was wrong for many years. She now has hip and knee troubles because of it. For many years she could only sleep for 3 or 4 hours per night.

If you will post a note to give us an idea of where you live, we can either point you toward a doctor that understands RLS or give you some suggestions on the best way to find one (even if it means having to educate a doctor who is willing to learn).

Monday, January 20

Welcome to

Stacym, who is 46 yrs old and has been struggling with RLS since she was in my her 30s. Her meds are no longer effective and her doctor is not trained in RLS- at one point even making fun of her condition. She has no where else to turn.

Please post a note telling us about your meds, we can offer you some suggestions both about changing meds to something that is effective and in the process that you need to do to find a new doctor who is willing to provide the care that you deserve.

Monday, January 20

Welcome to

Mycrazylegs, whose RLS makes life miserable. It starts early in the day.

Please post a note telling us about your current medication. If your RLS is starting early in the day, there is a good chance that you are experiencing augmentation and need to change meds to regain to control of your RLS.

Monday, January 20

Welcome to

Kfishburn, who has had RLS for 25 years, It has gotten worse each year. Kfishburn has an excellent sleep DR that wants to use oxycodone after the other drugs stopped working but Kfisburn can’t find a DR that will prescribe it.

You are right that you have a great sleep doctor if (s)he wants to use oxy after you failed other meds. Many of us have either had to start calling all the local doctors that accept our insurance to ask if they will consider prescribing low dose opioids or else we have had to travel to see a neurologist at the closest teaching hospital, where the opioid hysteria often doesn't seem to be as bad.

If you will post a note and give us an idea of where you are located, we may be able to offer some other suggestions on how to proceed.

Tuesday, January 21

Welcome to

latitude26, whose 81 y.o. mother is still active and independent but is suffering from Augmentation which is making her miserable. latitude has been on ropinirole for 1 yr primarily to treat incapacitating night time muscle rigidity/"leg cramps" and hyperthermic episodes , which thankfully it has. But latitude's RLS symptoms are increasing and she doesn't want to end up like her poor mom! latitude is hoping to help her mother gather information to take to her doctor and find a practitioner that can help her withdraw and find another treatment for her severe RLS and so latitude I can obtain more info to be more proactive with her disease.

For info in augmentation, take a look through our Augmentation forum. For more specific advice, we can help you out if you post a message with any questions that you have. Most of us have been through augmentation, so we understand and want to help both of you as much as we can.

Wednesday, January 22

Welcome to

Dakotaboyd, who is not sleeping well which isn't good when you're a single mother of 2 boys. She can't seem to find any relief. She has even tried rubbing Apple cider vinegar on her legs before going to bed.

Please post a note telling us whether you have been treated by your doctor for this and if so, what meds have you tried. Relief could be as simple as taking an iron supplement, but we need to know more.

Wednesday, January 22

Welcome to

dwhite00, whose RLS has disrupted his sleep for years and so wants to share some effective therapies.

We look forward to seeing your post and a description of how you manage your RLS.

Wednesday, January 22

Welcome to

Moosh66, who has Restless Arm Syndrome which is the same as the RLS but only in the arms. It interrupts Moosh's sleep and Moosh can't sit still.

My previous doctor says that the "L" in RLS should stand for Limbs because it can happen just about anywhere in the body. If you will post a note telling us what you are doing to manage your "RAS" then we may be able to offer some suggestions to help you gain control.

Thursday, January 23

Welcome to

ktonetti, whose RLS has thrown off her sleep which throws off her entire day. She is afraid to go back to work because she fears that she will not have enough rest to perform well.

Please post a note telling us what you are doing to manage your RLS. We can probably provide you with some suggestions to improve your sleep.