JUNE 2020 - New Members

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to rf12345

Post by Rustsmith »

Friday, June 26

Welcome to

rf12345, who has been diagnosed with mild sleep apnea and RLS. However, the RLS seems to be a strange variety and the current medication rf12345 is on is not offering any relief so rf12345 is wondering if anyone else is experiencing the same issues. rf12345 is currently getting only a few hours of sleep each night and needs relief!

We would love to be able to offer you some comments, suggestions and answers to any questions that you have if you will post a note telling us about what meds you are taking that don't appear to be helping.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Celine

Post by Rustsmith »

Friday, June 26

Welcome to

Celine, who is currently in in an augmentation phase with Ropinerole and haw decreased from 1 mg to 1/2mg with great difficulty. She really needs the support and knowledge of other people with RLS to learn more about what to do. This is extremely challenging.

Going through the phase of getting off of a dopamine agonist after augmentation is definitely one of the most difficult things about RLS. We would love to offer whatever support you need to get through this period if you will post a note telling us more about your current situation.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Nlthomp

Post by Rustsmith »

Saturday, June 27

Welcome to

Nlthomp, who is augmenting from eight years of Ropinirole. RLS has now spread to Nlthomp's arms and going out of mind and don’t know what to do. Nlthomp is exhausted and dreads going to bed.

We would be glad to help you out with advice about how to survive augmentation. If you will post a note telling us about your current dose of ropinirole, we can let you know what your options are and the type of help that you need to ask your doctor for.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Welcome, Berta123

Post by ViewsAskew »

Sunday - 28th of June

As we close out June, we welcome Berta123 who says that RLS is never far from their mind - from the effect on sleep, wakefulness, or the medication side effects.

Indeed. Such a vicious circle.

Participate however works for you, Berta123. Post (or not). We're here for you.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 6259
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to Rebeccalee1991

Post by badnights »

Welcome today to Rebeccalee1991. This disease has taken away her ability to get a good night's rest.

Hi and welcome - We know exactly what you mean. Start a Topic, if you'd like to tell us more about your situation, or just comment in existing Topics. There are lots of wonderful people here. You will get lots of compassion, and useful suggestions, too.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

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