APRIL 2021 - New Members

[Polar Bear]

Saturday 24th April 2021

Welcome to:

cjswift who has had RLS for 20+ years. It is worsening and cj is currently on ropinirole but is looking to switch medications and doing research on which med to switch to. cj is sleepy all the time and has frequent other symptoms. The doctor says that these could be a side effect of Ropinirole. The doctors seem to know little about RLS and cj is looking to educate his/herself in order to make the right decision on how to proceed.

Please to make a post when you are ready, starting a new thread would be best and provide information on your RLS/WED history and your present situation with regard to medications that have not worked, those that have or have perhaps helped a little bit. We will do our best to help.

[Polar Bear]

Sunday 25th April 2021

Welcome today to;

savannah10ster - who finds It is horrible riding on planes and when sitting for a long time. Also has started to anticipate[ate trigger times and that is not helping.

These are some of the typical horrible RLS/WED symptoms that we all have to deal with. Lots of information can be found in our Just Joined Forum but if you have questions, and I'm sure that you do, please consider joining a thread or starting your own thread. We are here to do our best to help our fellow sufferers and look forward to reading your post. Tell us how long you have had RLS, do you take prescribed medication/dosages etc. We need your information to be able to help you.

[Rustsmith]

Sunday, April 25

Welcome to

Sulybu, who had well controlled (on Gabapentin) RLS for years - until a year and a half ago when it suddenly got worse. She had to retire early because she couldn't work. The doc put her on Mirapex. That was a miracle until 8 weeks ago when she began to experience augmentation. Her life is a mess.

Since you are familiar with augmentation, you already know that you need to get off of Mirapex and since you were already on gabapentin, that may be an indication that you need to move on to one of the opioids. Will your doctor be willing to do that or are you going to need to find a doctor to treat your RLS now? Many of us have been successfully treated using a minimal dose of an opioid for years, so the only real issue is finding a doctor who understands what you need and is willing to stand up for you in that regard.

[Rustsmith]

Monday, April 26

Welcome to

sibo, whose RLS has profoundly effected live because of both severe sleep deprivation and the torture of having to move to temporarily to get rid of the creepy crawly feelings in her arms and/or legs. This in turn greatly affects her vocationally, socially, socially, emotionally, and spiritually. Sne can't plan any activity because she deson't know how much sleep she will get any given night. However, on the positive side, after she listened to Dr. Leonard Weinstock's webinar on SIBO as it relates/causes some cases of RLS she has found enormous relief by adhering to a strict SIBO diet!!

The SIBO diet doesn't help everyone, but it does work for some. We would love to hear about your experience.

[Rustsmith]

Monday, April 26

Welcome to

NeverSleep, who has had RLS since being a teen and it keeps getting worse with age. NeverSleep hasn't had a good nights sleep in years.

Those sentiments ring true for most of us. If you would like us try to give you some suggestions, all you need to do is post a note giving us an idea of what you are currently doing to manage your RLS so that we will have an idea of where to start.

[Rustsmith]

Wednesday, April 28

Welcome to

fwpenrose21, who is 42 years old; started with RLS in 2006 and was on ropinole for 10 years until it stopped working. Now fwpenrose has PLMD where fwpenrose's arms and legs move all night long.

If you were on ropinerole for 10 years, are you taking anything now? Most treatments for RLS also treat PLMD. If you would like to discuss this with us, all you need to do is post a note telling about your current treatment(s) to get us started.

[Rustsmith]

Thursday, April 29

Welcome to

lucade, who needs hope and support and can't tolerate Requip.

We would be happy to help you out and maybe even to suggest something other than Requip to treat your RLS. All that you need to do to get the ball rolling is to post a note with your questions or requests for help.

[Rustsmith]

Thursday, April 29

Welcome to

SuzieQ42, who has questions about B-12 and it's effect her RLS.

We would be happy to try to answer your questions. All that you need to do is post a note to ask.