MARCH 2020 - New Members

[Rustsmith]

Sunday, March 1

Welcome to

Anniez, whose RLS has robbed her of countless nights, walking the halls, trying different beds, sleeping on the couch, baths at 2 AM, all to no avail. Her doctor prescribed Requip, but she is fearful of the side effects.

Please post a note so that we can offer you some advice. For example, has your doctor checked your ferritin level (this is very important if you are going to take Requip) and have you tried gabapentin or Lyrica yet?

[Rustsmith]

Sunday, March 1

Welcome to

Sosleepy, who is a nurse with 8 years until retirement and she feels like she won’t even make it that long because of how RLS has affected her. She is still researching ways to cope.

Please post a note telling us what you are currently doing to manage your symptoms and to cope so that we can try to offer you some suggestions.

[Rustsmith]

Sunday, March 1

Welcome to

MDou, who has RLS every night and it’s severe.

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have so that we can try to offer some suggestions for improving your control.

[Rustsmith]

Wednesday, March 4

Welcome to

nyla1102, who is suffering from RLS and can’t sleep and has been to a few neurologists but still not sure on the best way to get RLS under control.

Please post a note telling us about the what you are doing to try to control your RLS so that we can offer your our comments.

[Rustsmith]

Wednesday, March 4

Welcome to

stay awake at night, who is looking for ways to manage RLS and trying to get a good night sleep.

Please post a note telling us what you are currently doing to manage your symptoms so that we will have an idea of what we can suggest.

[badnights]

Everyone please welcome Tillie to the board. Tillie has had WED/RLS for fifty years and has experienced the horror of augmentation. "Every aspect of life affected by this disorder." Indeed.

Welcome, Tillie. Sorry you have to be here, but I know you;ll find all sorts of encouragement and advice.

[Rustsmith]

Saturday, March 7

Welcome to

Jace.c15, who has struggled with restlessness in his legs, arms, and lower back since around 2008

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have so that we can try to offer some suggestions to you.

[Rustsmith]

Sunday, March 8

Welcome to

MEC, whowants to support others with RLS and ask questions of fellow sufferers.

Please post a note telling us how you manage your RLS and asking any questions that you have.

[Rustsmith]

Monday, March 9

Welcome to

Kidder, who has had her veracious veins removed, acupuncture, physical therapy, iron infusions, B12 shots every 2 weeks, numerous medications, creams, lotions, has seen specialists and is getting no relief. She desperate and tired of not being able to ride in a car more than a few miles, go to a movie or just be able to sit in the comfort of her home.

Please post a note telling us about your medications and the specialists that you have seen. There are ways to get relief, but we need to know where to start and that could involve finding the right doctor.

[Rustsmith]

Tuesday, March 10

Welcome to

emmy, who has had RLS for about 7 years now. As a student in grad school, her RLS symptoms have certainly affected her life and made it difficult to get her work done when her symptoms start. She is really interested in talking with other people who also have RLS.

Please post a note telling us what you are doing to treat your RLS so that we can know what sort of suggestions to make.

[Rustsmith]

Tuesday, March 10

Welcome to

Kuper206, who suffered from RLS for over 20 years and has finally found medication that works. Kuper wants to share with everyone and offer support.

Please post a note telling us about your medication that is working for you. We are always looking for new potential treatments.

[Rustsmith]

Tuesday, March 10

Welcome to

Robin_Eilands, who would like to join because after 54 years of dealing with RLS/PLMD, she finally got her diagnosis. She has searched, been tested, poked, accused of being a drug addict, and just finally feels like she could share my story and maybe even impart some medications that did not work. She knows she could be the exception to the rule, so to speak. But would like to share none the less.

Please post a note telling us your story and asking any questions that you have. Although 54 years is longer than any of us have had to wait, delays in getting a diagnosis and treatment are not unusual.

[Rustsmith]

Tuesday, March 10

Welcome to

Khoffner, whose RLS means no resting during the day or at night. Ropinerole is helping at night and for that Khoffner is grateful.

Please post a note asking any questions that you have. We would love to be able to help you get even more rest.

[Rustsmith]

Thursday, March 12

Welcome to

mthomas290, whose mother suffers from chronic RLS.

Please post a note telling us what sort of meds she is taking, asking any questions that you have and let us know what we can offer you that would help both of you.

[Rustsmith]

Friday, March 13

Welcome to

mytwoozer, who has had RLS for approximately 30 years. Over the years it has become progressively worse. It now involves both upper and lower body. mytwoozer's RLS mostly occurs during the day and is unresponsive to medications, including high dose opiates. mytwoozer is depressed and has difficulty performing routine daily activities, does not sleep well at night, but not due to RLS and therefore mytwoozer sleeps most of the day.

Please post a note telling about the meds that didn't work and why your doctor thinks that they were ineffective.