MARCH 2021 - New Members

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

MARCH 2021 - New Members

Post by Rustsmith »

Monday, March 1

Welcome to

Wiggleworm, who can’t sleep and can’t sit still in the evening. This has put stress on all aspects of life - marriage, daytime function, general outlook.

There is no question that RLS has many impacts on our lives. If you would like us to provide you with suggestions, all that you need to do is post a note telling us what you are currently doing to manage and asking any questions that you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to TNL

Post by Rustsmith »

Tuesday, March 2

Welcome to

TNL, who was diagnosed with RLS after a sleep study. TNL has had it for years but did not realize it could affect sleep as much as it does.

Although the name of the disease is "Restless Legs", half of the condition is the insomnia that we have. Most of us also have PLMS, which also disrupts sleep. If you have any questions, feel free to post a note and we will do what we can.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to julie.arneson

Post by Rustsmith »

Wednesday, March 3

Welcome to

julie.arneson whose legs are rarely comfortable and she is not getting much sleep. She is afraid there is no fix so is looking for support.

Julie, although there is no cure for RLS (now), there are treatments that you can use to control the symptoms. If you would like suggestions, just post a note and tell us what we can do.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to SJS

Post by Rustsmith »

Friday, March 5

Welcome to

SJS, who doesn't know what it is like to get a good nights sleep and feel rested.

That statement is true of almost all of us. Feel free to join any of our conversations or ask any questions that you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Incedars

Post by Rustsmith »

Friday, March 5

Welcome to

Incedars, who has a hereditary form of RLS, since Incedars's father and a sister and niece also suffer(ed) from it. Symptoms began when Incedars was a teenager. They have become much worse with age, and Incedars has been on medication which helps a lot but does not completely control it. Incedars is always interested in learning more about it and about new treatments.

Many of us have also had RLS since we were younger. We have learned that the target for our medication should be ~95% control. More and we run the risk of augmentation or becoming over medicated. If you have any questions, just post a note or simply join in on one of our ongoing discussions.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Mgb

Post by Rustsmith »

Saturday, March 6

Welcome to

Mgb, who wants to see what others are experiencing.

Take a look around and if you don't think you have seen enough, post a note with any questions that you have. We would also love to hear about your RLS.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Kanie964

Post by Rustsmith »

Saturday, March 6

Welcome to

Kanie964, who has suffered from RLS for over 20 years and would like to be in a group that understands the struggle.

We definitely understand the struggle of living with RLS. If you have any questions or would like to get some suggestions for reducing the struggle, just post a note. Otherwise, feel free to join any of our discussions.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Arizonasilver

Post by Rustsmith »

Monday, March 8

Welcome to

Arizonasilver, whose husband has RLS and they are just a mess. He doesn’t get much sleep if any and it has effected their whole lives.

We understand how RLS can become a problem for both of you. If you need suggestions on how to improve your situation, just post a note with whatever questions that you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to suspar

Post by Rustsmith »

Monday, March 8

Welcome to

suspar, who hase been having symptoms for a few months. suspar's doctor doesn't know too much about the condition and is glad to have support of others.

We will be happy to help you educate yourself so that you can educate your doctor. Feel free to post a note with any questions that you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Munchkin

Post by Rustsmith »

Monday, March 8

Welcome to

Munchkin, whose RLS is so severe that Munchkin doesn't sleep at all without strong medicine to stop the movement.

Unfortunately, for those of us with moderate to severe RLS, we usually require medication to overcome the insomnia side of RLS. If you have any questions or would like some personalized suggestions, just post a note and we will get back to you.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to to Aaronmerrifield87

Post by Rustsmith »

Tuesday, March 9

Welcome to

Aaronmerrifield87, whose quality of sleep is greatly affected by RLS.

If you would like some customized comments to help with your sleep, all that you need to do is post a note with whatever questions that you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Tiredcat

Post by Rustsmith »

Tuesday, March 9

Welcome to

Tiredcat, who has only recently become aware of the Foundation. She has no official diagnosis as yet but has all the symptoms. She is only on supplements, magnesium and quinine and very afraid of doing the wrong thing re treatment. She wants to find out where to start, sleep hugely interrupted waking 3/4/5 times a night.

Magnesium and quinine are things that are sort of old wives tales for RLS. Neither one is an accepted treatment. There are four steps that a doctor should follow with treatment. The first is iron therapy of blood work shows that your ferritin (an iron protein) levels are low. The next step to try should be either gabapentin, Horizant or Lyrica. Many doctors jump to step 3, which is either pramipexole (Mirapex), ropinerole (Requip) or rotigatine (Neupro), because this is what was done for many years. But these meds only work for a while and can have some unacceptable side effects, so should not be used until the other steps have failed. The last step are the opioids, which always work but are highly unpopular with regulators these days.

We would love to help you along the path toward gaining control of your RLS. Please feel free to post a message with any questions that you have so that we can help.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Dlwright

Post by Rustsmith »

Tuesday, March 9

Welcome to

Dlwright, who can't sleep at night and during the day can't function.

If you would like us to suggest ways to improve your sleep and ability to function, feel free to post a note telling us what you are currently doing to manage your RLS and we will try to help.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to PatientZero

Post by Rustsmith »

Tuesday, March 9

Welcome to

PatientZero, who have a severe case of Willis Ekbom Disease (RLS) that is now in the augmented stage. His struggle is now with the side effects of the prescriptions he has to take.

Most of us have been through augmentation, so we can readily understand where you are right now. You can learn more in our Augmenation forum or by simply posting a note to give us an idea of what you are currently taking so that we can give you a preview of where you go from here.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to joanna

Post by Rustsmith »

Wednesday, March 10

Welcome to

joanna, who has been suffering badly from RLS for about 19 years and would like to know of any non-medicinal treatments or diet which eases the condition. She is on Ropinarole and Pregabalin and is near to the maxiumum dose.

For non-prescription and physical treatments, take a look through our forums on those topics to get an idea of what few things work and those that don't. If you have any questions or would like to ask about specific subjects, just post a note so that we can reply.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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