OCTOBER 2020 - New Members

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 5148
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to drowsy24

Post by Rustsmith »

Thursday, October 29

Welcome to

drowsy24, for whom sleep disruption is primary problem. The daily weariness and brain fog are the unpleasant side effects to sleep deprivation. As evening progresses, drowsy becomes increasingly anxious: "Will it start again? Will I be able to get to sleep and stay asleep. Bedtime = fear".

Insomnia is usually the primary complaint that drives us to first seek help from a doctor. We can therefore relate to everything that you said. If you would like some suggestions of what will help you with sleep (and what will not), just post a note with any questions that you have and be sure to tell us what you are currently doing to manage your RLS so that we will know where to start with out suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 5148
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Jasmine

Post by Rustsmith »

Thursday, October 29

Welcome to

Jasmine, who had the worst RLS episode 2 weeks ago. She fell and broke one of her ribs. She began having RLS at age 35 and now she is 61. She takes Mirapex. It helps but she has been taking it so long that it has lost some of its affect. She does not speak of her episodes even to her doctor any longer. It is like no one believes it is truly that bad. She feels crazy sometimes.

We definitely believe you since most of us have been in the same place as you are in. If you have been taking Mirapex for a long time and it isn't working as well, you may be experiencing augmentation. Take a look through our Augmentation forum and if that sounds familiar, then please post a note telling us about your dose and your current situation so that we can let you know what to expect. And if your doctor doesn't listen, then we can also provide you with advice on the steps you can take to find a doctor who will not only listen, but can help you regain control of your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 5148
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Anguished

Post by Rustsmith »

Thursday, October 29

Welcome to

Anguished, whose RLS is hibernating. It has been almost a year. Unfortunately it is not cool how she made this happen. Her fix for RLS is 20 mg of methadone. Its what works.

Anything that controls RLS is cool! You will find that a significant percentage the members of this board use an opioid and methadone is possibly the most common. Control of your RLS so that your life is close to normal is what is important, not which meds that you have to take to make that happen. If you have any questions or simply would like to join in on one of our conversations, either post a note or jump right in.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 5148
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Twitchy-One

Post by Rustsmith »

Friday, October 30

Welcome to

Twitchy-One, whose duo of Periodic Limb Movement Disorder and Restless Leg Syndrome has interfered with her ability to fall asleep and stay asleep for years. Lack of sleep has had an adverse affect on several life domains including: (1) health/immunity; (2) work; (3) education/learning, (4) recreational activity, and on occasion, (5) emotions and psychological well-being.

I suspect that we can all relate to the challenges that you listed. If you have any questions, please feel free to post a note. If you are willing to tell us what you are doing to treat your RLS and how well it is currently working, we might be able to offer you some customized suggestions for improving your control of your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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