AUGUST 2021 - New Members

[Rustsmith]

Sunday, August 1

Welcome to

Rustica#77&1959, whose RLS causes a lack of sleep and she is part of the small percentage that has it all day every day. As a child it would wake her up periodically. Then as a young adult prior to going through menopause and during menopause it's like all hell broke loose. She has been on Requip for all this time and never, ever gets a hundred percent relief. She cannot travel because she cannot sit still long and cannot sit to watch television. It's horrible.

If you have been on Requip all this time, do you think that it is possible that you are experiencing augmentation? That is where Requip stops helping control the symptoms and starts making it worse. If you are willing to give us an idea of our dose, that might be a clue.

[Rustsmith]

Sunday, August 1

Welcome to

judicr, whodr husband has suffered from RLS for years. He is now hospitalized and needs an MRI but his RLS is so bad they will need to sedate him.

We can understand, but if he is that bad, then it could be that his medication schedule needs to be adjusted. If you are comfortable telling us about what he is taking for his RLS, we may be able to offer some suggestions that would improve his control both in and out of the hospital.

[Rustsmith]

Tuesday, August 3

Welcome to

RosieLander72, who has a severe case of RLS that I believes is related to lower back osteoarthritis. Working with doctors has been very frustrating. Lack of sleep, overeating and extreme anxiety have me at wits end.

We may be able to help you with suggestions that you can pass along to your doctors. All that you need to do is to post a note that gives us an idea of what you have tried so that we can offer you suggestions of things to try that should help.

[Rustsmith]

Tuesday, August 3

Welcome to

prancylegs, whose RLS affects her ability to sit still at her job, which is full-time. RLS affects her ability to sleep with sometimes only 2-3 hours a night. RLS affects her life style as she fears to take long flights, long drives, go to events at night.

If you have any questions or would like some suggestions for improving control of your RLS symptoms, just post a note and tell us what we can do to help.

[Rustsmith]

Thursday, August 5

Welcome to

mwward, who has augmentation issues while treating RLS and so needs support to get off of pramipexole.

Most of us have been through augmentation, so we understand the problems that you face. We would be happy to provide whatever support that you need during this difficult time. Just post a note to tell us what we can do to help out.

[Rustsmith]

Friday, August 6

Welcome to

SharenPryce, who has been suffering for years and did not know why. One day something told her to look up restless leg and she found RLS. Now she will get involved in this fight.

You have probably found that there are a number of treatments available, some are appropriate for starting out treatment but often the first thing that doctors will prescribe are meds (dopamine agonists) that should be reserved until later stages of treatment. If you have any questions, please do not hesitate to post a note to kick of a discussion.

[Rustsmith]

Saturday, August 7

Welcome to

Tony, who has RLS, which causes sleep deprivation. In turn, this keeps his wife awake and makes him irritable during the day.

Sleep issues are the main problem that drove us to get medical help in the first place. If you have any questions or would like suggestions on how to get more sleep, just post a note and we will try to help you out.

[Rustsmith]

Saturday, August 7

Welcome to

Todge, who has been suffering from RLS for over 10 years and is currently being weaned off Ropinirole and is in the misery stage. No QOL these days because of RLS.

Most of us have been where you are right now. There is hope for a better life one you get off of the ropinerole. If you have questions or would simply like to unload a bit during this difficult time, just post a note. We will understand.

[Rustsmith]

Sunday, August 8

Welcome to

netles68, who has suffered with RLS since her 20's an is now 52 years old. She took ropinirole for about 12yrs but is now suffering from severe augmentation. She is in the process of weaning off this dreadful drug...

We would be happy to provide whatever support that you can use, or feel free to post a note just to vent. We understand.

[Rustsmith]

Sunday, August 8

Welcome to

Jaclynfarr, who has been dealing with RLS for 13 years now.

If you have any questions or would like help, just post a note and we will do what we can.

[Rustsmith]

Monday, August 9

Welcome to

patrice, whose RLS diagnosis has been progressing quickly in frequency and severity over the last 3 months. He experiences about 50% of his nights with RLS symptoms and an inability to fall asleep after "episodes" occur. Figuring out triggers has been difficult, putting him at a disadvantage for managing his symptoms and reducing the day-to-day impact of "normalcy."

Are you being treated by a physician yet? If so, what are you taking? We would be happy to answer any questions that you have or offer any advice that you could use.

[Rustsmith]

Tuesday, August 10

Welcome to

Chriscea, whose RLS causes a lack of sleep and pain. Chrisceaa also suffers with osteoarthritis and post spinal fusion and both knees have been replaced. Chriscea is in constant pain and when an episode of Willis Ekbom causes uncontrolled jerking Chriscea cannot sleep and it creates such anxiety and depression. This is life changing.

We would love to be able to offer you some suggestions for improving your current situation. Are you currently taking anything for your RLS? There are meds that will help and some may also help with the pain. If you are comfortable with posting a note to tell us more, we can get started with a discussion.

[Rustsmith]

Wednesday, August 11

Welcome to

mag1020, whose RLS has affected sleep and has made her both very unhealthy physically and mentally.

We all know exactly what you mean. If there is any advice that we can offer to improve things or any questions that you have, just ask.

[badnights]

Today we welcome Karlpoll to the board. Karlpoll suffers from aching pain in the legs that nothing seems to help.

Karlpoll, do you also get an urge to move along with the aches? Does walking reduce the aches? You can start a Topic of your own and tell us more about your situation. Or feel free to just browse around and comment in other Topics. You'll find a lot of people here who have probably been through what you're going through; hopefully it helps.

[Rustsmith]

Friday, August 13

Welcome to

lespudo, who has had RLS since childhood and diagnosed in adulthood. She feels like a slave to it as it is a daily occurrence and there are times it happens in the middle of the afternoon, so she has to make sure to carry her medication at all times.

If you are currently taking a dopamine agonist, the afternoon flares could be a sign that you are starting to augment. If so, you need to start taking to your doctor about switching to a non-dopamine med, which will be difficult. If you have any questions, please feel free to ask.