JUNE 2020 - New Members

[ViewsAskew]

12 of June - Friday

Welcome, llwebb. So sorry you are having symptoms that affect your life so much. Read posts, start a new one and tell us about your situation or what you've tried, or ask questions - whatever you need, we'll do our best to help you with it.

[Rustsmith]

Friday, June 12

Welcome to

Ilwebb, who can’t relax, can’t watch a movie, can’t sleep and can’t sleep with her husband due to her RLS.

We may be able to offer you some suggestions to discuss with your doctor that will help remove some of those can'ts, but we would need for you to post a note telling us about what you are currently doing to manage the symptoms so that we would know where to start with our suggestions

[Rustsmith]

Sunday, June 14

Welcome to

TaraD, who has had RLS for 12 years, isgoing through augmentation and needs encouragement.

Most of us have been through augmentation and it can be horrible. Please post a note telling us about your current situation so that we can offer encouragement as well as give you an idea of the road ahead. We all understand how difficult this time is.

[Rustsmith]

Monday, June 15

Welcome to

batesmillr, whose RLS causes too many sleepless nights. Which then affects the quality of one's daytime, too.

If you would like to have us suggest possible improvement to your RLS to reduce the number of sleepless nights, please post a note telling us a bit about what you are doing to manage your symptoms so that we would know what to suggest.

[badnights]

Welcome, readmylegs. You've had RLS/WED for a long time, and are suffering chronic sleep loss, lowered quality of life, and disorders of migraines, depression, and CFS that seem to be related to the RLS/WED. readmylegs says "Due to awful discomfort at rest, normal activities have always been difficult at best and has caused me to practically panic at the possibility of not being able to exercise."

You're among people who know how you feel, here. We might even be able to help lessen your suffering. Start a Topic to tell us more about your situation; or comment on other peoples' posts.

[Rustsmith]

Friday, June 19

Welcome to

pteich, who has adult ADHD with PLM and it has trashed pteich's sleep. After a few years on ropinerole and its loss of efficacy, pteich is back trying new meds and habits.

If ropinerole has lost it efficacy, that could mean that you are experiencing Augmentation, which is a side effect of ropinerole that is specific to RLS but many physicians are not familiar with it. If it was augmentation, then simply switching to a different dopamine agonist such as pramipexole or rotigatine (Neupro patch) is generally not recommended. Take a look through our forum on Augmentation to learn more and feel free to post a note asking any questions that you have and we will do our best to help you out.

[badnights]

Welcome to Bedbboc, who has had RLS/WED since childhood, was diagnosed in 1993, spent 27 years on dopamine-type medications, and has recently started opioids for severe and debilitating disease. You have support here.

It sounds like you were augmented on the Mirapex and/or carbidopa; those medications are notorious for that. (Augmentation is when the medication that's supposed to help the WED/RLS makes it worse). For some of us, it's a long slow slog to get back to some semblance of normal after being on dopamine-type meds; how long have you been off them?

This Topic is reserved to welcome new members, but you can start a Topic of your own in any Forum. Please do, and begin to meet some of the wonderful people on this board!

[Rustsmith]

Saturday, June 20

Welcome to

janmarie1940##, whose RLS won't stop until she uses heat or takes a medication. Sometimes its last until after she goes to bed and that keeps her from going to sleep.

Unfortunately, one of the criteria for RLS is that it primarily occurs during the evening or at night when we are trying to get some sleep. If you have any questions, please feel free to post a note with anything that you would like to ask.

[Rustsmith]

Sunday, June 21

Welcome to

jrochelle68, who is looking for support and maybe to find ways to deal with RLS better.

We would love to provide whatever support that you may need. And if your would be willing to post a note telling us a bit about what you are currently doing to manage your RLS, we may be able to provide some suggestions to that you allow you to better deal with your symptoms.

[Rustsmith]

Monday, June 22

Welcome to

loriann, whose RLS is causing her to lose sleep, She goes to bed and within 15 my minutes if she hasn’t fallen asleep one of her legs will start to tingle and eventually need to move. She is losing sleep which leaves her irritable and frustrated. It causes her to worry that she'll have trouble sleeping the next night and every night.

The sleep issues with RLS are what drove most of us to first seek medical help. If you are willing to tell us a bit about what you do to manage your symptoms, we may be able to offer some suggestions to improve your ability to get some sleep.

[Rustsmith]

Monday, June 22

Welcome to

CLB, who has had it nearly all of CLB's life, but it has gotten so bad in the last few years that now it is completely ruining CLB's life. So, CLB is looking for suggestions that may not have been tried yet.

We would love to be able to help you regain control of your RLS. If you will post a note telling us about the things that you have tried, we should be able to offer some suggestions of new things as there is almost always something else to try.

[Rustsmith]

Wednesday, June 24

Welcome to

Einszwei, who has had symptoms since childhood, but only now have those symptoms reached Einszwei's consciousness and negatively affected life.

If you would like some suggestions for improving the control of your RLS, please post a note telling us about what you are doing to manage now that the symptoms have become noticeable so that we can offer you some suggestions.

[Polar Bear]

Thursday 25 June 2020

Welcome today to:

Wayne4563 who has had rls for 20 years; has affected Wayne's sleep patterns in a bad way.

Wayne we all know how you feel. It is usually the lack of sleep that ends up driving sufferers to seek help. We also want to help and if you
start a thread or joint an existing thread please tell us how you have been manageing for the last 20 years. It would help to know what medications, if any, you are using. It would be our aim to help you and try to find a way to improve your sleep patterns.

[Polar Bear]

Friday 26 June 2020

Welcome today to:

fr12345 - who has been diagnosed with mild sleep apnea and RLS. However, the RLS seems to be a strange variety and the current medication is not offering any relief. fr12345 is wondering if anyone else is experiencing the same issues. Current meds and symptoms will be detailed if accepted. Currently getting only a few hours of sleep each night - need relief!

Coinicidentally I have just been diagnosed with moderativ obstructive sleep apnea. Its difficult to fight sleep apnea, rls, and probably insomnia, in search of sleep. Please do post, you could start a thread in the Just Joined Forum. Tell us all that you can and lets see where we can go from there.

[Rustsmith]

Friday, June 26

Welcome to

Wayne4563, who has had this RLS for 20 years and it has affected his sleep patterns in a bad way.

We would be happy to provide you with some suggestions for improving control of your RLS if you would be willing to post a note telling us about what you are currently taking for it.