JUNE 2021 - New Members

Post by **Rustsmith** » Wed Jun 23, 2021 10:11 pm

Wednesday, June 23

Welcome to

JenRH, for whom RLS is something that she has struggled with since she was a teenager, increasing in severity as she got older. It keeps her from sleeping well, and can be disruptive in life.

If there is anything that we can to do help you out, just post a note and tell us what we can do.

Post by **Rustsmith** » Thu Jun 24, 2021 8:46 pm

Thursday, June 23

Welcome to

mikec22, who has RLS and looking for all the help he can find.

We would be pleased to provide whatever help we can. All that you need to do is let us know what we can do.

Post by **Rustsmith** » Sat Jun 26, 2021 3:37 am

Friday, June 25

Welcome to

janetleino1964, whose RLS has left her unable to sit and relax in the evening.

We may be able to offer you some suggestions to discuss with your doctor that would return some normalcy to your evenings. If you would like our suggestions, just post a note telling us about what you are currently doing to manage your symptoms.

Post by **Rustsmith** » Sat Jun 26, 2021 2:41 pm

Saturday, June 26

Welcome to

sentinjna, whose RLS has been getting much worse since sentinjna's son-in-law was diagnosed with stage 3B colo-rectal cancer in May 2020. Sentinja was started on quinine then pregabalin but proved allergic so now on ropinirole. RLS quietened down but scared of augmentation.

Augmentation will eventually be an issue with ropinerole, but hopefully is will take years for that to occur. Many of us on the board have been through augmentation. It isn't pleasant to get off of dopamine agonists, but it is doable, especially with a supportive doctor who is willing to prescribe an opioid. If you have any questions, feel free to ask for whatever help you need.

Post by **Rustsmith** » Sun Jun 27, 2021 8:34 pm

Sunday, June 27

Welcome to

Former801, who is looking to gain knowledge and understanding of RLS symptoms.

We can hopefully provide whatever knowledge and understanding that you need. All you need to do is post a note with whatever questions that you have.

Post by **Rustsmith** » Mon Jun 28, 2021 12:11 am

Sunday, June 27

Welcome to

FlybyNight, who has been tortured by RLS for 20+ years now. FlybyNight is constantly seeking new ideas for coping with it.

We are all constantly on the lookout for new ideas and treatments. If you have an idea and don't find it in our messages, please let us know about it.

Post by **Rustsmith** » Mon Jun 28, 2021 2:38 am

Sunday, June 27

Welcome to

Aztec765, who has RLS and is seeking information.

We would be happy to provide whatever information you need, just ask.

Post by **Rustsmith** » Tue Jun 29, 2021 8:44 pm

Monday, June 29

Welcome to

MFELDMAR, whose RLS makes life exhausting, scary, depressing and unpredictable.

If there is anything that we can do that would help improve your situation, just post a note and tell us how.

Post by **Rustsmith** » Thu Jul 01, 2021 12:21 am

Wednesday, June 30

Welcome to

JodyH, who has terrible RLS and it's gotten so bad that she can barely sit at the desk for an hour never mind sleep without meds.

Most of us find that we have to stay ahead of our symptoms and so often we have forgotten what our is like without them. If you have any questions or would like some suggestions, then please feel free to post a note and let us know what we can provide.

Post by **Rustsmith** » Thu Jul 01, 2021 12:25 am

Wednesday, June 30

Welcome to

Gumby, who is miserable. Gumby has RLS every evening, has had 2 spinal stenosis surgeries and has ended up with RLS every evening.

Are you currently taking anything to help with your RLS? Has your doctor checked your iron levels? All are important bits of information that could help us provide you with some suggestions to regain your evenings.