FEBRUARY 2021 - New Members

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to abner

Post by Rustsmith »

Monday, February 8

Welcome to

abner, who because of RLS can make no plans, gets little sleep, finds that friends are hard to find and keep and that it is hard to drive.

We can all sympathize and relate to those limitations that RLS puts on us. If you would like suggestions on how to improve control of your RLS, just post a note and we will do what we can.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Tomjer

Post by Rustsmith »

Tuesday, February 9

Welcome to

Tomjer, whose RLS makes it difficult to fall asleep, which in turn makes him drowsy, low energy/concentration during the day. Also his mom and sister have suffered from it for decades and have tried many things with no help. He is here hoping to find something that can at least help reduce the severity of their RLS and improve their quality of life.

We are sorry you had to find us but glad that you did. Please post a note with any questions that you have so that we can provide you with whatever help you need.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to slynn1989

Post by Rustsmith »

Tuesday, February 9

Welcome to

slynn1989, who has had RLS for many years and it has been controlled with medication. However, it has recently it has become quite severe and is not responding to any medication.

Depending on which medications you have tried, it is possible that you are experiencing augmentation. If so, you will need help getting off of you old med and onto something that your doctor may be reluctant to prescribe. If you will post a note telling us about the meds that you have tried, we may be able to tell you what would work.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Shortmoments

Post by Rustsmith »

Tuesday, February 9

Welcome to

Shortmoments, who wants both to receive and give support, to share what works and doesn’t work for RLS that is affecting life every day and to bring RLS info to Australia.

We would be happy to provide whatever help that you can use. Please feel free to post a note to tell us what we can do to help.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to AZLesley

Post by Rustsmith »

Wednesday, February 10

Welcome to

AZLesley, who has experienced RLS since middle school and it has only gotten worse with age. She has played and continue to play the medication "shell" game in trying to find something that works, until it doesn't. She is tired of being beholden to medication that helps and hurts and is looking to educate herself on RLS and alternative options to manage this.

We certainly have plenty of options to offer when it comes to treatment of RLS symptoms. If you want to get our recommendations, just post a note with a summary of the treatments that you have tried so that we will know where to start.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to greer

Post by Rustsmith »

Wednesday, February 10

Welcome to

greer, who is sure greer's symptoms are not as bad as some they do make it harder to enjoy the time of day after dinner.

Any level of RLS symptoms are too much for anyone and reduces our quality of life. If you would like some suggestions on how to reduce your symptoms, just post a note and tell us what you are currently doing, if anything.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to sycamore

Post by Rustsmith »

Wednesday, February 10

Welcome to

sycamore, whose RLS causes decreased quality of life and especially sleep.

We all struggle with sleep issues and the reduction in quality of life that this can cause. Feel free to post a note telling us what you are doing to manage your RLS if you would like us to provide some suggestions for improvement.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to d_a_coll

Post by Rustsmith »

Thursday, February 11

Welcome to

d_a_coll, whose RLS feels like torture and d_a_coll has no idea how it is going to be from day to day. Evenings are dreaded.

Torture is a common description of RLS and everyone dreads sunset. If you have any questions, please post a note so that we can try to help.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to asabrinao

Post by Rustsmith »

Thursday, February 11

Welcome to

asabrinao, whose husband has suffered from RLS for decades and is currently experiencing augmentation for the second time.

Anyone who has augmented on a dopamine agonist should never go back on that class of drugs again. If you would like our comments about the alternatives to dopamine for his RLS, just post a note with your questions and we will be happy to help both of you out.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to gtmustangjim

Post by Rustsmith »

Thursday, February 11

Welcome to

gtmustangjim, who started getting periodic leg movements at night a month ago. Now he has 24/7 creepy crawly RLS. He says, "THIS IS JUST HORRIBLE, I CAN'T STAND IT."

Both PLMD and RLS are something that only occurs at night unless it is caused by a medication. Are you taking an anti-depressant? They can cause symptoms that mimic RLS. If you would like us to provide some comments, post a note telling us a bit more about yourself so that we can try to help sort things out for you.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Marierm

Post by Rustsmith »

Friday, February 12

Welcome to

Marierm, who has had a lifetime of RLS. She is 94 years old now and her RLS is worse than ever. She is unable to sleep.

I don't know if 94 yrs of RLS is good or bad :lol: . We may be able to provide you with some suggestions for finding more sleep. All that you need to do is post a note telling us what you have been doing to manage your RLS lately so that we will know what we can suggest for you to discuss with your doctor.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to dalkirejr

Post by Rustsmith »

Monday, February 15

Welcome to

dalkirejr, who is 67 and RLS continues to worsen dalkirejr now jumps and twitches early in the day, can barely ride in a vehicle for more than a few minutes and it starts. dalkorejr has been prescribed every drug imaginable in the last 20 years and most have opposite effects; can’t sleep or drive due to not sleeping and the only relief has been with opioids. dalkirejr has been referred to a pain clinic, but no resolution yet.

Many of us rely upon opioids to control our RLS. That is why the Foundation works so hard to advocate for modifications to the opioid laws. If you have any questions, just post them and we will try to provide an answer.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to anitardb

Post by Rustsmith »

Monday, February 15

Welcome to

anitardb, whose RLS started a year ago. She couldn't fall asleep or stay asleep. Her dr. started her on .25 mg ropinerole, which works but she has noticed the RLS is starting during the day. She is 70 with diabetes and this is taking over her life.

If your symptoms are starting earlier in the day, you may be experiencing augmentation since that is one of the signs. If so, you need to get off of ropinerole and not switch to a different dopamine agonist (pramipexole or the Neupro patch). Your doctor should have run blood test to check your ferritin level, but many do not know that they need to do this. If your ferritin is low, oral iron supplements or an iron IV might be all that you need. If not, then you may need to try gabapentin or Lyrica to see if they will do the trick. The only problem with this is that stopping ropinerole is VERY difficult if your doctor will not give you about a week's worth of an opioid. To learn more, take a look through our Augmentation files or post a note with your questions.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to carlo

Post by Rustsmith »

Monday, February 15

Welcome to

carlo, whose RLS has bothered him for at least 25 years. He does a lot of walking to alleviate the symptoms. Sometimes he has not been able to sit through a movie or play without getting up to walk around. At other times he has gotten up in the middle of the night to walk on the treadmill. The last six weeks, he has been walking for at least 15 minutes every 3 to 4 hours during the day with good success. He wants to know what others are doing to relieve symptoms and he wants to share what has worked for him.

You can get an idea of what others are doing by looking around past discussions. The range of severity for our members extends from about moderate to very severe, so relief can come via a number of ways. Please feel free to join in any of our existing discussion threads or post a note with any questions that you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to mshappyfeet

Post by Rustsmith »

Tuesday, February 16

Welcome to

mshappyfeet, who is looking for new ideas to treat/live with RLS.

We have lots of ideas to share. If you don't find what you are looking for, just post a note to get things started.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Locked