APRIL 2020 - New Members

[Rustsmith]

Friday, April 24

Welcome to

peggyflorida, who has been up for three days and is exhausted. She has had RLS all her life but now it's arms, legs and whole body.
Have been on all prescriptions and now the neupro patch with terrible augmentation. She is 79 years old and figures this will kill her.

Since you understand that you are augmenting on the patch, what has your doctor suggested as the next step? Please post a note and tell us where you expect to go from here.

[badnights]

Hi peggyflorida! Welcome! Please post and tell us how you are. It sounds like you're in agony and your doctor doesn't understand!

[Rustsmith]

Saturday, April 25

Welcome to

Gregg65, who has trouble sleeping thru the night. One of the main reasons he retired. He probably would have continued a few more years but with the lack of sleep it was too much.

Please post a note telling us what you are doing to manage your symptoms. We may be able to offer some suggestions to help you get more sleep.

[Rustsmith]

Saturday, April 25

Welcome to

swiderek11031949. who is at the end because she cannot sleep at night.

Please post a note telling us what your doctor has provided you with to treat your RLS. There are ways to get more sleep, but we need to know where to start with our suggestions.

[Rustsmith]

Saturday, April 25

Welcome to

Poppy65, who has had RLS for 20+ years. She had a rebound on Pramipexole and could not sleep for days or even lie down when she was incorrectly told by the neurologist to stop the Rx immediately. She nearly lost her job. She is on a codeine protocol which helps but is plagued every night and sometimes during the day. The name is RLS, but for me the twitching and jerking movements are full body.

Please post a note telling us about your codeine dose, when you take it and if you have found a different neurologist. We would love to be able to help, but need to know where to start with our suggestions.

[Rustsmith]

Saturday, April 25

Welcome to

Jenni, who can’t sleep and RLS is driving her crazy.

Please post a note telling us what you are taking for your RLS so that we can know what sort of things that we can suggest to help you get more sleep.

[Rustsmith]

Sunday, April 26

Welcome to

khaleddefine, who is in pain and is just 23.

Please post a note telling us what you are currently taking for your RLS. You are not alone, we can provide you with suggestions on how to reduce your symptoms.

[Rustsmith]

Sunday, April 26

Welcome to

kharris1211, who works very closely with people living with RLS and wants to better understand how this affects their lives.

Please feel free to look around and ask any questions that you have.

[Rustsmith]

Monday, April 26

Welcome to

Sandy_Loam, whose RLS is compromising the ability to relax and fall asleep, and this has consequences on psychological status during the day.

We all understand and share your issues. Please post a note telling us what you are doing to manage your RLS so that we can know where to start with suggestions for improving your relaxation and the ability to sleep.

[Rustsmith]

Monday, April 26

Welcome to

Jaime, whose RLS causes her to lose sleep and as a result her work and social life suffers. She is tired during the day from poor sleep due and so her RLS is ruining her quality of life.

Please post a note telling us what you do to manage your RLS so that we will have an idea of what we can suggest to improve your sleep and thereby your quality of life.

[Rustsmith]

Tuesday, April 28

Welcome to

RickyS29061, who has had severe RLS since an early age and as getting older( now 29 yrs old) it has only gotten worse. Most doctors don't understand it. Ricky has been on different meds as of recently trying to find some that work and so far no luck.

Most of us have struggled with doctors as well. Please post a note telling us about the meds that you have tried so that we can try to offer some suggestions that have a chance of working.

[Rustsmith]

Tuesday, April 28

Welcome to

Amyking0013, who cant sleep and is in constant pain. She has had RLS since sje was 3 yrs old (now 43). It's getting so severe and nothing is working,

Please post a note telling us about the various things that you have tried so that we can offer some suggestions that have a good chance of working.

[Rustsmith]

Tuesday, April 28

Welcome to

Missymcadams, whose RLS results in not being able to get a peaceful sleep.

We can all relate to that. Please post a note telling us what you are doing to manage your RLS. We may be able to offer some suggestions to be able to get a peaceful night.

[Rustsmith]

Tuesday, April 28

Welcome to

bumble34, whose thoughts or symptoms of RLS are increasingly dominating his life.

If you will post a note telling us about your symptoms and what you are doing to manage them, we can offer some suggestions for improvement.

[Rustsmith]

Wednesday, April 29

Welcome to

ltillesk, who is renewing her Foundation membership after joining last year. The discussion board and articles have been fabulous as she navigates through her RLS journey.

Thank you for supporting the Foundation. If you have any questions, please post a not and ask. We would love to be able to help you out.