JULY 2021 - New Members

[Rustsmith]

Thursday, July 1

Welcome to

DEFNJEB, who is a 64 year old woman who has had RLS all of her life. Just recently it has become worse and not manageable with magnesium and diet. She is trying to figure out next steps.

Take a look at this publication that just came out today. It should have everything that you need to know and more. And if you have any questions, feel free to ask.

https://www.mayoclinicproceedings.org/a ... 0/fulltext

[Rustsmith]

Saturday, July 3

Welcome to

Salamati, who is new, scared, and starts panicking about 4pm about how the night is going to be. Salamati is also worried about the future.

There is no need to worry about the future. Many of us have had RLS for most of our lives and have learned to live around the symptoms. The trick is simply to have an understanding, knowledgeable and compassionate doctor. If there are any questions that you have, just post a note and ask away.

[Rustsmith]

Sunday, July 4

Welcome to

Hockeymom325, who has had RLS since adolescence and is currently experiencing augmentation with her medication. It is very difficult to work without rest. Need help to manage this.

Unfortunately with augmentation, your RLS will get worse before it gets better unless you can convince your doctor to prescribe you an opioid to cover the withdrawal. If you have any questions, please feel free to ask. Most of us have been where you are today and will be happy to provide whatever help we can.

[Polar Bear]

Monday 5th July 2021

Welcome today to

rht - who believes he/she has a form of RLS -- everywhere in the body -- ever since can be remembered as a small child, and while it has been annoying it seems like it has kept him/her more physically active and thus in better physical condition than might have been otherwise. rht compares the sensation to the urge to stretch when you get up from sleep, except it is more noticeable and is constant all day. My body simply wants to move.

A big question is .... does moving help your symptoms. There is a lot of good information on the Just Joined Forum. If you have anything to ask please do make a post and we will do all we can to help. Are you on any medication, some history of your symptoms and medications will be very useful.

[Polar Bear]

Monday 5th July 2021

Welcome today to

HeebyJeebys - who has suffered with RLS since the beginning of her pregnancy 1981. She desperately needs to get control of this debilitating condition!

You have been dealing with rls for a very long time. Please make a post telling us of your rls history, what treatment you have already tried and what has or has not worked. We hope we can help you find some control of your symptoms.

[Rustsmith]

Tuesday, July 6

Welcome to

jumping, who has suffered with RLS since she was pregnant with her last child 36 years ago. She has tried to manage it and have used some meds, but she needs to know she is not alone. It is only getting worse.

You are absolutely not alone. Everyone here can sympathize with your situation (except for the pregnancy part ). If you need advice for how to modify your meds, we can certainly offer you suggestions to share with your doctor.

[Rustsmith]

Tuesday, July 6

Welcome to

pdm, whose RLS impairs his ability to sleep, which makes him very cranky. He is also unable to relax in the evening.

Sleep issues are commonly the main initial complaint for those of us with RLS. If you would like some suggestions on how to improve your sleep and to be less cranky, just post a note to give us an idea of what you have been doing to treat the symptoms.

[Rustsmith]

Tuesday, July 6

Welcome to

pdurbin2, who has been dealing with RLS since age 9 yrs. pdurbin managed with a combination of gabapentin and pramipexole until recent complete knee replacement. Since then pdurbin has had issues most of every day. pdurbin is 84 yrs old and has much swelling and pain from the surgery and would therefore appreciate hearing from anyone with similar experience.

Hopefully someone who has been through knee surgery sees this. You can also post a note asking for comments. One question that you could help us out by answering is if you still have a prescription for an opioid since you still have pain and swelling. Opioids can be very helpful when it comes to treating RLS.

[Rustsmith]

Thursday, July 8

Welcome to

AndreaK, whose legs hurt and she has a hard time sleeping. She is looking for help!

We would be pleased to be able to help you in whatever way we can. All that you need to do is post a note to tell us what we can provide.

[Rustsmith]

Thursday, July 8

Welcome to

hdsocfam, who was recently diagnosed with RLS.

We would be happy to answer any questions that you have. You just need to post a note to ask.

[Rustsmith]

Thursday, July 8

Welcome to

ketan.muttha, who need to keep up to the date with RLS treatments.

You can find a file with the latest research in our General Topics forum Published Research discussion. There is a very recent paper that was published in the Mayo Clinic proceedings that you will find near the end viewtopic.php?p=105695#p105695. That may be exactly what you are looking for.

[Rustsmith]

Friday, July 9

Welcome to

hansonrocks, who has dealt with RLS for 20 years and would like to discuss with others who also deal with it.

We would be happy to discuss RLS with you. All you need to do to start the discussion is to post a note.

[Rustsmith]

Friday, July 9

Welcome to

TammySilva, who has had RLS for several years now. She is on her second medication. Unfortunately her symptoms involve severe pain.

So sorry that your RLS is the painful type. We would be happy to provide whatever advice that you need to try to gain better control over your RLS. All that you need to do is to post a note telling us how we can help.

[Rustsmith]

Saturday, July 10

Welcome to

CeeBrze, who is 58 yrs old and has suffered from diagnosed RLS for most of CeeBrze's life. CeeBrze has been on many prescription meds as well as IV iron. CeeBrze has depression and anxiety and survived a suicide attempt about 6 yrs ago. CeeBrze has already given instructions to donate both body and brain to research to try to help others.

You sound like you have been through most of the RLS treatments and are very knowledgeable. If there is anything that we can do, just post a note and ask.

[Rustsmith]

Sunday, July 11

Welcome to

bwendt, whose RLS over the years has progressed to the point where he just can't get enough sleep, travel is very difficult, family life is strained (due to lack of sleep) and well overall he feels miserable.

We may be able to provide some suggestions that will help you get more sleep. All that you need to do is to give us an idea of what you are currently doing to manage your RLS so that we will know where to start.