JULY 2021 - New Members

Post by **Rustsmith** » Mon Jul 26, 2021 8:09 pm

Monday, July 26

Welcome to

MHochner24, who has had RLS for four years now and would like support from the group to see if there's any info she learn to help her understand her RLS better.

We would be happy to answer any questions that you have. All that you need to do is post a note with your question(s) to get the ball started.

Post by **Rustsmith** » Wed Jul 28, 2021 5:55 am

Tuesday, July 27

Welcome to

RJHarmon, who has severe RLS. That is driving RJHarmon crazy.

Please post a note telling us what you are currently doing to manage your RLS. There is always something new to try to get it under control. We just need to have an idea of where to start.

Post by **Rustsmith** » Thu Jul 29, 2021 2:54 am

Wednesday, July 28

Welcome to

Shapoppy, whose RLS is just devastating and depressing. It affects her sleep, her mood, her marriage, her activities, her energy...you name it.

If there is any information that we can provide you, such as suggestions for med changes, info about the latest research, etc. Just post a note and we will do what we can.

Post by **Rustsmith** » Thu Jul 29, 2021 9:55 pm

Thursday, July 29

Welcome to

mariejobaldwin, who has had RLS for over 20 years. She took Requip for 15 years straight with no problems at all....but then she had a difficult augmentation in 2018. She now takes Horizant and Rytary. They work great at night but she takes nothing for the daytime. It is a difficult illness as few understand unless they themselves suffer from it. She has learned to start her "workday" at 9 or 10 am to allow her grace if she has had a bad night.

If there is anything that we can do to help, just ask.

Post by **Rustsmith** » Fri Jul 30, 2021 9:08 pm

Friday, July 30

Welcome to

JenniferL, who was recently diagnosed with RLS. So far the medications that the doctor prescribed aren't working. It's gotten depressing. She would like to talk with people who have it to hopefully learn how they have found relief from their symptoms.

We would be happy to help explain both your treatment as well as what your other options are. All that you need to do is post a note with whatever questions that you have.

Post by **Rustsmith** » Fri Jul 30, 2021 9:11 pm

Friday, July 30

Welcome to

Margaret122maryL, who is dealing with refractory symptoms and augmentation. She needs to get off Mirapex after several years…Tramadol helps but she is concerned about it over the long term. She is considering travel to a Restless Leg center for a consult.

We would be happy to discuss your concerns about tramadol as well as your thoughts about traveling to one of the Quality Care Centers. If you will post a note telling us about your tramadol concerns and asking about our experience with the various centers, we would be happy to try to provide you with answers.

Post by **Rustsmith** » Sat Jul 31, 2021 3:23 pm

Saturday, July 31

Welcome to

RhondaLynn, who has had RLS for years and is sick and tired of it.. She needs to talk to others that totally understand.

We can all sympathize with your feelings about RLS and would be happy to discuss whatever you would like about it.